me/cfs

  1. Sly Saint

    Experiences Among School Personnel and School Nurses on Educational Adaptations for Students With CFS/ME: A Qualitative Interview Study, 2021, Simila

    Introduction: Chronic fatigue syndrome (CFS/ME) is a disabling disease severely impacting school attendance, education, and social life in young students. Uncertainties surrounding CFS/ME etiology may impact the interpretation of CFS/ME in schools. Thus, school personnel need information from...
  2. Sly Saint

    Back to the Future? Immunoglobulin Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Brownlie and Speight

    Abstract The findings of controlled trials on use of intravenous immunoglobulin G (IV IgG) to treat myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are generally viewed as representing mixed results. On detailed review, a clearer picture emerges, which suggests that the potential...
  3. SNT Gatchaman

    Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome, Saha et al, 2019

    Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome Amit K. Saha, Brendan R. Schmidt, Julie Wilhelmy, Vy Nguyen, Abed Abugherir, Justin K. Do, Mohsen Nemat-Gorgani, Ronald W. Davis Clinical Hemorheology and Microcirculation 71 (2019) 113–116 DOI...
  4. Sly Saint

    Understanding The Molecular Changes of Post Exertional Malaise In ME/CFS, 2021, Elley

    Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating and often life-long condition affecting over 20,000 New Zealanders. Symptoms include muscle and joint pain, severe fatigue, unrefreshing sleep, hypersensitivity to light and sound, and cognitive dysfunction...
  5. S

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    This thread has been created by merging several threads on social prescribing BBC News: More 'social prescribers' to ease pressure on GPs. 28.01.19 https://www.bbc.co.uk/news/health-46999922
  6. Hutan

    Low-dose hydrocortisone in chronic fatigue syndrome: a randomised crossover trial, 1999, Cleare, Wessely et al

    https://pubmed.ncbi.nlm.nih.gov/9989716/ A J Cleare 1, E Heap, G S Malhi, S Wessely, V O'Keane, J Miell Abstract Background: Reports of mild hypocortisolism in chronic fatigue syndrome led us to postulate that low-dose hydrocortisone therapy may be an effective treatment. Methods: In a...
  7. Fizzlou

    ME/CFS, FM: Mitochondrial dysfunction ... cellular hypoxia, hypoperfusion, endothelial dysfunction, persistent clots, 2021, Chang, Figueredo

    Posts copied from The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS...
  8. Samuel

    Early diagnostics of autoinflammatory disorders associated with post-viral CFS and cognitive impairments in chronic ... herpes, 2021, Nesterova et al

    vvv Source: Medical Immunology Vol 23, #4, pp 975-980 Date: July/August 2021 URL: https://www.mimmun.ru/mimmun/article/view/2439 https://www.mimmun.ru/mimmun/article/view/2439/1456 Early diagnostics of autoinflammatory disorders associated with post-viral chronic fatigue...
  9. Sly Saint

    Podcast: Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

    Opinionated Science Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Mesothelioma November 5, 2021 ME/CFS first 17 minutes...
  10. Andy

    Occupational Therapists for ME (OTs for ME)

    I don't know anymore about them other than spotting that they have a Facebook page, https://www.facebook.com/OTsforME, and group, https://www.facebook.com/groups/otsforme/, and a Twitter account, https://twitter.com/OTsforME
  11. Hoopoe

    Do postviral syndromes in children have a tendency to appear with a delay?

    https://www.haaretz.com/israel-news/the-new-frontier-israeli-hopsitals-contend-with-long-covid-in-children-1.10280661 Has anything similar been reported in ME/CFS?
  12. Dolphin

    Investigating the neural underpinnings of Chronic Fatigue: A multi-modal approach, 2021, Rayhan (PhD thesis)

    Source: Howard University Date: April 16, 2021 URL: https://www.proquest.com/openview/c0a823ec519e5e6acdd89c29ff4a4b2a/1 Investigating the neural underpinnings of Chronic Fatigue: A multi-modal approach ---------------------------------------------------------- Rakib U. Rayhan -...
  13. Daisy

    Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term conditions, 2021, Reid et al

    Consensus statement Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term conditions, 2021, Reid et al British journal of sports medicine https://bjsm.bmj.com/content/early/2021/11/03/bjsports-2021-104281 Consensus statement...
  14. John Mac

    United Kingdom: Petition Change.org: for a new mechanism by which M.E/C.F.S patients can report harms.

    https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harms-ab215021-5d66-4f72-9ba2-06a633f298f3?source_location=topic_page
  15. SNT Gatchaman

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Moved from Six-month sequelae of post-vaccination SARS-CoV-2 infection: a retrospective cohort study of 10,024 breakthrough infections, 2021, Taquet et al @Hutan thank you, I believe it's all coming together and Long Covid will have been instrumental. The Pretorius micro-clot finding is...
  16. Hutan

    The trial endpoint issue (135 weeks)

    I thought it might be useful for us to get to grips with this issue. The GET defenders have said that NICE chose the trial endpoints it looked at incorrectly. As I understand it, NICE chose the longest followup points where possible, and in the case of PACE, that was 135 weeks. The GET...
  17. Andy

    Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue..., 2023, Guo,Lipkin et al

    Study now published, see https://www.s4me.info/threads/preprint-deficient-butyrate-producing-capacity-in-the-gut-microbiome-of-me-cfs-patients-is-associated-with-fatigue-symptoms-2021-guo-lipkin-et-al.23117/#post-459929 for abstract and link. Preprint: Deficient butyrate-producing capacity in...
  18. Sly Saint

    Limbic Perfusion Is Reduced in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2021, Xia Li et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness characterized by a diverse range of debilitating symptoms including autonomic, immunologic, and cognitive dysfunction. Although neurological and cognitive aberrations have been consistently reported, relatively...
  19. Andy

    Clinical Heterogeneity in ME/CFS. A Way to Understand Long-COVID19 Fatigue, 2021,Murga et al

    The aim of present paper is to identify clinical phenotypes in a cohort of patients affected of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Ninety-one patients and 22 healthy controls were studied with the following questionnaires, in addition to medical history: visual analogical...
  20. Andy

    Multi-‘omics of gut microbiome-host interactions in short- and long-term myalgic encephalomyelitis/chronic fatigue syndrome patients, 2023, Xiong

    Study now printed, see https://www.s4me.info/threads/preprint-multi-omics-of-host-microbiome-interactions-in-short-and-long-term-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-2021-xiong.23022/#post-459931 for abstract and link Preprint: Multi-omics of host-microbiome interactions in...
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