me/cfs

  1. rvallee

    USA: The RECOVER Initiative - Long Covid research

    New thread created by collecting posts from a number of other threads If someone's in a listening mood, there's no transcript. 30 minutes with the NIH Recover initiative lead: Direct link: https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo006435&aid=10.1056/NEJMe2201619&area=.
  2. Andy

    Case report: Myalgic encephalomyelitis/chronic fatigue syndrome post coronavirus disease 2019, 2022, Kusama et al

    Coronavirus disease 2019 (COVID-19), an infectious disease caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), has been the most impactful infectious disease in the 21st century. The SARS-CoV-2 pandemic significantly increased the number of patients and deaths worldwide...
  3. Kalliope

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    The Lancet New NICE guideline on chronic fatigue syndrome: more ideology than science? Signe A. Flottorp, Kjetil Brurberg, Per Fink, Hans Knoop, Vegard B B Wyller Article is paywalled other than this text (references removed): The National Institute for Health and Care Excellence (NICE) in the...
  4. Andy

    Systematic review and meta-analysis of cognitive impairment in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), 2022, Sebaiti et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is commonly associated with cognitive complaints. To bring out the neuropsychological symptomatology inherent to ME/CFS, we conducted a systematic review according to PRISMA and MOOSE guidelines of the literature through the...
  5. Dolphin

    Vagus Nerve Stimulation

    Merged thread I wasn't sure where to post this. I haven't watched it, so I have no idea what it's like.
  6. L

    NICE Evidence Search containing ME/CFS Symptom Management information will be removed shortly

    In my attempts to help my GP help me, I came across a NICE Evidence page outrightly calling ME a physical illness with information on identifying and managing the symptoms. https://www.evidence.nhs.uk/document?id=2193067&returnUrl=search?q=myalgic+encephalomyelitis...
  7. Dolphin

    "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" (Bateman Horne Center)

    Bateman Horne Center · RELEASED: "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" https://bit.ly/34nh5yX The guidebook is designed for the patient, their support network, and medical providers to: - Understand ME/CFS and its defining characteristic of post-exertional malaise...
  8. Sly Saint

    Getting a Head Start on Treating Long COVID, Infection Control Today interview with Jaime Seltzer of #MEAction

    https://www.infectioncontroltoday.com/view/getting-a-head-start-on-treating-long-covid
  9. InitialConditions

    The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

    Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.
  10. Andy

    The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS), 2022, Scheibenbogen et al

    Myalgic encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) is a neglected, debilitating multi-systemic disease without diagnostic marker or therapy. Despite evidence for neurological, immunological, infectious, muscular and endocrine pathophysiological abnormalities, the etiology and a...
  11. Hoopoe

    The microclots in ME/CFS study has begun

  12. Sly Saint

    Review of the Midbrain Ascending Arousal Network Nuclei and Implications for (ME/CFS), Gulf War Illness (GWI) and (PEM), 2022, Baraniuk

    Review of the Midbrain Ascending Arousal Network Nuclei and Implications for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Gulf War Illness (GWI) and Postexertional Malaise (PEM) Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS and Gulf War Illness (GWI) share...
  13. R

    United Kingdom: Independent SAGE

    Split from this thread Independent SAGE is discussing Long Covid on Friday. I’ve emailed to suggest they invite some people like Jonathan who are knowledgeable about the problems with ME/CFS research and service provision. I’ve also sent a little background info and asked how we can ensure that...
  14. Sly Saint

    Metabolomic Evidence for Peroxisomal Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2022, Levine,Hornig,Lipkin et al

    Threads for the preprint and final paper have ben merged. Abstract for the final paper here. PREPRINT Evidence for Peroxisomal Dysfunction and Dysregulation of the CDP-Choline Pathway in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Xiaoyu Che, Christopher R Brydges, Yuanzhi Yu, Adam...
  15. Sly Saint

    Podcast: Dr. M’s Women and Children First Podcast #13 – Dr. Peter Rowe, Chronic Fatigue Syndrome and Long Covid

    not listened to it so no idea about content https://www.docsmo.com/dr-ms-women-and-children-first-podcast-13-dr-peter-rowe-chronic-fatigue-syndrome-and-long-covid/
  16. Sly Saint

    Commonalities in the Features of Cancer and Chronic Fatigue Syndrome (CFS): Evidence for Stress-Induced Phenotype Instability?, 2022, Rusin et al

    Abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) and Cancer-Related Fatigue (CRF) are syndromes with considerable overlap with respect to symptoms. There have been many studies that have compared the two conditions, and some of this research suggests that the etiologies of...
  17. Sly Saint

    Psychogenic Pseudosyncope: Real or Imaginary? Results from a Case-Control Study in (ME/CFS) Patients, 2022, Visser

    Abstract Background and objectives: Orthostatic intolerance (OI) is a clinical condition in which symptoms worsen upon assuming and maintaining upright posture and are ameliorated by recumbency. OI has a high prevalence in patients with myalgic encephalomyelitis/chronic fatigue syndrome...
  18. W

    Deaths from ME/CFS

    For a book that I am writing, I am looking for published articles or research about non-suicide deaths from ME/CFS. I’ve written about Sophia Mirza, and have sources for that, but somewhere I read that there have been others in the US and Australia, but I've been unable to locate those sources...
  19. Mij

    Submax Exercise Provokes Activation of the Anterior Default Mode Network During the Resting State as a Biomarker of PEM in ME/CFS, Rayhan, 2021

    Original title: Submaximal Exercise Provokes Increased Activation of the Anterior Default Mode Network During the Resting State as a Biomarker of Postexertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Rakib U. Rayhan et al Abstract Background: Myalgic...
  20. Sly Saint

    Brainstem Abnormalities in [ME/CFS]: A Scoping Review and Evaluation of Magnetic Resonance Imaging Findings, 2021, Nelson et al

    Nelson T, Zhang LX, Guo H, Nacul L, Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multisystem medical condition with heterogeneous symptom expression. Currently, there is no effective cure or treatment for the standard care of patients. A variety of ME/CFS...
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