me/cfs

  1. Andy

    Metabolomics study of the effect of Danggui Buxue Tang on rats with chronic fatigue syndrome, 2022, Miao et al

    Abstract Danggui Buxue Tang (DBT), a traditional Chinese medicine formula for “invigorating qi and enriching blood”, has been reported to produce a good effect on chronic fatigue syndrome (CFS). However, the related mechanism remains largely unresolved. In this study, a metabolomics approach...
  2. Hutan

    Time course of exercise induced alterations in daily activity in CFS, 2005, Black and McCully

    2005 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1280928/ Abstract In a previous study we demonstrated that while people with CFS had lower daily activity levels than control subjects, they were able to increase daily activity via a daily walking program. We reanalyzed our data to determine...
  3. ahimsa

    The Pharmaceutical Journal: Opening the black box: the researchers trying to find treatments for long COVID

    Opening the black box: the researchers trying to find treatments for long COVID March 17, 2022 I did not read the whole thing but I noticed this section on ME/CFS:
  4. Andy

    Diagnosis of [ME/CFS] With Partial Least Squares Discriminant Analysis: Relevance of Blood Extracellular Vesicles, 2022, González-Cebrián et al

    Full title: Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome With Partial Least Squares Discriminant Analysis: Relevance of Blood Extracellular Vesicles Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic disease characterized by long-lasting persistent...
  5. Andy

    A classification system for Post-Acute Sequelae of SARS CoV-2 Infection, 2022, Jason and Islam

    Abstract This study aimed to contribute to the development of a research case definition for post-acute sequelae of SARS CoV-2 infection (PASC) using a PASC data set and experiences from case definitions developed for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Our database...
  6. MSEsperanza

    The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem (2016), Edwards, JC et al

    Edwards JC, McGrath S, Baldwin A, Livingstone M, Kewley A. The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem. Fatigue. 2016;4(2):63-69. doi:10.1080/21641846.2016.1160598 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4867862/ Abstract Myalgic...
  7. A

    Bansal (eye) pupil reaction test

    Split from Eye movements may be key to chronic fatigue syndrome diagnosis Bansal uses an eye reaction test I believe as part of his diagnosis process .
  8. Hoopoe

    Eye movements may be key to chronic fatigue syndrome diagnosis

    “What we’re trying to do is generate a unique ME/CFS signature based on characteristic changes to eye movements, a behaviourial signature that is specific to the disorder that can be used to help diagnose it and monitor the effects of any treatments.” “Tentatively, what we’ve found already...
  9. J

    Comparative Analysis of Extracellular Vesicles in Patients with Severe and Mild MECFS, Bonilla et al, 2022

    https://www.frontiersin.org/articles/10.3389/fimmu.2022.841910/full Myalgic encephalomyelitis, or chronic fatigue syndrome (ME/CFS) is a serious disease whose cause has yet to be identified. Objective markers of the disease are also not well understood and would serve as important tools in...
  10. Hoopoe

    Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) identifies several potential risk loci, 2022,Hajdarevic et al

    Largest ME/CFS genetic study to date. Three different cohorts totaling more than 2500 patients. First Immunochip study in ME/CFS. Possible implication of TPPP genetic region https://www.sciencedirect.com/science/article/pii/S0889159122000782 TPPP plays a key role in myelination of nerve cells...
  11. Andy

    2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

    Copied post Video is now available https://youtu.be/D8ayxBSsk_M
  12. Andy

    Open Canada: Breathing Protocol for Covid-19 Long Haul and ME/CFS, Toronto

    "Research Opportunity for ME & Long COVID Patients in Toronto York University is recruiting ME patients and longhaulers for a research protocol in Toronto. Patients' individual limitations will be respected. See below for more details. Please contact Heather at edgell@yorku.ca or...
  13. Andy

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    Merged thread David Tuller seems to be on a tour of the UK :) http://www.iomtoday.co.im/article.cfm?id=37206
  14. Jonathan Edwards

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...
  15. MarianaLewis

    Closed 2022 UK Recruiting: narrative inquiry exploring the school experiences of teenagers with ME/CFS (doctoral research)

    Hello, Thank you for being so welcoming on this forum. My name is Mariana, I'm currently doing a professional doctorate in Educational Psychology at the University of Bristol (School of Policy Studies), and I am researching the school experiences of teenagers with ME/CFS for my thesis. A...
  16. Andy

    Recursive Debility: Symptoms, Patient Activism, and the Incomplete Medicalization of ME/CFS, 2022, Lim Rogers

    Abstract This article examines the contestation of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Lacking consistent diagnostic definitions, agreed-on biological indicators, or approved treatments, ME/CFS is an incompletely medicalized condition. It is defined by intractable and...
  17. Arnie Pye

    Perspective: Drawing on Findings From Critical Illness to Explain ME/CFS, 2022, Stanculescu, Bergquist

    Not sure where this should be posted. Please move if necessary. Title of article : Perspective: Drawing on Findings From Critical Illness to Explain Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Link : https://www.frontiersin.org/articles/10.3389/fmed.2022.818728/full Date published : 8th...
  18. L

    Traumatic brain injury - similarities with and differences to ME/CFS, including PEM

    Thread split from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion For those who want to share personal experiences on this topic less publicly there is a thread in the members only area here. ______________ I used to think it was unique. But I am starting...
  19. ahimsa

    Webinar: Implications of ME/CFS Case Definitions for Long-COVID, Dr. Leonard Jason

    Webinar: “Implications Of ME/CFS Case Definitions For Long Covid” Guest speaker: Dr. Leonard Jason Wednesday, March 16, 2022, 4 p.m. EDT (1 p.m. PDT, 8 p.m. GMT) Full announcement - https://usawg.wordpress.com/2022/02/26/special-event/ Click here to register
  20. ahimsa

    USA: News from the Bateman Horne Center

    This thread has news updates from the BHC. For threads on useful resources provided by BHC see the Resources forum. Ever-Growing Awareness by Lucinda Bateman, MD Mar 2, 2022 https://batemanhornecenter.org/evergrowing-awareness/
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