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  1. Viola
    Thread

    USA: News from Simmaron Research foundation

    Vote to get money for Simmaron Research foundation (free and easy) Hi everyone, this came up on my Facebook. I don't know how long it is going to...
    Thread by: Viola, Nov 22, 2017, 33 replies, in forum: News from organisations
  2. Andy
    Thread

    News from the USA, United States of America

    A thread for news from the US that isn't covered by other threads such as (in no particular order) USA: News from the Workwell Foundation. USA:...
    Thread by: Andy, Jun 1, 2021, 47 replies, in forum: Regional news
  3. Sly Saint
    Thread

    USA: NIH awards will fund Post-Treatment Lyme Disease Syndrome research

    The National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health, has awarded five projects for...
    Thread by: Sly Saint, Jul 21, 2023, 0 replies, in forum: Other health news and research
  4. InitialConditions
    Thread

    Austria: WE&ME Foundation (formerly TEMPI-Stiftung, TEMPI-Foundation)

    "Our foundation supports nationally and internationally recognized research projects, non-profit organizations to support those affected and...
    Thread by: InitialConditions, May 14, 2023, 4 replies, in forum: News from organisations
  5. Kalliope
    Thread

    Deep Phenotyping of Neurologic Postacute Sequelae of SARS-CoV-2 Infection, Mina, Nath et al, 2023

    Neurology, Neuroimmunology & Neuroinflammation Deep Phenotyping of Neurologic Postacute Sequelae of SARS-CoV-2 Infection Abstract Background and...
    Thread by: Kalliope, May 5, 2023, 20 replies, in forum: Long Covid research
  6. SNT Gatchaman
    Thread

    [News Release] VA, NIH launch study of Gulf War Illness, 2023

    Not sure if this was already posted. https://www.nih.gov/news-events/news-releases/va-nih-launch-study-gulf-war-illness The Department of...
    Thread by: SNT Gatchaman, Apr 28, 2023, 3 replies, in forum: 'Conditions related to ME/CFS' news and research
  7. Sly Saint
    Thread

    USA Stat News: The NIH has poured $1 billion into long Covid research — with little to show for it

    WASHINGTON — The federal government has burned through more than $1 billion to study long Covid, an effort to help the millions of Americans who...
    Thread by: Sly Saint, Apr 20, 2023, 14 replies, in forum: Long Covid news
  8. Arnie Pye
    Thread

    Functional Neurological Disorder - an article from the NIH

    NIH = National Institute of Neurological Disorders and Stroke and the website is described as "An official website of the United States...
    Thread by: Arnie Pye, Apr 13, 2023, 6 replies, in forum: Other psychosomatic news and research
  9. ahimsa
    Thread

    WebMD: Researchers Hunt Biomarkers – Potential Keys to Long COVID

    WebMD: Researchers Hunt Biomarkers – Potential Keys to Long COVID...
    Thread by: ahimsa, Jan 7, 2023, 0 replies, in forum: Long Covid news
  10. Dakota15
    Thread

    United States USA: ME/CFS Outreach to ARPA-H

    Hey all, Just sharing an outreach opportunity to the newly formed Advanced Research Projects Agency for Health (ARPA-H - https://arpa-h.gov/)...
    Thread by: Dakota15, Jan 3, 2023, 1 replies, in forum: General ME/CFS news
  11. Jaybee00
    Thread

    NIH Recover Initiative—petition against bogus treatments

    There is a petition—looks like all nationalities can sign. Treatments include CBT, exercise. [MEDIA]
    Thread by: Jaybee00, Dec 27, 2022, 8 replies, in forum: Petitions
  12. Braganca
    Thread

    Inflammation and autoreactivity define a discrete subset of patients with post-acute sequelae of COVID-19, or long-COVID, 2022, Woodruff et Al

    https://www.medrxiv.org/content/10.1101/2021.09.21.21263845v2 Abstract While significant attention has been paid to the immunologic determinants...
    Thread by: Braganca, Sep 30, 2022, 0 replies, in forum: ME/CFS research news
  13. Dolphin
    Thread

    USA: National Institutes of Health (NIH) intramural Long Covid study with Avi Nath

    Apologies if there is already a thread on this . [MEDIA]
    Thread by: Dolphin, Aug 27, 2022, 4 replies, in forum: Long Covid news
  14. Andy
    Thread

    Preprint: Neuropathic symptoms with SARS-CoV-2 vaccination, 2022, Safavi, Walitt, Oaklander, Nath et al

    Abstract Background and Objectives Various peripheral neuropathies, particularly those with sensory and autonomic dysfunction may occur during or...
    Thread by: Andy, May 19, 2022, 3 replies, in forum: Long Covid research
  15. rvallee
    Thread

    USA: The White House: Memorandum on Addressing the Long-Term Effects of COVID-⁠19

    Copied post from here [MEDIA] More info: White House launches national plan to address long COVID...
    Thread by: rvallee, Apr 5, 2022, 13 replies, in forum: Long Covid news
  16. rvallee
    Thread

    USA: The RECOVER Initiative - Long Covid research

    New thread created by collecting posts from a number of other threads If someone's in a listening mood, there's no transcript. 30 minutes with...
    Thread by: rvallee, Feb 13, 2022, 117 replies, in forum: Long Covid news
  17. InitialConditions
    Thread

    The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

    [MEDIA] Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.
    Thread by: InitialConditions, Feb 3, 2022, 4 replies, in forum: General Advocacy Discussions
  18. Jaybee00
    Thread

    Webinar: Massachusetts ME/CFS & FM research update - 23 October 2021

    Copied post: USA: Massachusetts ME/CFS & FM Association news Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long...
    Thread by: Jaybee00, Oct 22, 2021, 67 replies, in forum: ME/CFS research news
  19. Sly Saint
    Thread

    Open NIH: Proof of concept trial on the effect of Ketamine on Fatigue Study

    The National Institute of Nursing Research (NINR), at the National Institutes of Health (NIH) is seeking people who are cancer survivors or have a...
    Thread by: Sly Saint, Jul 17, 2021, 9 replies, in forum: Recruitment into current ME/CFS research studies
  20. ahimsa
    Thread

    "Principles of Autonomic Medicine" by David Goldstein (version 3) - Free e-Book available at thedysautonomiaproject.org

    I was browsing https://thedysautonomiaproject.org/ and I found this free e-book, "Principles of Autonomic Medicine" by David S. Goldstein :...
    Thread by: ahimsa, Jul 1, 2021, 0 replies, in forum: Orthostatic intolerance treatments
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