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Austria: WE&ME Foundation (formerly TEMPI-Stiftung, TEMPI-Foundation)

Discussion in 'News from organisations' started by InitialConditions, May 14, 2023.

  1. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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    "Our foundation supports nationally and internationally recognized research projects, non-profit organizations to support those affected and charity projects to combat diseases such as myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and related diseases.

    "We can build on a network of long-term collaborations and personal contacts with leading physicians and researchers in Austria and abroad.

    "The focus is on the sustainable creation of synergies, mutual recognition and support and promotion of progress with regard to research into these diseases. The foundation is therefore open to further cooperation and projects, insofar as this promotes the purpose of the foundation."


    Website: https://www.tempi-stiftung.at/
    Twitter: https://twitter.com/Tempi_Stiftung
     
  2. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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  3. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Merged

    Christoph Ströck, board member at TEMPI-Foundation, posted these tweets today:

    1 - "I believe NOW is the time to lobby and advocate for higher research spending for #MECFS at Congress and NIH. To this end, I want to invest 100k USD - for anyone who comes up with a good idea on how to make the most of it, please reach out to Michael Ströck (@mstroeck on twitter) at TEMPI-Stiftung."

    2 - "If we don't, as a community, come together, and surf the current small wave of more awareness and media coverage, we will go nowhere. #MECFS charities, big and small, need to unite and make this a common, maybe the prime goal of their advocacy work"

    When someone asked about sending a direct message via twitter he said, "Please send an email to office@tempi-stiftung.at addressing Michael."

    Screenshots:
     
    Last edited by a moderator: May 14, 2023
  4. Kitty

    Kitty Senior Member (Voting Rights)

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  5. Hutan

    Hutan Moderator Staff Member

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    We've changed the thread title to reflect the new name.
     
    RedFox likes this.
  6. Andy

    Andy Committee Member

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    ME/CFS Biobank Austria – Establishment of the First Austrian Biobank for ME/CFS Patient Samples

    "The first Austrian ME/CFS Biobank has been under construction at the Medical University of Vienna since September 1, 2023, with support from an initial grant provided by the WE&ME Foundation. The primary goal of a biobank is to collect samples and patient data for scientific research in a standardized manner, following the same established protocols. In this particular case, the collection of samples is being coordinated with ME/CFS biobanks in the United Kingdom, Germany, and the Netherlands. The storage of samples and data will take place in dedicated facilities at the Medical University of Vienna."

    https://www.weandmecfs.org/research...t-austrian-biobank-for-me-cfs-patient-samples
     
    cfsandmore, ahimsa, Hutan and 3 others like this.

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