me/cfs

  1. Sly Saint

    Podcast: Getting To Know ME - Chapter 17 (Hopes & Dreams)

    https://anchor.fm/silent-elephant-project/episodes/33--Getting-To-Know-ME---Chapter-17-Hopes--Dreams-e1bdtus
  2. O

    COVID-19 and Chronic Fatigue Syndrome: An Endocrine Perspective, 2021, Bansal et al

    Abstract Patients recovering from COVID-19 may have persistent debilitating symptoms requiring long term support through individually tailored cardiopulmonary and psychological rehabilitation programs. Clinicians need to be aware about the likely long-term complications and their diagnostic...
  3. Haveyoutriedyoga

    Testing a newly developed activity pacing framework for chronic pain/fatigue: a feasibility study, Antcliffe et al 2021

    Testing a newly developed activity pacing framework for chronic pain/fatigue: a feasibility study Antcliffe et al 2021 BMJ Open Abstract Objectives To test the feasibility of using a new activity pacing framework to standardise healthcare professionals’ instructions of pacing, and explore...
  4. O

    Chronic fatigue syndrome against the background of the COVID-19 pandemic, 2021, Nikitina & Levin

    Abstract The more we learn about the new coronavirus infection, the more we understand that we will feel the echoes of the pandemic for many years, and those who have successfully endured the acute phase of COVID-19 may face the consequences of the infection. One of the most frequent...
  5. Andy

    Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), 2021, Murray

    Abstract Objective To explore the crisis of identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) through the lens of Communities of Practice. Methods A closed Facebook group was created to gather qualitative data from participants diagnosed with CFS/ME (n = 22). Data were...
  6. Hoopoe

    The maintained attention assessment in patients affected by [ME/CFS]: a reliable biomarker?, Murga et al, 2021

    Conclusion General cognition remains preserved in most patients, only a small group of them shows a significant mild cognitive impairment. Maintained attention is clearly deficient, showing a marked fatigability after the Toulouse-Piéron test. The effort was perceived as very hard by both...
  7. Trish

    Intimate Partner Violence and the Risk of Developing Fibromyalgia and Chronic Fatigue Syndrome, 2019, Chandan et al.

    Intimate Partner Violence and the Risk of Developing Fibromyalgia and Chronic Fatigue Syndrome Abstract Intimate partner violence (IPV) is a global public health issue with a variety of ill health consequences associated with exposure. Due to the stimulation of chronic stress and inflammatory...
  8. O

    Exposure to domestic abuse in women and the development of syndromes indicating central nervous system sensitization, 2021, Chandan et al

    The association between exposure to domestic abuse in women and the development of syndromes indicating central nervous system sensitization: A retrospective cohort study using UK primary care records Abstract Background Domestic abuse is a global public health issue. The association between...
  9. O

    Hidden from Sight: Why the complexity of ME/CFS needs to be recognised by policy makers, 2021, Űstűnkaya & Machin

    Background An estimated 260,000 people in the UK are living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS); this neurological condition has been described as ‘a serious, chronic, complex, and multisystem disease that frequently and dramatically limits the activities of affected...
  10. O

    Analysis of post COVID-19 condition and its overlap with myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Sukocheva et al

    Abstract Background The severe acute respiratory syndrome coronavirus-2 (SARS-CoV-2) disease (COVID-19) triggers the development of numerous pathologies and infection-linked complications and exacerbates existing pathologies in nearly all body systems. Aside from the primarily targeted...
  11. Wyva

    Bateman Horne Center: Treating COVID-19 in patients with ME/CFS & severe FM

    This is a PDF file.
  12. Andy

    The Interoceptive Sensitivity and Attention Questionnaire: Evaluating aspects of self-reported interoception in patients with [PPS]..., 2021, Bogaerts

    Full title: The Interoceptive Sensitivity and Attention Questionnaire: Evaluating aspects of self-reported interoception in patients with persistent somatic symptoms, stress-related syndromes and healthy controls. Abstract To validate the Interoceptive Sensitivity and Attention Questionnaire...
  13. Sly Saint

    Use of Cardiopulmonary Stress Testing for Patients With Unexplained Dyspnea Post–Coronavirus Disease, 2021, Mancini et al

    Abstract Objectives The authors used cardiopulmonary exercise testing (CPET) to define unexplained dyspnea in patients with post-acute sequelae of severe acute respiratory syndrome-coronavirus-2 (SARS-CoV-2) infection (PASC). We assessed participants for criteria to diagnose myalgic...
  14. Sly Saint

    Australia and New Zealand clinics: Specialised Health

    Copied post
  15. O

    Post COVID-19 Syndrome in Patients with Asymptomatic/Mild Form, 2021, Malkova et al

    Abstract Post COVID-19 Syndrome (PCS) is a complex of various symptoms developing a month or more after the acute phase of the disease. The cases of PCS development among patients with asymptomatic/mild forms are frequently reported; however, the pathogenesis of PCS in this group of patients is...
  16. Andy

    United Kingdom: South Cumbria CFS Service (Physical Health Psychology)

    "The Physical Health Psychology team offer a range of services across Cumbria and North Lancashire to help you to manage your physical symptoms and live a happier, healthier life. We are a team of Healthcare Professionals made up of Psychological Practitioners, CBT Therapists, Occupational...
  17. Hutan

    Post-infectious disease syndrome, 1988, Bannister

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2428896/ Abstract Many post-infectious syndromes have been recognized in the last 50 years, some following viral infections and others closely related to bacterial disease. The occurrence of prolonged fatigue following an apparent viral illness of...
  18. Sly Saint

    A Botanical; Containing Cistanche & Ginkgo Extracts; Improves CFS Symptoms in Adults: A Randomized, Double-Blind, Placebo-Controlled study,2021,Kan

    A Botanical Product Containing Cistanche and Ginkgo Extracts Potentially Improves Chronic Fatigue Syndrome Symptoms in Adults: A Randomized, Double-Blind, and Placebo-Controlled Study Juntao Kan1†, Junrui Cheng1,2†, Chun Hu3†, Liang Chen1, Siyu Liu1, Dawna Venzon3, Mary Murray3, Shuguang Li4*...
  19. O

    Associations between long-term conditions and upper gastrointestinal cancer incidence: UK Biobank, 2021, Marley et al

    Associations between long-term conditions and upper gastrointestinal cancer incidence: A prospective population-based cohort of UK Biobank participants Abstract Upper gastrointestinal cancers (oesophageal/stomach) have high mortality rates and are often diagnosed after the disease has...
  20. Sly Saint

    Reclaiming terminology for ME/CFS

    Brain fog, and now post exertional malaise, terms that were until fairly recently only used to describe ME/CFS symptoms have been hijacked and become generic terms. Maybe we should learn from the Fibromyalgia community? They use fibro fog, there are many article on this (even the NHS recognise...
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