me/cfs

  1. Sly Saint

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    "Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome – Baroness Thornton Oral questions" https://www.theyworkforyou.com/calendar/?d=2021-10-12#cal35881 (don't have any more details)
  2. Hutan

    Frequent IgG subclass and mannose binding lectin deficiency in patients with CFS, 2015, Guenther, Scheibenbogen et al

    https://www.sciencedirect.com/science/article/abs/pii/S0198885915004656 S. Guenther, M. Loebel, A. Mooslechner, M. Knops, L. Hanitsch, P. Grabowski, K. Wittke, C. Meisel, N. Unterwalder, H. Volka, Carmen Scheibenbogen Abstract Chronic fatigue syndrome (CFS) is a severe disease characterized by...
  3. MSEsperanza

    Evaluation of Immune Dysregulation in an Austrian Patient Cohort Suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Lutz et al

    Lutz L, Rohrhofer J, Zehetmayer S, Stingl M, Untersmayr E. Evaluation of Immune Dysregulation in an Austrian Patient Cohort Suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Biomolecules. 2021; 11(9):1359. https://doi.org/10.3390/biom11091359 free full text...
  4. mango

    Sweden: ME clinic and Masano Health digital rehab for ME/CFS

    Masano Health AB is a privately owned digital rehab company in Sweden. It's a quite new company, started in November-December 2020 according to information on their website. They updated their website yesterday to add information about their digital rehab for ME/CFS...
  5. Sly Saint

    Video: COVID Long Haulers and the Connection to ME/CFS by Dr. Bateman

    In August 2021, Dr. Bateman delivered a didactic to Nurse Practitioners and Physician Assistants where she addressed post-acute sequelae of COVID-19 (PASC), Long Haul COVID, ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), and orthostatic intolerance/dysautonomia. In this lecture...
  6. Dolphin

    Lumpers Versus Splitters: Analysing the Effects of Soothers on Fibromyalgia and Chronic Fatigue Syndrome, 2021, Crowe (M.Sc. Thesis)

    via Dr. Marc-Alexander Fluks Source: University Utrecht Date: May 11, 2021 URL: https://dspace.library.uu.nl/handle/1874/405927 https://dspace.library.uu.nl/bitstream/handle/1874/405927/Crowe%20%288158479%29%20thesis.pdf Lumpers Versus Splitters: Analysing the Effects of Soothers on...
  7. Andy

    Asthenic disorders as a manifestation of chronic fatigue syndrome, 2021, Putilina

    The article explains the changes in terminology and diagnostic criteria for asthenic disorders as manifestations of chronic fatigue syndrome CFS (myalgic encephalomyelitis). Chronic fatigue syndrome is defined as neuroimmune endocrine dysfunction with a purely clinical diagnosis. Probably, viral...
  8. Andy

    Chronic Fatigue Syndrome and Cardiovascular Disease: JACC State-of-the-Art Review, 2021, Natelson et al

    Highlights • ME/CFS, a clinical entity of unknown etiology characterized by PEM, is easily diagnosed when following available guidelines. • Patients with ME/CFS typically have small hearts, low stroke volume, and low total blood volume, and some have OI. • More studies are needed to understand...
  9. Sly Saint

    Video: Phil Murrays ME/CFS full recovery story & call for more research funding

    "Phil Murray had M.E. / Chronic Fatigue Syndrome for 8 years in his 30's. He's now living an active life in his 50's, running & rock climbing. Chat starts: 0:24 Interview starts: 0:48. He shares powerful & practical recovery insights and his passion for biomedical research. TIMESTAMPS...
  10. Nightsong

    'A life I can cope with'. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME, Clark et al., 2021

    Abstract Objectives: This study aimed to explore the experience of cognitive behavioural therapy (CBT) aimed at better management of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), rather than increasing activity. Design: This was a qualitative study using grounded theory...
  11. Dolphin

    Genetic study of T cell receptor (TCR) in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), 2021, Ueland (Masters thesis)

    From: Dr. Marc-Alexander Fluks Source: University of Oslo Date: May 18 and June 21, 2021 URL: https://www.duo.uio.no/bitstream/handle/10852/87105/7/Ueland_MasterThesis_2021.pdf Ref: https://www.mn.uio.no/ibv/studier/aktuelt/mastereksamen/var-2021/marthe%20ueland.html Genetic study of...
  12. Kalliope

    Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in ME/CFS - Pereira, Bateman et al, 2021

    frontiers in Systems Neuroscience Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Pereira, Bateman et al Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex...
  13. Sly Saint

    Article: Will there ever be a test for chronic fatigue syndrome?

    rest of article here https://www.medicaldevice-network.com/features/cfs-me-test/
  14. Andy

    Sex-specific plasma lipid profiles of ME/CFS patients and their association with pain, fatigue, and cognitive symptoms, 2021, Nkiliza, Klimas et al

    Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex illness which disproportionally affects females. This illness is associated with immune and metabolic perturbations that may be influenced by lipid metabolism. We therefore hypothesized that plasma...
  15. Sly Saint

    David Teshome interviews Leonard Jason on Long Haulers and ME/CFS

    David had read some of Leonard's publications including the study regarding problems with CBT when used with patients with ME/CFS. David also appreciated the research Leonard had done over the years examining case definitions. David believed that the work Leonard has done should be a foundation...
  16. Science For ME

    Northern Ireland: News from Hope 4 ME & Fibro

    2018 Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018 Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals NI - Regional review of Neurology services 2019 Hope 4 ME & Fibro Northern Ireland event (Wed 4th September 2019)...
  17. Hutan

    General practitioners' experience of the chronic fatigue syndrome, 1991, Ho-Yen and McNamara

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371754/ Abstract In order to examine the prevalence of patients with symptoms fulfilling the criteria for the chronic fatigue syndrome an extensive survey was carried out of general practitioners on 10 local government lists in two health boards...
  18. Hutan

    Patient management of post-viral fatigue syndrome,1990, Ho-Yen

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371214/ Abstract A case definition for post-viral fatigue syndrome is proposed within which various subgroups of patients exist. Any one treatment may not apply to all the subgroups. In particular, patients' experiences do not show that avoidance of...
  19. ahimsa

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management, 2021, Bateman et al

    Published today in the Mayo Clinic Proceedings: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management Lucinda Bateman, MD, Alison C. Bested, MD, Hector F. Bonilla, MD, Bela V. Chheda, MD, Lily Chu, MD, MSHS, Jennifer M. Curtin, MD, Tania T. Dempsey, MD...
  20. Sly Saint

    2021 US ICD-10-CM change proposal: addition of code for ME/CFS

    https://www.meaction.net/2021/08/23/meaction-6-me-orgs-call-for-cdc-to-change-how-it-tracks-me-cfs/
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