me/cfs

  1. Andy

    good health to illness w/post-infectious fatigue syndrome: a qualitative study of adults experiences of the illness trajectory, 2017, Stormorken et al

    Abstract Background Municipal drinking water contaminated with the parasite Giardia lamblia in Bergen, Norway, in 2004 caused an outbreak of gastrointestinal infection in 2500 people, according to the Norwegian Prescription Database. In the aftermath a minor group subsequently developed...
  2. Andy

    CFS Model: ..idiopathic intracranial hypertension & spontaneous intracranial hypotension; caused by cranial venous outflow obstruction, 2021, Higgins

    Full title: A paradigm for chronic fatigue syndrome: caught between idiopathic intracranial hypertension and spontaneous intracranial hypotension; caused by cranial venous outflow obstruction ABSTRACT Background Clinical similarities between chronic fatigue syndrome and idiopathic intracranial...
  3. Kalliope

    MElivet - Blog posts by Nina E. Steinkopf

    As Nina E. Steinkopf provides many of her excellent blog posts in English, I thought it could be useful to from now on have a separate thread for them, instead of them mostly being shared in the thread for news from Scandinavia. This blog post of today is related to the planned Lightning...
  4. Kalliope

    Healthcare - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: When Suffering Is Multiplied - Komaroff

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: When Suffering Is Multiplied - Anthony L. Komaroff Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness defined predominantly by symptoms. Routine laboratory test results often are normal, raising the question of...
  5. Andy

    Trial By Error: CBT Model of Medically Unexplained Symptoms, Explained; CBT Trial for Q-Fever Fatigue

    "As I have recently written, four major clinical trials of CBT for so-called MUS have documented the opposite of what the investigators hoped to prove. In fact, the evidence from this research suggests that CBT is not an effective treatment for these conditions. That hasn’t stopped these...
  6. Andy

    UK: ME/CFS and Long Covid Group for Black Communities

    "This is an online group for Black and Black-mixed adults living with ME/CFS or Long-Covid in the UK. It is a safe space to share experiences and create community with the aim of improving our wellbeing. The group will be led by our Darren, who will use his skills as a Community Builder to...
  7. Andy

    ..investigation of nutritional intake & supplement use in Australians with [ME/CFS] .. implications on health-related QOL, 2021, Weigel et al

    Full title: A preliminary investigation of nutritional intake and supplement use in Australians with myalgic encephalomyelitis/chronic fatigue syndrome and the implications on health-related quality of life Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex...
  8. ahimsa

    July 2021 edition of Medical Board of California News includes article about ME/CFS and Long COVID by MEAction

    The July 2021 edition of Medical Board of California News issue includes a 2-page article called, "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID: What Every Physician Needs to Know" by MEAction. https://www.mbc.ca.gov/Download/Newsletters/Newsletter2021-July.pdf The full...
  9. Sly Saint

    The effect of IL-2 stimulation and treatment of TRPM3 on channel co-localisation with PIP2 and NK cell function in ME/CFS patients 2021, Staines et al

    The effect of IL-2 stimulation and treatment of TRPM3 on channel co-localisation with PIP2 and NK cell function in myalgic encephalomyelitis/chronic fatigue syndrome patients Natalie Eaton-Fitch, Hélène Cabanas, Stanley du Preez, Donald Staines & Sonya Marshall-Gradisnik Abstract...
  10. Sly Saint

    Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),2021,Fluge,Mella,Tronstad

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease with unknown etiology, no validated specific and sensitive biomarker, and no standard approved effective treatment. ME/CFS has a profound impact on the quality of life of both patients and caregivers and entails high costs...
  11. Sly Saint

    Blog: Mental Health at Home: What Is… ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue)

    "In this series, I dig a little deeper into the meaning of psychology-related terms… but not this week. Instead, we’ll take a look at ME/CFS, and why it’s absolutely not all in someone’s head." https://mentalhealthathome.org/2021/07/09/what-is-me-cfs/
  12. Andy

    Endothelial Senescence and Chronic Fatigue Syndrome, a COVID-19 Based Hypothesis, 2021, Sfera et al

    Myalgic encephalomyelitis/chronic fatigue syndrome is a serious illness of unknown etiology, characterized by debilitating exhaustion, memory impairment, pain and sleep abnormalities. Viral infections are believed to initiate the pathogenesis of this syndrome although the definite proof remains...
  13. Andy

    Hypothalamic-Pituitary autoimmunity and related impairment of hormone secretions in chronic fatigue syndrome, 2021, De Bellis, Montoya et al

    Abstract Context Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a severe chronic illness which reduces the quality of life. A potential role of neuroendocrine autoimmune dysfunction has been hypothesized. Objective To investigate the occurrence of anti-pituitary (APA) and...
  14. Andy

    Impacts of online support groups on quality of life, and perceived anxiety and depression in those with ME/CFS: a survey, 2021, Morehouse et al

    ABSTRACT Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition that can negatively affect physical and mental health [1,2]. People with ME/CFS report lower perceived levels of social support, which further exacerbate challenges with mental health and...
  15. Joh

    New Documentary "Living with Chronic Fatigue Syndrome"

    The German/French TV channel ARTE premiered a documentary yesterday: "Living with Chronic Fatigue Syndrome". German and French can be chosen as languages, subtitles are available in English, Italian and Spanish. It can be viewed online here and will also come to YouTube...
  16. Andy

    Incidence of chronic Q fever and chronic fatigue syndrome: a six year follow-up of a large Q fever outbreak, 2021, Ankert et al

    Abstract Objectives Acute Q fever is a generally self-limiting infection caused by the intracellular gram-negative bacterium Coxiella (C.) burnetii. For yet unknown reasons, a subset of patients develops chronic a infection. Furthermore, a Chronic Fatigue Syndrome (CFS) as post-acute Q fever...
  17. Andy

    Causal attributions and perceived stigma for myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Froehlich, Jason et al

    Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic disease with the hallmark symptom of post-exertional malaise. Evidence for physiological causes is converging, however, currently no diagnostic test or biomarker is available. People with ME/CFS experience...
  18. Sly Saint

    Shadow Burden of Undiagnosed (ME/CFS) on Society: Retrospective and Prospective—In Light of COVID-19, 2021, Araja et al

    Shadow Burden of Undiagnosed Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) on Society: Retrospective and Prospective—In Light of COVID-19 Abstract Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a poorly understood, complex, multisystem disorder, with...
  19. Andy

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson et al

    Authors: Emma C. Anderson, Maria Loades, Jennifer Starbuck, Phil Parker, Fiona Finch, Rebecca Barnes, Lucy Beasant & Esther Crawley ABSTRACT Rationale UK specialist medical care (SMC) for paediatric Chronic Fatigue Syndrome (CFS/ME) includes behavioural approaches (Graded Exercise Therapy...
  20. Dolphin

    I AM MADELINE podcast series

    Listen on https://anchor.fm/i-am-madeline
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