me/cfs

Now published - link here Preprint Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia (FM) are chronic diseases with poorly understood pathophysiology and diagnosis based on clinical assessment of unspecific symptoms. The recent post-COVID-19 condition, which...

Full title: Identifying, synthesising and appraising existing evidence relating to myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review Objectives To identify, synthesise and appraise evidence relating to myalgic encephalomyelitis/chronic fatigue...

https://www.magonlinelibrary.com/doi/abs/10.12968/chhe.2023.4.4.165 British Journal of Child Health Vol. 4, No. 4 Comment New government delivery plan to support children with myalgic encephalomyelitis Dorothy Lepkowska Published Online:23 Sep 2023 https://doi.org/10.12968/chhe.2023.4.4.165...

Abstract: SARS-CoV-2 infection causes transient cardiorespiratory and neurological disorders, and severe acute illness is rare among children. Post COVID-19 condition (PCC) may cause profound, persistent phenotypes with increasing prevalence. Its manifestation and risk factors remain elusive...

Source: University of Sheffield Date: September 20, 2022; online September 20, 2023 UrL: https://etheses.whiterose.ac.uk/31310/ https://etheses.whiterose.ac.uk/31310/1/Alex%20Houston%20DClinPsy%20Thesis%20190217932%20Redacted%20Version.pdf Distress and coping in ME/CFS: Understanding the...

Understanding, diagnosing, and treating Myalgic encephalomyelitis/chronic fatigue syndrome – State of the art: Report of the 2nd international meeting at the Charité fatigue center Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a devastating disease affecting millions...

The β1-adrenergic receptor links sympathetic nerves to T cell exhaustion Abstract CD8+ T cells are essential components of the immune response against viral infections and tumours, and are capable of eliminating infected and cancerous cells. However, when the antigen cannot be cleared, T cells...

Epstein-Barr virus-acquired immunodeficiency in myalgic encephalomyelitis-Is it present in long COVID? Abstract Both myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) and long COVID (LC) are characterized by similar immunological alterations, persistence of chronic viral infection...

Wasn't sure where to put this but I wanted to note the following: It's not known whether or when the ME Association plans to update its Articles of Association to reflect a change in its objectives...

Social Security Administration: Providing Medical Evidence for Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) This 3-page official document is from the US but could be useful for people applying for disability payments in other countries also...

Polybio Fall 2023 Symposium "Join us online Friday Oct. 20 for updates on PolyBio supported projects & collaborations including those spearheaded by the #LongCovid Research Consortium. " Register on Zoom:https://us02web.zoom.us/webinar/register/WN__cnUbsaISb-D0AtXQ9yGbQ#/registration Speakers...

Guideline for the funding of interdisciplinary collaborations for research into the pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Federal Gazette of 01.09.2023 https://www.bmbf.de/bmbf/shareddocs/bekanntmachungen/de/2023/09/2023-09-01-Bekanntmachung-ME-CFS.html...

Preprint. Now published - see post #18 This is from Maureen Hanson's group. Abstract In healthy individuals, physical exercise improves cardiovascular health and muscle strength, alleviates fatigue, and reduces risk of chronic diseases. Although exercise is suggested as a lifestyle...

eClinicalMedicine Long-term symptom severity and clinical biomarkers in post-COVID-19/chronic fatigue syndrome:results from a prospective observational cohort Legler et al Summary Background Post-COVID-19 syndrome (PCS) is characterised by a wide range of symptoms, primarily fatigue and...

Increased gut permeability and bacterial translocation are associated with fibromyalgia and myalgic encephalomyelitis/chronic fatigue syndrome: implications for disease-related biomarker discovery Background: There is growing evidence of the significance of gastrointestinal complaints in the...

Have set this up in its own thread because although it initially seemed to be on US it is UK based. https://mecfs-med-ed.org/about-us/

We are thrilled to share some exciting news with you! Thanks to the incredible generosity of the McCusker Charitable Foundation, and their commitment to advancing medical research, we are embarking on an unprecedented journey that promises to revolutionize the care of people with ME/CFS and Long...

I thought it might be useful to compile a list of inspiring, interesting or notable people with ME/CFS who despite their illness were still able to achieve a lot. In most cases their health seemed to have improved as with (severe) ME/CFS it is nearly impossible to achieve notable things. The...

Abstract: Fatigue is the most commonly reported and debilitating extraglandular symptom of primary Sjögren′s syndrome (pSS). Fatigue and exertional intolerance are hallmark symptoms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). We aimed to characterize fatigue and further...

Preprint. Now published see post #6 Abstract Background: Infectious mononucleosis, caused by the Epstein-Barr Virus (EBV-IM), has been linked to the development of myalgic encephalomyelitis/chronic fatigue-syndrome (ME/CFS) in children, adolescents, and young adults. Our study presents the...