Abstract
Background
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex illness which disproportionally affects females. This illness is associated with immune and metabolic perturbations that may be influenced by lipid metabolism. We therefore hypothesized that plasma...
David had read some of Leonard's publications including the study regarding problems with CBT when used with patients with ME/CFS. David also appreciated the research Leonard had done over the years examining case definitions. David believed that the work Leonard has done should be a foundation...
2018
Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018
Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals
NI - Regional review of Neurology services
2019
Hope 4 ME & Fibro Northern Ireland event (Wed 4th September 2019)...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371754/
Abstract
In order to examine the prevalence of patients with symptoms fulfilling the criteria for the chronic fatigue syndrome an extensive survey was carried out of general practitioners on 10 local government lists in two health boards...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371214/
Abstract
A case definition for post-viral fatigue syndrome is proposed within which various subgroups of patients exist. Any one treatment may not apply to all the subgroups. In particular, patients' experiences do not show that avoidance of...
Published today in the Mayo Clinic Proceedings:
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management
Lucinda Bateman, MD, Alison C. Bested, MD, Hector F. Bonilla, MD, Bela V. Chheda, MD, Lily Chu, MD, MSHS, Jennifer M. Curtin, MD, Tania T. Dempsey, MD...
Split from
International: IACFS/ME - International Association for CFS/ME (next event: Virtual Conference August 19-21 2021)
Is this a new thing? Didn’t we hear about this before from some Norwegians making spinach smoothies?
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating disease usually presenting after infection. Emerging evidence supports that energy metabolism is affected in ME/CFS, but a unifying metabolic phenotype has not been firmly established.
We performed global...
Not new but thought it might be of interest.
(the Peer Review report is also available , one of the reviewers is Chew-Graham)
Abstract
Background
Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) can cause profound and prolonged illness and disability, and poses significant problems...
BACKGROUND
Fibromyalgia (FM) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are devastating metabolic neuroimmune diseases that are difficult to diagnose because of the presence of numerous symptoms and a lack of specific biomarkers. Despite patient heterogeneity linked to...
Full title: Neutralization of Autoantibodies Targeting G-Protein Coupled Receptors Improves Capillary Impairment and Fatigue Symptoms after COVID-19 Infection
Abstract
Clinical features of Corona Virus Disease 2019 (COVID-19) are caused by the severe acute respiratory syndrome coronavirus-2...
Autoantibodies to Vasoregulative G-Protein-Coupled Receptors Correlate with Symptom Severity, Autonomic Dysfunction and Disability in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Scheibenbogen et al
Abstract
Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is an...
https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/
This has been posted already, but I thought deserves its own thread.
All points I think still essentially apply during the new guideline is paused.
The severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) caused the pandemic Coronavirus Disease 2019 (COVID-19) and now many face the burden of prolonged symptoms—long-lasting COVID-19 symptoms or “long-COVID”. Long-COVID is thought to be linked to immune dysregulation due to harmful...
Full title: Fine mapping of the major histocompatibility complex (MHC) in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) suggests involvement of both HLA class I and class II loci
Abstract
The etiology of myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is unknown, but...
Jennie Jacques on living with ME: ‘I am a shadow of my former self physically’ , The Times, August 18 2021
by Sean O' Neill
As her 30th birthday approached, Jennie Jacques was on the up and on the verge of a breakthrough to big-screen stardom. The British actress had played the leading part of...
Abstract
Although most patients recover from acute COVID-19, some experience postacute sequelae of severe acute respiratory syndrome coronavirus 2 infection (PASC). One subgroup of PASC is a syndrome called “long COVID-19,” reminiscent of myalgic encephalomyelitis/chronic fatigue syndrome...
Health, Wellbeing, and Prognosis of Australian Adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Case-Controlled Follow-Up Study
Abstract
Background: The purpose of this study was to follow-up an Australian cohort of adolescents newly-diagnosed with ME/CFS at a...
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