Polybio Fall 2023 Symposium
"Join us online Friday Oct. 20 for updates on PolyBio supported projects & collaborations including those spearheaded by the #LongCovid Research Consortium. "
Register on Zoom:https://us02web.zoom.us/webinar/register/WN__cnUbsaISb-D0AtXQ9yGbQ#/registration
Speakers...
Guideline for the funding of interdisciplinary collaborations for research into the pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Federal Gazette of 01.09.2023
https://www.bmbf.de/bmbf/shareddocs/bekanntmachungen/de/2023/09/2023-09-01-Bekanntmachung-ME-CFS.html...
Preprint. Now published - see post #18
This is from Maureen Hanson's group.
Abstract
In healthy individuals, physical exercise improves cardiovascular health and muscle strength, alleviates fatigue, and reduces risk of chronic diseases. Although exercise is suggested as a lifestyle...
eClinicalMedicine
Long-term symptom severity and clinical biomarkers in post-COVID-19/chronic fatigue syndrome:results from a prospective observational cohort
Legler et al
Summary
Background
Post-COVID-19 syndrome (PCS) is characterised by a wide range of symptoms, primarily fatigue and...
Increased gut permeability and bacterial translocation are associated with fibromyalgia and myalgic encephalomyelitis/chronic fatigue syndrome: implications for disease-related biomarker discovery
Background: There is growing evidence of the significance of gastrointestinal complaints in the...
We are thrilled to share some exciting news with you! Thanks to the incredible generosity of the McCusker Charitable Foundation, and their commitment to advancing medical research, we are embarking on an unprecedented journey that promises to revolutionize the care of people with ME/CFS and Long...
I thought it might be useful to compile a list of inspiring, interesting or notable people with ME/CFS who despite their illness were still able to achieve a lot. In most cases their health seemed to have improved as with (severe) ME/CFS it is nearly impossible to achieve notable things.
The...
Abstract:
Fatigue is the most commonly reported and debilitating extraglandular symptom of primary Sjögren′s syndrome (pSS). Fatigue and exertional intolerance are hallmark symptoms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
We aimed to characterize fatigue and further...
Preprint. Now published see post #6
Abstract
Background: Infectious mononucleosis, caused by the Epstein-Barr Virus (EBV-IM), has been linked to the development of myalgic encephalomyelitis/chronic fatigue-syndrome (ME/CFS) in children, adolescents, and young adults. Our study presents the...
Abstract:
Millions globally suffer from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The inflammatory symptoms, illness onset, recorded outbreak events, and physiological variations provide strong indications that ME/CFS, at least sometimes, has an infectious origin, possibly...
Full title:
A Proposed Explainable Artificial Intelligence-Based Machine Learning Model for Discriminative Metabolites for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Abstract
Background:
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating disease...
Abstract
Purpose
Postural sway and physical capacity had not previously been compared between people with long COVID and people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Therefore, this study determined postural sway and physical capacity in people with long COVID (∼16...
Many questionnaires used to measure depression ask about general symptoms such as fatigue, sleep, appetite, concentration etc. People with a chronic illness such as ME/CFS already have those symptoms and are thus more likely to score high on these depression questionnaires, even if they are not...
Reduced diversity and altered composition of the gut microbiome in individuals with myalgic encephalomyelitis/chronic fatigue syndrome
Abstract
Background
Gastrointestinal disturbances are among symptoms commonly reported by individuals diagnosed with myalgic encephalomyelitis/chronic fatigue...
Merged thread
Final paper abstract here
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Editorial: Ferritin and myalgic encephalomyelitis/chronic fatigue syndrome in post COVID-19, an unexpected facet of the hyperferritinemic syndrome?
Coronavirus disease 2019 (COVID-19) has provoked a catastrophic medical emergency worldwide...
Contesting the psychiatric framing of ME/CFS
Published version, paywalled
https://link.springer.com/article/10.1057/s41285-017-0047-0
Full version:
https://core.ac.uk/download/pdf/96679012.pdf
Abstract
ME/CFS is a medically contested illness and its understanding, framing and treatment has...
Background
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multifactorial illness that affects many body systems including the immune, nervous, endocrine, cardiovascular, and urinary systems. There is currently no universal diagnostic marker or targeted treatment for ME/CFS...
I just had to share this study, it's way too funny and a good example of the quality of psychological research. I'm not using the usual formatting here as there's no use to it.
It starts of funnily with being published in the European Journal of Forest Research.
Some of my favorite snippets...
Full title:
Cognitive impairment in post-acute sequelae of COVID-19 and short duration myalgic encephalomyelitis patients is mediated by orthostatic hemodynamic changes
Introduction:
Cognitive impairment is experienced by people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)...
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