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  1. ahimsa
    Thread

    USA: From Solve ME - Educate your Members of Congress about a "HOME" for IACCIs at NIH

    Solve ME has created an automated tool (meant for folks in the USA) that will contact your Member of Congress (email/phone/twitter) and ask them...
    Thread by: ahimsa, Apr 9, 2024, 4 replies, in forum: Advocacy Projects and Campaigns
  2. Arvo
    Thread

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Copied from Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al this, this is the evidence...
    Thread by: Arvo, Mar 6, 2024, 186 replies, in forum: ME/CFS research news
  3. pooriepoor91
    Thread

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    First news: https://www.statnews.com/2024/02/21/nih-study-myalgic-encephalomyelitis-chronic-fatigue-syndrome-news/ Moderator note: Posts on some...
    Thread by: pooriepoor91, Feb 21, 2024, 750 replies, in forum: ME/CFS research
  4. Dolphin
    Thread

    2024: USA NIH NINDS ME/CFS Research Roadmap - input on research priorities sought by 11 March 2024

    Copied post News from NIH: NINDS is seeking feedback on ME/CFS Research Roadmap Priorities NINDS is seeking your input on the ME/CFS Research...
    Thread by: Dolphin, Feb 1, 2024, 57 replies, in forum: Advocacy Projects and Campaigns
  5. ahimsa
    Thread

    USA - NIH "Home Test to Treat program extends nationwide" (free program)

    December 6 press release from the NIH: Home Test to Treat program extends nationwide Program now offers testing, telehealth and treatment for...
    Thread by: ahimsa, Dec 8, 2023, 0 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  6. Viola
    Thread

    USA: News from Simmaron Research foundation

    Vote to get money for Simmaron Research foundation (free and easy) Hi everyone, this came up on my Facebook. I don't know how long it is going to...
    Thread by: Viola, Nov 22, 2017, 33 replies, in forum: News from organisations
  7. Andy
    Thread

    News from the USA, United States of America

    A thread for news from the US that isn't covered by other threads such as (in no particular order) USA: News from the Workwell Foundation. USA:...
    Thread by: Andy, Jun 1, 2021, 102 replies, in forum: Regional news
  8. Sly Saint
    Thread

    USA: NIH awards will fund Post-Treatment Lyme Disease Syndrome research

    The National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health, has awarded five projects for...
    Thread by: Sly Saint, Jul 21, 2023, 0 replies, in forum: Other health news and research
  9. InitialConditions
    Thread

    Austria: WE&ME Foundation (formerly TEMPI-Stiftung, TEMPI-Foundation)

    "Our foundation supports nationally and internationally recognized research projects, non-profit organizations to support those affected and...
    Thread by: InitialConditions, May 14, 2023, 7 replies, in forum: News from organisations
  10. Kalliope
    Thread

    Deep Phenotyping of Neurologic Postacute Sequelae of SARS-CoV-2 Infection, Mina, Nath et al, 2023

    Neurology, Neuroimmunology & Neuroinflammation Deep Phenotyping of Neurologic Postacute Sequelae of SARS-CoV-2 Infection Abstract Background and...
    Thread by: Kalliope, May 5, 2023, 20 replies, in forum: Long Covid research
  11. SNT Gatchaman
    Thread

    [News Release] VA, NIH launch study of Gulf War Illness, 2023

    Not sure if this was already posted. https://www.nih.gov/news-events/news-releases/va-nih-launch-study-gulf-war-illness The Department of...
    Thread by: SNT Gatchaman, Apr 28, 2023, 8 replies, in forum: 'Conditions related to ME/CFS' news and research
  12. Sly Saint
    Thread

    USA Stat News: The NIH has poured $1 billion into long Covid research — with little to show for it

    WASHINGTON — The federal government has burned through more than $1 billion to study long Covid, an effort to help the millions of Americans who...
    Thread by: Sly Saint, Apr 20, 2023, 14 replies, in forum: Long Covid news
  13. Arnie Pye
    Thread

    Functional Neurological Disorder - an article from the NIH

    NIH = National Institute of Neurological Disorders and Stroke and the website is described as "An official website of the United States...
    Thread by: Arnie Pye, Apr 13, 2023, 6 replies, in forum: Other psychosomatic news and research
  14. ahimsa
    Thread

    WebMD: Researchers Hunt Biomarkers – Potential Keys to Long COVID

    WebMD: Researchers Hunt Biomarkers – Potential Keys to Long COVID...
    Thread by: ahimsa, Jan 7, 2023, 0 replies, in forum: Long Covid news
  15. Dakota15
    Thread

    United States USA: ME/CFS Outreach to ARPA-H

    Hey all, Just sharing an outreach opportunity to the newly formed Advanced Research Projects Agency for Health (ARPA-H - https://arpa-h.gov/)...
    Thread by: Dakota15, Jan 3, 2023, 1 replies, in forum: General ME/CFS news
  16. Jaybee00
    Thread

    NIH Recover Initiative—petition against bogus treatments

    There is a petition—looks like all nationalities can sign. Treatments include CBT, exercise. [MEDIA]
    Thread by: Jaybee00, Dec 27, 2022, 8 replies, in forum: Petitions
  17. Braganca
    Thread

    Inflammation and autoreactivity define a discrete subset of patients with post-acute sequelae of COVID-19, or long-COVID, 2022, Woodruff et Al

    https://www.medrxiv.org/content/10.1101/2021.09.21.21263845v2 Abstract While significant attention has been paid to the immunologic determinants...
    Thread by: Braganca, Sep 30, 2022, 0 replies, in forum: ME/CFS research news
  18. Dolphin
    Thread

    USA: National Institutes of Health (NIH) intramural Long Covid study with Avi Nath

    Apologies if there is already a thread on this . [MEDIA]
    Thread by: Dolphin, Aug 27, 2022, 4 replies, in forum: Long Covid news
  19. Andy
    Thread

    Preprint: Neuropathic symptoms with SARS-CoV-2 vaccination, 2022, Safavi, Walitt, Oaklander, Nath et al

    Abstract Background and Objectives Various peripheral neuropathies, particularly those with sensory and autonomic dysfunction may occur during or...
    Thread by: Andy, May 19, 2022, 3 replies, in forum: Long Covid research
  20. rvallee
    Thread

    USA: The White House: Memorandum on Addressing the Long-Term Effects of COVID-⁠19

    Copied post from here [MEDIA] More info: White House launches national plan to address long COVID...
    Thread by: rvallee, Apr 5, 2022, 13 replies, in forum: Long Covid news
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