me/cfs

  1. John Mac

    Trial Report Plasma Neurofilament Light Chain: A Potential Biomarker for Neurological Dysfunction in ME/CFS, 2024, Azcue et al

    Full title: Plasma Neurofilament Light Chain: A Potential Biomarker for Neurological Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disorder characterized by heterogeneous symptoms, which lack...
  2. Dolphin

    Thesis ME/CFS Health-related quality of life, 2024, Huseby

    Masters thesis in Norwegian with English summary https://brage.inn.no/inn-xmlui/bitstream/handle/11250/3138625/no.inn:inspera:224834835:91517292.pdf?sequence=1&isAllowed=y ME/CFS - Helserelatert livskvalitet ME/CFS - Health-related quality of life Kandidatnr: 22 - Mats Huseby Fakultet for...
  3. John Mac

    Review Potential pathophysiological role of the ion channel TRPM3 in ME/CFS and the therapeutic effect of low-dose naltrexone, 2024, Lohn et al

    Full title: Potential pathophysiological role of the ion channel TRPM3 in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and the therapeutic effect of low-dose naltrexone Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating disease with a broad...
  4. forestglip

    Hypothesis Hypocortisolemic ASIA: A vaccine-and chronic infection-induced syndrome behind the origin of long COVID and ME, 2024, Ruiz-Pablos et al

    Hypocortisolemic ASIA: A vaccine-and chronic infection-induced syndrome behind the origin of long COVID and myalgic encephalomyelitis (Provisionally accepted) Manuel Ruiz-Pablos 1, Aintzane Zabaleta 2, Bruno Paiva 2 1 Complutense University of Madrid, Madrid, Madrid, Spain 2 Center of Applied...
  5. John Mac

    What can be done to combat CFS/ME?

    A perfect example of garbage in, garbage out. An AI generated response. Insight from top 4 papers To combat Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME), a multi-faceted approach is recommended. Research suggests that a concentrated intervention program involving education, cognitive...
  6. Dolphin

    Australia: National Health and Medical Research Council (NHMRC): Development of ME/CFS guidelines

    Press release from Australian government announcing $1.1 million for the NHMRC to develop ME/CFS guidelines https://www.emerge.org.au/news/media-release-backing-belief-with-better-support-for-people-with-chronic-fatigue/ OFFICIAL MARK BUTLER MP MINISTER FOR HEALTH AND AGED CARE MEDIA...
  7. Dolphin

    Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul

    https://www.medrxiv.org/content/10.1101/2024.05.16.24307437v1 Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported Chronic Fatigue Syndrome in British Columbia, Canada, and their health-related quality of life Enkhzaya Chuluunbaatar-Lussier, Melody Tsai, Travis...
  8. SNT Gatchaman

    PolyBio: New LongCOVID research launched by PolyBio’s global consortium of scientists

    Link Medford MA, February 22, 2024 – PolyBio Research Foundation, a global collaboration convening the world’s leading chronic disease scientists, today announced the second phase of its LongCovid Research Consortium (LCRC), including the distribution of $15M to fund scientific research...
  9. Yann04

    Resources on why the Name “CFS” is problematic and “ME” or “ME/CFS” is recommended.

    As the title suggests I’m looking for resources on why the Name “CFS” is problematic and “ME” or “ME/CFS” is recommended. Specifically I’m in contact with multiple people and communities that use the terminology “CFS” or “CFS/ME” and I would like to share with them a convincing document or...
  10. E

    Open UK: Investigating family planning, pregnancy, and parenting for people with ME/CFS - the faMELy study

    Hello, I am part of a team of researchers at Newcastle University – funded by the ME Association, interested in finding out more about family planning, pregnancy, and raising children for people with ME/CFS. The overall aim of this exploratory study is to highlight research priorities, and...
  11. AAUoL

    Open RECRUITING: Investigating the impact of ME/CFS and Long COVID on visual perception and sustained attention using Pupil Frequency Tagging and EEG

    Investigating the impact of ME/CFS and Long COVID on visual perception and sustained attention using Pupil Frequency Tagging and EEG (Leicester, UK) Individuals with Myalgic Encephalomyelitis / Chronic fatigue syndrome (ME/CFS) often report visual overload, difficulties filtering relevant from...
  12. DMissa

    Open Australia - Victoria: “Bottom-up”: linking the gut microbiota, immune system and metabolism in ME/CFS - Missailidis, La Trobe

    Hi everybody, I finally have the ethics in place to begin recruiting for our recently funded Mason Foundation study. ICC criteria. Healthy controls and pwME in VIC, Australia. Involves some questionaires and a blood and feces collection. We will home visit severely affected people. Primary...
  13. Dolphin

    Trial Report Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in CFS with Orthostatic Intolerance,2024,Medow & Stewart

    https://journals.physiology.org/doi/abs/10.1152/ajpregu.00071.2024 Research Article Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in Chronic Fatigue Syndrome with Orthostatic Intolerance Marvin S. Medow* and Julian M. Stewart 29 APR...
  14. John Mac

    Development Of a Mouse Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Janowski et al, 2024

    Not a recommendation :banghead: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex clinical condition characterized by overwhelming fatigue and associated symptoms like pain lasting greater than 6 months. ME/CFS is often initiated after an illness, exacerbated by stress...
  15. Andy

    Protocol Personalized Management of Fatigue in Individuals With [ME/CFS] and [LC] Using a Smart Digital mHealth Solution:... 2024 Dorronzoro-Zubiete et al

    Full title: Personalized Management of Fatigue in Individuals With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Using a Smart Digital mHealth Solution: Protocol for a Participatory Design Approach Abstract Background:Fatigue is the most common symptom in myalgic...
  16. John Mac

    Trial Report The influence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) family history on patients with ME/CFS, Jason et al, 2024

    https://www.explorationpub.com/uploads/Article/A1001215/1001215.pdf Abstract Aim: It is unclear if individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) with family histories of ME/CFS differ from those with ME/CFS without this family history. To explore this issue...
  17. John Mac

    Trial Report Impaired Hand Grip Strength Correlates with Greater Disability and Symptom Severity in Post-COVID ME/CFS, Paffrath et al, 2024

    Full title: Impaired Hand Grip Strength Correlates with Greater Disability and Symptom Severity in Post-COVID Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2077-0383/13/7/2153 Abstract Post-COVID syndrome (PCS) encompasses a diverse array of symptoms persisting beyond...
  18. H

    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    Edit: This thread includes several other threads merged with it. Some earlier threads on this team's work: The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it Dec 2017 to Jan 2018 Don Staines and Griffith Aug 2018 Australia - Parliamentarians learn...
  19. Peter T

    United Kingdom: ME Association news

    Copied from this thread The British ME Association are requesting people to send them accounts of their experiences of health and social care as part of a planned campaign looking at good practice and the new NICE guidelines to roll out in ME Awareness Week in May and beyond. See...
  20. Andy

    Review Clinical evidence of the link between gut microbiome and myalgic encephalomyelitis/chronic fatigue syndrome: a retrospective review 2024 Wang et al

    Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a heterogeneous disorder with elusive causes, but most likely because of clinical and other biological factors. As a vital environmental factor, the gut microbiome is increasingly emphasized in various refractory diseases...
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