me/cfs

  1. Sly Saint

    Podcast: Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

    Opinionated Science Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Mesothelioma November 5, 2021 ME/CFS first 17 minutes...
  2. Andy

    Occupational Therapists for ME (OTs for ME)

    I don't know anymore about them other than spotting that they have a Facebook page, https://www.facebook.com/OTsforME, and group, https://www.facebook.com/groups/otsforme/, and a Twitter account, https://twitter.com/OTsforME
  3. Hoopoe

    Do postviral syndromes in children have a tendency to appear with a delay?

    https://www.haaretz.com/israel-news/the-new-frontier-israeli-hopsitals-contend-with-long-covid-in-children-1.10280661 Has anything similar been reported in ME/CFS?
  4. Dolphin

    Investigating the neural underpinnings of Chronic Fatigue: A multi-modal approach, 2021, Rayhan (PhD thesis)

    Source: Howard University Date: April 16, 2021 URL: https://www.proquest.com/openview/c0a823ec519e5e6acdd89c29ff4a4b2a/1 Investigating the neural underpinnings of Chronic Fatigue: A multi-modal approach ---------------------------------------------------------- Rakib U. Rayhan -...
  5. Daisy

    Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term conditions, 2021, Reid et al

    Consensus statement Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term conditions, 2021, Reid et al British journal of sports medicine https://bjsm.bmj.com/content/early/2021/11/03/bjsports-2021-104281 Consensus statement...
  6. John Mac

    United Kingdom: Petition Change.org: for a new mechanism by which M.E/C.F.S patients can report harms.

    https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harms-ab215021-5d66-4f72-9ba2-06a633f298f3?source_location=topic_page
  7. SNT Gatchaman

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Moved from Six-month sequelae of post-vaccination SARS-CoV-2 infection: a retrospective cohort study of 10,024 breakthrough infections, 2021, Taquet et al @Hutan thank you, I believe it's all coming together and Long Covid will have been instrumental. The Pretorius micro-clot finding is...
  8. Hutan

    The trial endpoint issue (135 weeks)

    I thought it might be useful for us to get to grips with this issue. The GET defenders have said that NICE chose the trial endpoints it looked at incorrectly. As I understand it, NICE chose the longest followup points where possible, and in the case of PACE, that was 135 weeks. The GET...
  9. Andy

    Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue..., 2023, Guo,Lipkin et al

    Study now published, see https://www.s4me.info/threads/preprint-deficient-butyrate-producing-capacity-in-the-gut-microbiome-of-me-cfs-patients-is-associated-with-fatigue-symptoms-2021-guo-lipkin-et-al.23117/#post-459929 for abstract and link. Preprint: Deficient butyrate-producing capacity in...
  10. Sly Saint

    Limbic Perfusion Is Reduced in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2021, Xia Li et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness characterized by a diverse range of debilitating symptoms including autonomic, immunologic, and cognitive dysfunction. Although neurological and cognitive aberrations have been consistently reported, relatively...
  11. Andy

    Clinical Heterogeneity in ME/CFS. A Way to Understand Long-COVID19 Fatigue, 2021,Murga et al

    The aim of present paper is to identify clinical phenotypes in a cohort of patients affected of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Ninety-one patients and 22 healthy controls were studied with the following questionnaires, in addition to medical history: visual analogical...
  12. Andy

    Multi-‘omics of gut microbiome-host interactions in short- and long-term myalgic encephalomyelitis/chronic fatigue syndrome patients, 2023, Xiong

    Study now printed, see https://www.s4me.info/threads/preprint-multi-omics-of-host-microbiome-interactions-in-short-and-long-term-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-2021-xiong.23022/#post-459931 for abstract and link Preprint: Multi-omics of host-microbiome interactions in...
  13. Science For ME

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS guideline draft, which also include responses from NICE. The submissions were made by stakeholders in December 2020. These tables with both the...
  14. freddyV

    Chinese Herbal Medicines - discussion thread

    Posts moved from Exploring the scope of homoeopathy in combating the unfortunate consequences of post-COVID-19 survivors based on non-COVID conditions, 2021, Dixit After twelve or so years struggling with ME and trying to stay on top of my working life, I was pleased to see the arrival of a...
  15. Wyva

    Saliva fatigue biomarker index as a marker for severe ME/CFS in a community based sample, 2021, Jason et al

    ABSTRACT Objective The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been estimated from an ethnically and sociodemographically diverse community-based random sample of 10,119 youth aged 5–17. We assessed whether a salivary biomarker of fatigue could...
  16. Andy

    Exploring the scope of homoeopathy in combating the unfortunate consequences of post-COVID-19 survivors based on non-COVID conditions, 2021, Dixit

    Abstract Objectives The long-term consequences of COVID-19 survivors care and post-coronavirus infection are not yet well understood. The review aims to see whether homoeopathy can help COVID-19 survivors recover from its consequences and improve their quality of life. Content A systematic...
  17. rvallee

    Sleep problems in ME/CFS - discussion thread

    Posts moved from Open Medicine Foundation (OMF) Could be interesting to check.
  18. Grigor

    Fibromyalgia and ME/CFS: an interoceptive predictive coding model of pain and fatigue expression, 2021, Sharp et al

    Harriet Sharp1,2, Kristy Themelis1,3, Marisa Amato1, Andrew Barritt1, Kevin Davies1, Neil Harrison1,4, Sarah Garfinkel1,5, Hugo Critchley1,2, Jessica Eccles1,2 Abstract: Introduction: The aetiology and pathophysiology of fibromyalgia and ME/CFS are poorly characterised but altered...
  19. Andy

    Case Report: Idiopathic combined adrenocorticotropin and growth hormone deficiency mimicking chronic fatigue syndrome, 2021, Tokumasu et al

    Abstract A 42-year-old man who had suffered from severe fatigue for 5 years was diagnosed as having chronic fatigue syndrome (CFS) and fibromyalgia. Endocrinological workup using combined anterior pituitary function tests showed that the patient had adrenocorticotropin hormone (ACTH)...
  20. rvallee

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    https://kclpure.kcl.ac.uk/portal/en/publications/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis(536398c9-3ebe-4faf-b3bc-e01257e82c65).html Abstract (Paragraphs mine for legibility) Chronic fatigue syndrome (CFS), sometimes referred to as myalgic...
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