me/cfs

NOT a recent FOI but from 2015 following the IOM report; many familiar names, thought it might be of interest here. https://www.whatdotheyknow.com/request/357691/response/883778/attach/2/FOI%20EH73066%20Redacted%20documents%20for%20release.pdf

After a long time and a lot of work, our hypothesis on the development of ME/CFS following an Epstein Barr virus infection has finally been published...

Abstract Aims. This paper explores socio-demographic, work and clinical characteristics that are associated with occupational status among patients who were assessed at baseline and a follow-up point. Methods. Longitudinal data were assessed from patients affected by CFS who attended an...

Hi all, not sure if this is the best place for this post.. Our 8 year old daughter is currently really struggling with the fact that I am ill, which is utterly heartbreaking. I was wondering if anyone had come across any resources for kids to help them come to terms with a parent who is ill? I...

Introduction: Chronic fatigue syndrome (CFS/ME) is a disabling disease severely impacting school attendance, education, and social life in young students. Uncertainties surrounding CFS/ME etiology may impact the interpretation of CFS/ME in schools. Thus, school personnel need information from...

Abstract The findings of controlled trials on use of intravenous immunoglobulin G (IV IgG) to treat myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are generally viewed as representing mixed results. On detailed review, a clearer picture emerges, which suggests that the potential...

Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome Amit K. Saha, Brendan R. Schmidt, Julie Wilhelmy, Vy Nguyen, Abed Abugherir, Justin K. Do, Mohsen Nemat-Gorgani, Ronald W. Davis Clinical Hemorheology and Microcirculation 71 (2019) 113–116 DOI...

Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating and often life-long condition affecting over 20,000 New Zealanders. Symptoms include muscle and joint pain, severe fatigue, unrefreshing sleep, hypersensitivity to light and sound, and cognitive dysfunction...

This thread has been created by merging several threads on social prescribing BBC News: More 'social prescribers' to ease pressure on GPs. 28.01.19 https://www.bbc.co.uk/news/health-46999922

https://pubmed.ncbi.nlm.nih.gov/9989716/ A J Cleare 1, E Heap, G S Malhi, S Wessely, V O'Keane, J Miell Abstract Background: Reports of mild hypocortisolism in chronic fatigue syndrome led us to postulate that low-dose hydrocortisone therapy may be an effective treatment. Methods: In a...

Posts copied from The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS...

vvv Source: Medical Immunology Vol 23, #4, pp 975-980 Date: July/August 2021 URL: https://www.mimmun.ru/mimmun/article/view/2439 https://www.mimmun.ru/mimmun/article/view/2439/1456 Early diagnostics of autoinflammatory disorders associated with post-viral chronic fatigue...

Opinionated Science Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Mesothelioma November 5, 2021 ME/CFS first 17 minutes...

I don't know anymore about them other than spotting that they have a Facebook page, https://www.facebook.com/OTsforME, and group, https://www.facebook.com/groups/otsforme/, and a Twitter account, https://twitter.com/OTsforME

https://www.haaretz.com/israel-news/the-new-frontier-israeli-hopsitals-contend-with-long-covid-in-children-1.10280661 Has anything similar been reported in ME/CFS?

Source: Howard University Date: April 16, 2021 URL: https://www.proquest.com/openview/c0a823ec519e5e6acdd89c29ff4a4b2a/1 Investigating the neural underpinnings of Chronic Fatigue: A multi-modal approach ---------------------------------------------------------- Rakib U. Rayhan -...

Consensus statement Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term conditions, 2021, Reid et al British journal of sports medicine https://bjsm.bmj.com/content/early/2021/11/03/bjsports-2021-104281 Consensus statement...

https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harms-ab215021-5d66-4f72-9ba2-06a633f298f3?source_location=topic_page

Moved from Six-month sequelae of post-vaccination SARS-CoV-2 infection: a retrospective cohort study of 10,024 breakthrough infections, 2021, Taquet et al @Hutan thank you, I believe it's all coming together and Long Covid will have been instrumental. The Pretorius micro-clot finding is...

I thought it might be useful for us to get to grips with this issue. The GET defenders have said that NICE chose the trial endpoints it looked at incorrectly. As I understand it, NICE chose the longest followup points where possible, and in the case of PACE, that was 135 weeks. The GET...