me/cfs

  1. DMissa

    Open Australia - Victoria: “Bottom-up”: linking the gut microbiota, immune system and metabolism in ME/CFS - Missailidis, La Trobe

    Hi everybody, I finally have the ethics in place to begin recruiting for our recently funded Mason Foundation study. ICC criteria. Healthy controls and pwME in VIC, Australia. Involves some questionaires and a blood and feces collection. We will home visit severely affected people. Primary...
  2. Dolphin

    Trial Report Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in CFS with Orthostatic Intolerance,2024,Medow & Stewart

    https://journals.physiology.org/doi/abs/10.1152/ajpregu.00071.2024 Research Article Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in Chronic Fatigue Syndrome with Orthostatic Intolerance Marvin S. Medow* and Julian M. Stewart 29 APR...
  3. John Mac

    Development Of a Mouse Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Janowski et al, 2024

    Not a recommendation :banghead: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex clinical condition characterized by overwhelming fatigue and associated symptoms like pain lasting greater than 6 months. ME/CFS is often initiated after an illness, exacerbated by stress...
  4. Andy

    Protocol Personalized Management of Fatigue in Individuals With [ME/CFS] and [LC] Using a Smart Digital mHealth Solution:... 2024 Dorronzoro-Zubiete et al

    Full title: Personalized Management of Fatigue in Individuals With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Using a Smart Digital mHealth Solution: Protocol for a Participatory Design Approach Abstract Background:Fatigue is the most common symptom in myalgic...
  5. John Mac

    Trial Report The influence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) family history on patients with ME/CFS, Jason et al, 2024

    https://www.explorationpub.com/uploads/Article/A1001215/1001215.pdf Abstract Aim: It is unclear if individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) with family histories of ME/CFS differ from those with ME/CFS without this family history. To explore this issue...
  6. John Mac

    Trial Report Impaired Hand Grip Strength Correlates with Greater Disability and Symptom Severity in Post-COVID ME/CFS, Paffrath et al, 2024

    Full title: Impaired Hand Grip Strength Correlates with Greater Disability and Symptom Severity in Post-COVID Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2077-0383/13/7/2153 Abstract Post-COVID syndrome (PCS) encompasses a diverse array of symptoms persisting beyond...
  7. H

    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    Edit: This thread includes several other threads merged with it. Some earlier threads on this team's work: The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it Dec 2017 to Jan 2018 Don Staines and Griffith Aug 2018 Australia - Parliamentarians learn...
  8. Peter T

    United Kingdom: ME Association news

    Copied from this thread The British ME Association are requesting people to send them accounts of their experiences of health and social care as part of a planned campaign looking at good practice and the new NICE guidelines to roll out in ME Awareness Week in May and beyond. See...
  9. Andy

    Review Clinical evidence of the link between gut microbiome and myalgic encephalomyelitis/chronic fatigue syndrome: a retrospective review 2024 Wang et al

    Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a heterogeneous disorder with elusive causes, but most likely because of clinical and other biological factors. As a vital environmental factor, the gut microbiome is increasingly emphasized in various refractory diseases...
  10. Dolphin

    Trial Report Identifying the mental health burden in ME/CFS patients in Switzerland: A pilot study, 2024, König et al

    https://www.sciencedirect.com/science/article/pii/S2405844024030627 Identifying the mental health burden in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients in Switzerland: A pilot study Rahel Susanne König, Daniel Henry Paris, Marc Sollberger, Rea Tschopp PII...
  11. Dolphin

    Trial Report Can a consensus occur on a research case definition for ME/CFS?, 2024, Jason

    https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2314409 Research Article Can a consensus occur on a research case definition for ME/CFS? Leonard A. Jason, Suvetha Ravichandran & Aiden Rathmann Received 05 Dec 2023, Accepted 11 Jan 2024, Published online: 13 Feb 2024...
  12. BenWesty

    Open An investigation into the associations between perfectionism, anxiety and fatigue in people living with ME/CFS, 2024, Westwood

    Hi, my name is Ben Westwood and I'm an undergraduate psychology student at The University of Worcester in the UK. This is the link to my final year research project: https://ucw.onlinesurveys.ac.uk/8svdjgru5x-11 Having spent most of my twenties living with ME/CFS and subsequently developing...
  13. Dolphin

    Webinar recording: ME/CFS in children and young people - Dr Nigel Speight & Debbie Burgess (TYMES Trust) (2020)

    (From 2020) Sheffield ME and fibromyalgia group webinar ME/CFS in children and young people - Dr Nigel Speight Dr Nigel Speight, foremost UK expert in ME in children and young people, talking about 'ME in children and young people, an ideal approach compared with less than ideal approaches'...
  14. Sly Saint

    DNA Methylation Changes in Blood Cells of Fibromyalgia and Chronic Fatigue Syndrome Patients, 2023, Przybylowicz et al

    Patrycja Kamila Przybylowicz, Katarzyna Ewa Sokolowska, Hubert Rola, Tomasz Kazimierz Wojdacz Independent Clinical Epigenetics Laboratory, Pomeranian Medical University, Szczecin, Poland Correspondence: Tomasz Kazimierz Wojdacz, Independent Clinical Epigenetics Laboratory, Pomeranian Medical...
  15. Sly Saint

    A qualitative longitudinal study of a health psychological group intervention for patients with ME/CFS 2023, Keurulainen et al

    (originally published in Aug 2023) Abstract Objectives To explore myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients' experiences of a health psychological group intervention and its usefulness, non-usefulness or harmfulness for illness management and adjustment. Design A...
  16. Sly Saint

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and fibromyalgia are indistinguishable by their cerebrospinal fluid proteomes 2022, Schutzer et al

    Steven E Schutzer, Tao Liu, Chia-Feng Tsai, Vladislav A Petyuk, Athena Schepmoes, Yi-Ting Wang, Karl Weitz, Jonas Bergquist, Richard Smith, Benjamin Natelson preprint Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia have overlapping neurologic symptoms...
  17. Sly Saint

    Review A systematic review of quantitative EEG findings in Long COVID, Fibromyalgia and Chronic Fatigue Syndrome, 2023, Silva-Passadouro et al

    Abstract Long COVID (LC) is a multisymptom clinical syndrome with similarities to Fibromyalgia Syndrome (FMS) and Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME). All these conditions are believed to be associated with centrally driven mechanisms such as central sensitisation. There...
  18. E

    People With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Exhibit Similarly Impaired Vascular Function, 2023, McLaughlin+

    People With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Exhibit Similarly Impaired Vascular Function Background This study aimed to compare flow-mediated dilation values between individuals with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  19. Mij

    HERV activation segregates ME/CFS from fibromyalgia while defining a novel nosologic entity, 2025, Gimenez-Orenga, Oltra

    Now published - link here Preprint Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia (FM) are chronic diseases with poorly understood pathophysiology and diagnosis based on clinical assessment of unspecific symptoms. The recent post-COVID-19 condition, which...
  20. Andy

    Review Identifying, synthesising and appraising existing evidence relating to [ME/CFS] and pregnancy: a mixed-methods systematic review 2023 Slack et al

    Full title: Identifying, synthesising and appraising existing evidence relating to myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review Objectives To identify, synthesise and appraise evidence relating to myalgic encephalomyelitis/chronic fatigue...
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