The post-viral fatigue syndromes long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have multiple, potentially overlapping, pathological processes. These include persisting reservoirs of virus e.g. SARS-CoV-2 in long COVID patient's tissues, immune dysregulation with or...
ME/CFS is a debilitating disease with obscure aetiology. However, despite the extensive amount of research that has been performed on the transcriptomes of ME/CFS patients, all of them are solely focused on linear RNAs, and the profiling of circRNAs in ME/CFS has been completely omitted. In this...
Date & Time : Fri, Jun 16 5:00 PM - 7:00 PM
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https://www.independent.com/events/movie-screening-movie-about-m-e-long-covid-event/
Nature reviews microbiology
Long COVID: major findings, mechanisms and recommendations
Abstract
Long COVID is an often debilitating illness that occurs in at least 10% of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections.
More than 200 symptoms have been identified with...
audio
citizen science
dysautonomia
dysfunctional mitochondria
eric topol
hannah davis
long covid
long covid research
me/cfs
patient led research
transcript
Abstract
Multiple sclerosis (MS) and Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) share the symptom of fatigue, and might even coexist together. Specifically focusing on genetics, pathophysiology, and neuroimaging data, we discuss an overview of the parallels, correlation, and...
Abstract
BACKGROUND The literature is mixed about the occurrence of alcohol intolerance among patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Surveys that asked respondents with ME/CFS whether they experienced alcohol intolerance within a recent time frame might...
Introduction: During a standard 70-degree head-up tilt test, 90% of adults with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) develop an abnormal reduction in cerebral blood flow (CBF). A 70-degree test might not be tolerated by young ME/CFS patients because of the high incidence...
Wirth and Lohn
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often associated with various other syndromes or conditions including mast cell activation (MCA), dysmenorrhea and endometriosis, postural tachycardia (POTS) and small fiber neuropathy (SFN). The causes of...
"Our foundation supports nationally and internationally recognized research projects, non-profit organizations to support those affected and charity projects to combat diseases such as myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and related diseases.
"We can build on a network...
Background
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, heterogenous disease characterized by unexplained persistent fatigue and other features including cognitive impairment, myalgias, post-exertional malaise, and immune system dysfunction. Cytokines are present in...
ME/CFS Pathophysiology Investigated by Invasive Cardiopulmonary Exercise Testing and Autonomic Function Testing.
J. Squires 2, K. Wichmann Madsen 2, M.C. Stovall 2, S. Al-Zayer 2, W. Xiao 3, C.-J. Chang 3, P. Novak 1, D.M. Systrom 2...
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multi-factorial systemic chronic debilitating disease of poorly understood etiology and limited systematic evidence. The questionnaire and interview-based survey included 169 ME/CFS patients from the Swiss ME/CFS association.
The...
Abstract (only):
Exploring the Genetic Contribution to Oxidative Stress in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Nicholas Henry Hampilos1 , Arnaud Germain2 , Xiangling Mao1 , Maureen R. Hanson2 , Dikoma C. Shungu1 1 Weill Cornell Medicine 2 Cornell University...
From Solve M.E. - a call to action for Advocacy Week:
"Ask your Members of Congress to support the CARE for Long COVID Act!"
https://p2a.co/Xpr5nVf
This link goes to a form that sends an email to your government officials with one click.
If you like you can modify their sample message before...
ABSTRACT
Topic Importance
Post-Acute Sequelae of SARS-CoV-2 (PASC) is a long-term consequence of acute infection from coronavirus disease 2019 (COVID-19). Clinical overlap between PASC and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has been observed, with shared symptoms...
Wasn't sure where to post this. Does anyone know if there is research into sleeping patterns and changes in symptom severity during the course of the day?
Here's my general sleep and symptom profile:
Main sleep: 4am - 2pm
Symptoms on waking: Paralysis, whole body stiffness, restricted movement...
preprint
Abstract
These three syndromes - long covid (LC), postural orthostatic tachycardia syndrome (POTS), and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) - have many symptoms in common. The common denominator remains elusive. The blood brain barrier (BBB) has been a barrier...
I saw this post by @MEFoggyDog on Mastodon so I thought I'd share.
This same hashtag - #MPDoYourJobForME - is also being used on twitter so you can search for it there.
I did not watch the whole video, but the title of the document linked in the post is:
Politician's Guide: How To Advocate...
Preprint.
Paper now published, see this post
Abstract
A blood-based diagnostic test for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and multiple sclerosis (MS) would be of great value in both conditions, facilitating more accurate and earlier diagnosis, helping with current...
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