Abstract:
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating and often life-long condition affecting over 20,000 New Zealanders. Symptoms include muscle and joint pain, severe fatigue, unrefreshing sleep, hypersensitivity to light and sound, and cognitive dysfunction...
This thread has been created by merging several threads on social prescribing
BBC News: More 'social prescribers' to ease pressure on GPs. 28.01.19
https://www.bbc.co.uk/news/health-46999922
alternative therapy
bbc
bps
ccg
gps
health inequality
helen stokes-lampard
me/cfsme/cfs service
nhs
primary care
social prescribing
united kingdom
vcs
volunteer
https://pubmed.ncbi.nlm.nih.gov/9989716/
A J Cleare 1, E Heap, G S Malhi, S Wessely, V O'Keane, J Miell
Abstract
Background: Reports of mild hypocortisolism in chronic fatigue syndrome led us to postulate that low-dose hydrocortisone therapy may be an effective treatment.
Methods: In a...
I don't know anymore about them other than spotting that they have a Facebook page, https://www.facebook.com/OTsforME, and group, https://www.facebook.com/groups/otsforme/, and a Twitter account, https://twitter.com/OTsforME
https://www.haaretz.com/israel-news/the-new-frontier-israeli-hopsitals-contend-with-long-covid-in-children-1.10280661
Has anything similar been reported in ME/CFS?
Source: Howard University
Date: April 16, 2021
URL:
https://www.proquest.com/openview/c0a823ec519e5e6acdd89c29ff4a4b2a/1
Investigating the neural underpinnings of Chronic Fatigue:
A multi-modal approach
----------------------------------------------------------
Rakib U. Rayhan
-...
Consensus statement
Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term conditions, 2021, Reid et al
British journal of sports medicine
https://bjsm.bmj.com/content/early/2021/11/03/bjsports-2021-104281
Consensus statement...
Moved from Six-month sequelae of post-vaccination SARS-CoV-2 infection: a retrospective cohort study of 10,024 breakthrough infections, 2021, Taquet et al
@Hutan thank you, I believe it's all coming together and Long Covid will have been instrumental.
The Pretorius micro-clot finding is...
I thought it might be useful for us to get to grips with this issue.
The GET defenders have said that NICE chose the trial endpoints it looked at incorrectly. As I understand it, NICE chose the longest followup points where possible, and in the case of PACE, that was 135 weeks. The GET...
Study now published, see https://www.s4me.info/threads/preprint-deficient-butyrate-producing-capacity-in-the-gut-microbiome-of-me-cfs-patients-is-associated-with-fatigue-symptoms-2021-guo-lipkin-et-al.23117/#post-459929 for abstract and link.
Preprint: Deficient butyrate-producing capacity in...
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness characterized by a diverse range of debilitating symptoms including autonomic, immunologic, and cognitive dysfunction. Although neurological and cognitive aberrations have been consistently reported, relatively...
The aim of present paper is to identify clinical phenotypes in a cohort of patients affected of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
Ninety-one patients and 22 healthy controls were studied with the following questionnaires, in addition to medical history: visual analogical...
Study now printed, see https://www.s4me.info/threads/preprint-multi-omics-of-host-microbiome-interactions-in-short-and-long-term-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-2021-xiong.23022/#post-459931 for abstract and link
Preprint: Multi-omics of host-microbiome interactions in...
Stakeholder submissions and NICE responses
This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS guideline draft, which also include responses from NICE.
The submissions were made by stakeholders in December 2020.
These tables with both the...
Posts moved from Exploring the scope of homoeopathy in combating the unfortunate consequences of post-COVID-19 survivors based on non-COVID conditions, 2021, Dixit
After twelve or so years struggling with ME and trying to stay on top of my working life, I was pleased to see the arrival of a...
ABSTRACT
Objective
The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been estimated from an ethnically and sociodemographically diverse community-based random sample of 10,119 youth aged 5–17. We assessed whether a salivary biomarker of fatigue could...
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