This article has just been posted to the ABC (Australia) website, ahead of a story on the current affairs show, 7.30, on the same network tonight. Based on the article, we are on tenter hooks about the story tonight...
I decided to make a new thread from this post in the UK House of Lords/ House of Commons Questions thread.
The Countess Of Mar asked the following question:
Lord O'Shaughnessy answered...
Wasn’t sure where to post this as it’s not an ME/CFS study, so please move if necessary. (Moderator note: thread has been moved.)
I’ve only read the abstract and skimmed the rest but this study looks so bad – an open label uncontrolled trial relying on self-reported subjective outcome measures...
From the google translation of the paper, which is in the Journal of Clinical and Pathological Research, http://lcbl.amegroups.com/article/view/25451
I presume head scraping is this procedure applied to the head:
https://en.wikipedia.org/wiki/Gua_sha?wprov=sfla1
While five-tone therapy is...
This thread has been started as a place where reports from PACE trial participants can be recorded.
Edit - the scope of the thread has since been widened to all CBT and GET trials.
Understandably GET is being highlighted as being generally detrimental as a treatment for ME/CFS.
But the message on the version of CBT as used in the PACE trial being almost as bad and harmful does not appear to be getting through.
@Emsho s testimony at the Scottish Parliament about the CBT...
Cognitive behavioural therapy with optional graded exercise therapy in patients with severe fatigue with myotonic dystrophy type 1: a multicentre, single-blind, randomised trial
Kees Okkersen, et al.
Lancet Neurology - 19th June 2018 - Online First
[Sorry - I'm having terrible trouble with...
Text from their Facebook post
Treatment and management page - https://www.actionforme.org.uk/living-with-me/treatment-and-management/
GET and CBT page - https://www.actionforme.org.uk/resources/questions-and-answers/what-are-get-and-cbt/
I'm sure many of us here will find the wording...
Annual Conference & Workshops 2018
Strathclyde University, Glasgow 17th - 20th July 2018
http://babcpconference.com/
A process of change: integrating physical and mental health into IAPT
Chair:
Trudie Chalder, King’s College London
Speakers: Jo Hudson, King’s College London
Georgina Miles...
Looks like David's starting to dig into the IAPT stuff, which seems as grim as anyone could fear:
http://www.virology.ws/2018/06/13/trial-by-error-a-curriculum-for-treating-cfs-with-cbt/
From 2015 but to be presented in a talk in July at the Society for Academic Primary Care conference:
https://sapc.ac.uk/conference/2018
https://sapc.ac.uk/conference/2018/abstract/actib-trial-assessing-cognitive-behavioural-therapy-irritable-bowel
one of the co-authors is Susan Windgassen...
http://psycnet.apa.org/record/2018-23402-001
Is fatigue a disease-specific or generic symptom in chronic medical conditions?
Journal Article
Database: PsycARTICLES
Menting, Juliane Tack, Cees J. Bleijenberg, Gijs Donders, Rogier Droogleever Fortuyn, Hal A. Fransen, Jaap...
23-second clip of a segment of Michael Sharpe's appearance on Victoria Derbyshire
Talking therapies and exercise for #ME are "not magic cures but useful treatments": Professor Sharpe on his report
Does anyone have the full broadcast?
Free full text:
https://link.springer.com/article/10.1007/s11764-018-0690-z
Some of these researchers are active in the CFS field
Journal of Cancer Survivorship
pp 1–9| Cite as
Are the effects of cognitive behavior therapy for severe fatigue in cancer survivors sustained up to 14 years...
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