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A couple-based psychological intervention for chronic fatigue syndrome [In progress, April 2018]

Discussion in 'PsychoSocial ME/CFS Research' started by Andy, Apr 20, 2018.

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  1. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Link to trial details here
     
  2. Woolie

    Woolie Senior Member

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    :(:( This just sounds so ominous.

    The message:

    "You are so dysfunctional, you can't be trusted to do what's best for you (and of course, we do know what's best for you). We will whisper in the ears of your nearest and dearest, so they can make sure you do exactly as you're told".
     
  3. strategist

    strategist Senior Member (Voting Rights)

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    I think that partners will be declared dysfunctional and illness belief reinforcing once this approach fails to work. The reason patients don't engage with CBT is because it's the wrong treatment and partners will likely start viewing it that way too. Unfortunately it could also harm the relationship. :(

    I can already picture the researchers announcing how they've made the astonishing discovery that partners are part of the illness perpetuation process.
     
    Last edited: Apr 20, 2018
  4. Solstice

    Solstice Senior Member (Voting Rights)

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    Oeh, couples therapy as to double the chance of it sticking. Now to find a partner. Any takers?
     
  5. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Same. :emoji_shrug:
     
  6. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    I'm tempted to enrol just so my partner can call them all quacks while I make duck noises. Actually, knowing him, he'd be the one who'd prefer to make the silly noises while I rant and rage.
     
    fivetowns, Hutan, Chezboo and 18 others like this.
  7. Trish

    Trish Moderator Staff Member

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    Ooh, I want to sign up to this one, you get to travel back in time. Amazing:

    Now all I need is to find a partner to join me in my time machine... any volunteers?

    Edited to add the time machine.
     
    Last edited: Apr 21, 2018
  8. andypants

    andypants Senior Member (Voting Rights)

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    :rofl::rofl::rofl: :emoji_duck:
     
  9. EzzieD

    EzzieD Senior Member (Voting Rights)

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    This idea sounds incredibly lame and not-thought-out (as is usual with this sort of thing). I haven't heard of Dr Marion Cuddy, their primary contact. Does she have any experience/previous track record with ME/CFS?

    Yes, this! Almost tempting (but not enough), LOL.
     
  10. andypants

    andypants Senior Member (Voting Rights)

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  11. EzzieD

    EzzieD Senior Member (Voting Rights)

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    Or, "why a duck?" :D

     
    Invisible Woman, zzz, Melanie and 2 others like this.
  12. Andy

    Andy Committee Member (& Outreach when energy allows)

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    I'm going to assume that she's a different one to "Marion Cuddy Knitwear"

    Looking at the research tab here, https://www.researchgate.net/profile/Marion_Cuddy, up to 1997 she was involved in biomedical research of various types, between then and 2001, she switches to psych research, but short answer, no, she has no track record of ME/CFS research.
     
    Hutan, Inara, Invisible Woman and 6 others like this.
  13. Amw66

    Amw66 Senior Member (Voting Rights)

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    Any relation to Amy?
     
    Woolie and Melanie like this.
  14. Sean

    Sean Senior Member (Voting Rights)

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    There are, as Einstein suggested, two things that seem infinite. The universe, and human stupidity.

    He was not sure about the former.
     
  15. John Mac

    John Mac Senior Member (Voting Rights)

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    Cardigans?
     
  16. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Can't we add another to that list? The psychs belief in the power of CBT when applied to an ME/CFS patient?

    I decided not to go there. :)
     
  17. EzzieD

    EzzieD Senior Member (Voting Rights)

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    TBH, the knitwear lady would probably do just as well (especially if she wears one of her own blue cardigans while carrying out the therapy). In your link, it shows that Dr Cuddy is at Kings College London. It appears that despite PACE's failure at providing any objective evidence of CBT as curative for CFS, that lot are determined to carry on regardless...
     
    Hutan, ukxmrv, Inara and 10 others like this.
  18. dangermouse

    dangermouse Senior Member (Voting Rights)

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    Oh dear, when will this nonsense be at an end...so disappointing.
     
    Inara, Invisible Woman, Rosie and 4 others like this.
  19. Allele

    Allele Senior Member (Voting Rights)

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    The ignorance and bigotry of this approach is so blatant if you reread it while substituting the word "cancer" for "CFS".
     
    Hutan, Inara, Invisible Woman and 9 others like this.
  20. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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