Social Justice interview with David Tuller on his ongoing Trial by Error series. Hour long.
2pm Sun 15 Apr 2018
http://radioadelaide.org.au/program/a-peace-of-the-action/
Note: this is from 2016. It's new to me but may be familiar to others.
Paywalled at http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00545-3/abstract
Article in the Guardian, again from 2016...
One of my personal advocacy projects for the past 16 months has been to try to have Healthwise remove the GET and CBT modules from their ME/CFS content.
Healthwise provides medical content for many major healthcare corporations in the United States, including Kaiser Permanente with its 13...
A short article in Psychology Magazine, the Journal of the Norwegian Psychology Association, on the 'psychology of PEM'. It's the argument that psychosocial factors are the reason patients remain sick.
Via google translate,
Norwegian site here, English translation here.
https://www.npr.org/sections/goatsandsoda/2018/04/05/597505825/report-ineffective-treatment-often-prescribed-for-lower-back-pain
Wherein The Lancet, Cochrane, O.H.S.U., and University of Washington tout C.B.T. and lament how rarely it’s used.
K, Medicaid and Medicare aren’t covering...
Summarised by Keith Laws, Prof of Cognitive Neuropsychology, as showing that,
Abstract:
http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(18)30096-8/fulltext
The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always interesting to look at how they present themselves.
Someone sent me this old report recently, and while it's not that interesting or relevant to us, I...
adam finn
award
blog
bristol university
cbt
crawley
david marks
fiona fox
get
harassment
journalists
me/cfs
news thread
pariante
science media centre
smc
smile
united kingdom
Citation
Picariello F, Moss-Morris R, Macdougall IC, et al
Cognitive-behavioural therapy (CBT) for renal fatigue (BReF): a feasibility randomised-controlled trial of CBT for the management of fatigue in haemodialysis (HD) patients
BMJ Open 2018;8:e020842. doi: 10.1136/bmjopen-2017-020842...
raised on another thread by @MEMarge.
The CQC only deals with services in England but from briefly looking at their website the only ME/CFS service they seem to have inspected is Leeds which currently has
an amber 'Requires Improvement' warning having been inspected in 2016.
The various checks...
NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until 2020. Meanwhile it has left the current guidelines in place, despite the recommendations for treatments that are known to be harmful...
This looks annoying and worthless: http://bmjopen.bmj.com/content/7/5/e014133
Wow, they've really taken the time to understand this straw-man of why patients are concerned about the promotion of CBT/GET:
I'm mainly posting this because it says:
I'm not sure that this organisation would...
Not sure if this has been posted.
(MD is a member of S4ME)
Clinical Guidance for ME: “Evidence-Based” Guidance Gone Awry Mary Dimmock
January 2018
"
This article is intended as a high-level summary of key issues in the conduct of reviews of the
ME evidence-base that have resulted in flawed...
Hello all,
I'm pleased to report that our major critique and reanalysis of the PACE trial has been accepted for publication in BMC Psychology.
Title: Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and...
Psychother Psychosom. 2007;76(3):171-6.
Is a full recovery possible after cognitive behavioural therapy for chronic fatigue syndrome?
Knoop H1, Bleijenberg G, Gielissen MF, van der Meer JW, White PD.
Author information
Abstract
BACKGROUND:
Cognitive behavioural therapy (CBT) for chronic fatigue...
This thread was merged with an earlier thread started before the paper was posted.
I've got no more info that this right now, but am feeling a bit brain-dead. They said that they paper was published yesterday. I've been having trouble with the British Journal of Psychiatry's website, but...
An in-depth analysis of five hallmark studies of
the Dutch Expertise Center for Chronic Fatigue (NKCV) confirms that
cognitive behavorial therapy combined with a graded activity protocol (CBT+)
has no objective positive effect on the (health) status of
patients diganosed with chronic fatigue...
Taken from the Grace Charity for ME (updated 2017)
"This document was originally written in response to the Chief Medical Officer’s report in 2002 which triggered the current NHS Chronic Fatigue Syndrome/Myalgic Encephalomyelitis clinics, set up across the country. These clinics consist mainly...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.