me/cfs

  1. Dolphin

    "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" (Bateman Horne Center)

    Bateman Horne Center · RELEASED: "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" https://bit.ly/34nh5yX The guidebook is designed for the patient, their support network, and medical providers to: - Understand ME/CFS and its defining characteristic of post-exertional malaise...
  2. Sly Saint

    Getting a Head Start on Treating Long COVID, Infection Control Today interview with Jaime Seltzer of #MEAction

    https://www.infectioncontroltoday.com/view/getting-a-head-start-on-treating-long-covid
  3. InitialConditions

    The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

    Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.
  4. Andy

    The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS), 2022, Scheibenbogen et al

    Myalgic encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) is a neglected, debilitating multi-systemic disease without diagnostic marker or therapy. Despite evidence for neurological, immunological, infectious, muscular and endocrine pathophysiological abnormalities, the etiology and a...
  5. Hoopoe

    The microclots in ME/CFS study has begun

  6. Sly Saint

    Review of the Midbrain Ascending Arousal Network Nuclei and Implications for (ME/CFS), Gulf War Illness (GWI) and (PEM), 2022, Baraniuk

    Review of the Midbrain Ascending Arousal Network Nuclei and Implications for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Gulf War Illness (GWI) and Postexertional Malaise (PEM) Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS and Gulf War Illness (GWI) share...
  7. R

    United Kingdom: Independent SAGE

    Split from this thread Independent SAGE is discussing Long Covid on Friday. I’ve emailed to suggest they invite some people like Jonathan who are knowledgeable about the problems with ME/CFS research and service provision. I’ve also sent a little background info and asked how we can ensure that...
  8. Sly Saint

    Metabolomic Evidence for Peroxisomal Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2022, Levine,Hornig,Lipkin et al

    Threads for the preprint and final paper have ben merged. Abstract for the final paper here. PREPRINT Evidence for Peroxisomal Dysfunction and Dysregulation of the CDP-Choline Pathway in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Xiaoyu Che, Christopher R Brydges, Yuanzhi Yu, Adam...
  9. Sly Saint

    Podcast: Dr. M’s Women and Children First Podcast #13 – Dr. Peter Rowe, Chronic Fatigue Syndrome and Long Covid

    not listened to it so no idea about content https://www.docsmo.com/dr-ms-women-and-children-first-podcast-13-dr-peter-rowe-chronic-fatigue-syndrome-and-long-covid/
  10. Sly Saint

    Commonalities in the Features of Cancer and Chronic Fatigue Syndrome (CFS): Evidence for Stress-Induced Phenotype Instability?, 2022, Rusin et al

    Abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) and Cancer-Related Fatigue (CRF) are syndromes with considerable overlap with respect to symptoms. There have been many studies that have compared the two conditions, and some of this research suggests that the etiologies of...
  11. Sly Saint

    Psychogenic Pseudosyncope: Real or Imaginary? Results from a Case-Control Study in (ME/CFS) Patients, 2022, Visser

    Abstract Background and objectives: Orthostatic intolerance (OI) is a clinical condition in which symptoms worsen upon assuming and maintaining upright posture and are ameliorated by recumbency. OI has a high prevalence in patients with myalgic encephalomyelitis/chronic fatigue syndrome...
  12. W

    Deaths from ME/CFS

    For a book that I am writing, I am looking for published articles or research about non-suicide deaths from ME/CFS. I’ve written about Sophia Mirza, and have sources for that, but somewhere I read that there have been others in the US and Australia, but I've been unable to locate those sources...
  13. Mij

    Submax Exercise Provokes Activation of the Anterior Default Mode Network During the Resting State as a Biomarker of PEM in ME/CFS, Rayhan, 2021

    Original title: Submaximal Exercise Provokes Increased Activation of the Anterior Default Mode Network During the Resting State as a Biomarker of Postexertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Rakib U. Rayhan et al Abstract Background: Myalgic...
  14. Sly Saint

    Brainstem Abnormalities in [ME/CFS]: A Scoping Review and Evaluation of Magnetic Resonance Imaging Findings, 2021, Nelson et al

    Nelson T, Zhang LX, Guo H, Nacul L, Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multisystem medical condition with heterogeneous symptom expression. Currently, there is no effective cure or treatment for the standard care of patients. A variety of ME/CFS...
  15. AliceLily

    ME/CFS progression in years and stages

    I'm interested to know how your ME has progressed in severity levels over all the years you have been sick. For easier reading can you write first the amount of years sick with ME, how long each stage and severity level. Thanks. For me: 26 years sick. Progression: Mild with severe cognitive...
  16. Sly Saint

    Male vs. Female Differences in Responding to Oxygen–Ozone Autohemotherapy (O2-O3-AHT) in Patients with ME/CFS, 2021, Chirumbolo et al

    Male vs. Female Differences in Responding to Oxygen–Ozone Autohemotherapy (O2-O3-AHT) in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Abstract (1) Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a syndrome that has fatigue as its major...
  17. Sly Saint

    Compression Stockings Improve Cardiac Output and Cerebral Blood Flow during Tilt Testing in (ME/CFS)Patients: A Randomized Crossover Trial, 2021,Rowe

    Compression Stockings Improve Cardiac Output and Cerebral Blood Flow during Tilt Testing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Patients: A Randomized Crossover Trial Abstract Background and Objectives: Orthostatic intolerance (OI) is a clinical condition in which...
  18. S

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ PACS..., 2021, Pretorius et al

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ Post-Acute Sequelae of COVID-19 (PASC) can resolve their persistent symptoms Etheresia Pretorius, Chantelle Venter, Gert Laubshder, Maritha Kotze, Kelebogile Moremi, Sunday Oladejo...
  19. Sly Saint

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Abstract Background and Objectives: Symptoms and hemodynamic findings during orthostatic stress have been reported in both long-haul...
  20. Sly Saint

    Blog Psychology today: Differentiating Fibromyalgia, Depression, and CFS

    https://www.psychologytoday.com/gb/blog/happiness-is-state-mind/202112/differentiating-fibromyalgia-depression-and-cfs I didn't read any further because if they still haven't got to grips with the diagnostic criteria.......
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