Hi everybody, I finally have the ethics in place to begin recruiting for our recently funded Mason Foundation study.
ICC criteria. Healthy controls and pwME in VIC, Australia. Involves some questionaires and a blood and feces collection. We will home visit severely affected people.
Primary...
https://journals.physiology.org/doi/abs/10.1152/ajpregu.00071.2024
Research Article
Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in Chronic Fatigue Syndrome with Orthostatic Intolerance
Marvin S. Medow* and Julian M. Stewart
29 APR...
Not a recommendation :banghead:
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex clinical condition characterized by overwhelming fatigue and associated symptoms like pain lasting greater than 6 months. ME/CFS is often initiated after an illness, exacerbated by stress...
Full title: Personalized Management of Fatigue in Individuals With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Using a Smart Digital mHealth Solution: Protocol for a Participatory Design Approach
Abstract
Background:Fatigue is the most common symptom in myalgic...
https://www.explorationpub.com/uploads/Article/A1001215/1001215.pdf
Abstract Aim: It is unclear if individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) with family histories of ME/CFS differ from those with ME/CFS without this family history. To explore this issue...
Full title:
Impaired Hand Grip Strength Correlates with Greater Disability and Symptom Severity in Post-COVID Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
https://www.mdpi.com/2077-0383/13/7/2153
Abstract
Post-COVID syndrome (PCS) encompasses a diverse array of symptoms persisting beyond...
Edit: This thread includes several other threads merged with it.
Some earlier threads on this team's work:
The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it
Dec 2017 to Jan 2018
Don Staines and Griffith
Aug 2018
Australia - Parliamentarians learn...
australia
channelopathy
charity
collaborative research
conference
funding
griffith university
marshall-gradisnik
me australia
me/cfsmeet the scientists
melastatin
ncned
staines
trpm3
Copied from this thread
The British ME Association are requesting people to send them accounts of their experiences of health and social care as part of a planned campaign looking at good practice and the new NICE guidelines to roll out in ME Awareness Week in May and beyond. See...
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a heterogeneous disorder with elusive causes, but most likely because of clinical and other biological factors. As a vital environmental factor, the gut microbiome is increasingly emphasized in various refractory diseases...
https://www.sciencedirect.com/science/article/pii/S2405844024030627
Identifying the mental health burden in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients in Switzerland: A pilot study
Rahel Susanne König, Daniel Henry Paris, Marc Sollberger, Rea Tschopp
PII...
https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2314409
Research Article
Can a consensus occur on a research case definition for ME/CFS?
Leonard A. Jason,
Suvetha Ravichandran
&
Aiden Rathmann
Received 05 Dec 2023, Accepted 11 Jan 2024, Published online: 13 Feb 2024...
Hi, my name is Ben Westwood and I'm an undergraduate psychology student at The University of Worcester in the UK. This is the link to my final year research project:
https://ucw.onlinesurveys.ac.uk/8svdjgru5x-11
Having spent most of my twenties living with ME/CFS and subsequently developing...
(From 2020)
Sheffield ME and fibromyalgia group webinar
ME/CFS in children and young people - Dr Nigel Speight
Dr Nigel Speight, foremost UK expert in ME in children and young people, talking about 'ME in children and young people, an ideal approach compared with less than ideal approaches'...
Patrycja Kamila Przybylowicz, Katarzyna Ewa Sokolowska, Hubert Rola, Tomasz Kazimierz Wojdacz
Independent Clinical Epigenetics Laboratory, Pomeranian Medical University, Szczecin, Poland
Correspondence: Tomasz Kazimierz Wojdacz, Independent Clinical Epigenetics Laboratory, Pomeranian Medical...
(originally published in Aug 2023)
Abstract
Objectives
To explore myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients' experiences of a health psychological group intervention and its usefulness, non-usefulness or harmfulness for illness management and adjustment.
Design
A...
Steven E Schutzer, Tao Liu, Chia-Feng Tsai, Vladislav A Petyuk, Athena Schepmoes, Yi-Ting Wang, Karl Weitz, Jonas Bergquist, Richard Smith, Benjamin Natelson
preprint
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia have overlapping neurologic symptoms...
Abstract
Long COVID (LC) is a multisymptom clinical syndrome with similarities to Fibromyalgia Syndrome (FMS) and Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME). All these conditions are believed to be associated with centrally driven mechanisms such as central sensitisation. There...
People With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Exhibit Similarly Impaired Vascular Function
Background
This study aimed to compare flow-mediated dilation values between individuals with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
Now published - link here
Preprint
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia (FM) are chronic diseases with poorly understood pathophysiology and diagnosis based on clinical assessment of unspecific symptoms. The recent post-COVID-19 condition, which...
Full title: Identifying, synthesising and appraising existing evidence relating to myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review
Objectives
To identify, synthesise and appraise evidence relating to myalgic encephalomyelitis/chronic fatigue...
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