me/cfs

  1. E

    Polybio Fall 2023 Symposium

    Polybio Fall 2023 Symposium "Join us online Friday Oct. 20 for updates on PolyBio supported projects & collaborations including those spearheaded by the #LongCovid Research Consortium. " Register on Zoom:https://us02web.zoom.us/webinar/register/WN__cnUbsaISb-D0AtXQ9yGbQ#/registration Speakers...
  2. E

    German Government announces new funding guidelines for ME/CFS

    Guideline for the funding of interdisciplinary collaborations for research into the pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Federal Gazette of 01.09.2023 https://www.bmbf.de/bmbf/shareddocs/bekanntmachungen/de/2023/09/2023-09-01-Bekanntmachung-ME-CFS.html...
  3. Andy

    Dysregulation of extracellular vesicle protein cargo in female ME/CFS cases & sedentary controls in response to maximal exercise, 2023 Giloteaux et al

    Preprint. Now published - see post #18 This is from Maureen Hanson's group. Abstract In healthy individuals, physical exercise improves cardiovascular health and muscle strength, alleviates fatigue, and reduces risk of chronic diseases. Although exercise is suggested as a lifestyle...
  4. Kalliope

    Long-term symptom severity and clinical biomarkers in post-COVID-19/[CFS]: results from a prospective observational cohort, 2023, Legler+

    eClinicalMedicine Long-term symptom severity and clinical biomarkers in post-COVID-19/chronic fatigue syndrome:results from a prospective observational cohort Legler et al Summary Background Post-COVID-19 syndrome (PCS) is characterised by a wide range of symptoms, primarily fatigue and...
  5. Sly Saint

    Increased gut permeability and bacterial translocation are associated with fibromyalgia and ME/CFS: implications for...biomarker, 2023 Martin et al

    Increased gut permeability and bacterial translocation are associated with fibromyalgia and myalgic encephalomyelitis/chronic fatigue syndrome: implications for disease-related biomarker discovery Background: There is growing evidence of the significance of gastrointestinal complaints in the...
  6. Sly Saint

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    Have set this up in its own thread because although it initially seemed to be on US it is UK based. https://mecfs-med-ed.org/about-us/
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    $500 000 Gift to OMF - Chris Armstrong

    We are thrilled to share some exciting news with you! Thanks to the incredible generosity of the McCusker Charitable Foundation, and their commitment to advancing medical research, we are embarking on an unprecedented journey that promises to revolutionize the care of people with ME/CFS and Long...
  8. ME/CFS Science Blog

    Inspiring stories from people with ME/CFS

    I thought it might be useful to compile a list of inspiring, interesting or notable people with ME/CFS who despite their illness were still able to achieve a lot. In most cases their health seemed to have improved as with (severe) ME/CFS it is nearly impossible to achieve notable things. The...
  9. Sly Saint

    Characterizing Sjögren-Associated Fatigue: A Distinct Phenotype from ME/CFS, 2023, Scheibenbogen et al

    Abstract: Fatigue is the most commonly reported and debilitating extraglandular symptom of primary Sjögren′s syndrome (pSS). Fatigue and exertional intolerance are hallmark symptoms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). We aimed to characterize fatigue and further...
  10. Sly Saint

    One-Year Follow-up of Young People with ME/CFS Following Infectious Mononucleosis by Epstein-Barr Virus, 2023 Scheibenbogen et al

    Preprint. Now published see post #6 Abstract Background: Infectious mononucleosis, caused by the Epstein-Barr Virus (EBV-IM), has been linked to the development of myalgic encephalomyelitis/chronic fatigue-syndrome (ME/CFS) in children, adolescents, and young adults. Our study presents the...
  11. Sly Saint

    Review Surveying the Metabolic and Dysfunctional Profiles of T Cells and NK Cells in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2023, Maya

    Abstract: Millions globally suffer from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The inflammatory symptoms, illness onset, recorded outbreak events, and physiological variations provide strong indications that ME/CFS, at least sometimes, has an infectious origin, possibly...
  12. John Mac

    Preprint A Proposed Explainable Artificial Intelligence-Based Machine Learning Model for Discriminative Metabolites for ME/CFS, 2023, Yagin et al

    Full title: A Proposed Explainable Artificial Intelligence-Based Machine Learning Model for Discriminative Metabolites for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Abstract Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating disease...
  13. Sly Saint

    People with Long Covid and ME/CFS Exhibit Similarly Impaired Balance and Physical Capacity: A Case-Case-Control Study 2023, Hayes et al

    Abstract Purpose Postural sway and physical capacity had not previously been compared between people with long COVID and people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Therefore, this study determined postural sway and physical capacity in people with long COVID (∼16...
  14. ME/CFS Science Blog

    Questionnaires that can differentiate depression from chronic symptoms

    Many questionnaires used to measure depression ask about general symptoms such as fatigue, sleep, appetite, concentration etc. People with a chronic illness such as ME/CFS already have those symptoms and are thus more likely to score high on these depression questionnaires, even if they are not...
  15. Trish

    Reduced diversity and altered composition of the gut microbiome in individuals with ME/CFS, 2016, Giloteaux, Hanson et al

    Reduced diversity and altered composition of the gut microbiome in individuals with myalgic encephalomyelitis/chronic fatigue syndrome Abstract Background Gastrointestinal disturbances are among symptoms commonly reported by individuals diagnosed with myalgic encephalomyelitis/chronic fatigue...
  16. Andy

    Trial Report Possible Markers For Myalgic Encephalomyelitis / CFS Developed In Long Covid: Utility Of Serum Ferritin And Insulin-like Growth Factor-I,2023,Yamamoto

    Merged thread Final paper abstract here ************ Editorial: Ferritin and myalgic encephalomyelitis/chronic fatigue syndrome in post COVID-19, an unexpected facet of the hyperferritinemic syndrome? Coronavirus disease 2019 (COVID-19) has provoked a catastrophic medical emergency worldwide...
  17. Trish

    Contesting the psychiatric framing of ME/CFS, 2017, Spandler and Allen

    Contesting the psychiatric framing of ME/CFS Published version, paywalled https://link.springer.com/article/10.1057/s41285-017-0047-0 Full version: https://core.ac.uk/download/pdf/96679012.pdf Abstract ME/CFS is a medically contested illness and its understanding, framing and treatment has...
  18. Andy

    Review A systematic review and meta-analysis of urinary biomarkers in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), 2023, Taccori et al

    Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multifactorial illness that affects many body systems including the immune, nervous, endocrine, cardiovascular, and urinary systems. There is currently no universal diagnostic marker or targeted treatment for ME/CFS...
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    Preprint The Psychological Benefits of Forest Bathing in Individuals with Fibromyalgia and CFS/ME: A Pilot Study, 2023, Serrat et al

    I just had to share this study, it's way too funny and a good example of the quality of psychological research. I'm not using the usual formatting here as there's no use to it. It starts of funnily with being published in the European Journal of Forest Research. Some of my favorite snippets...
  20. John Mac

    Cognitive impairment in long COVID and short duration ME patients is mediated by orthostatic hemodynamic changes, 2023, Vernon et al

    Full title: Cognitive impairment in post-acute sequelae of COVID-19 and short duration myalgic encephalomyelitis patients is mediated by orthostatic hemodynamic changes Introduction: Cognitive impairment is experienced by people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)...
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