USA - Mayo clinic

dreampop said:
So, correct me if I'm wrong but sensitization is common to a lot of receptors and occurs in a lot of diseases. It has definitely popped up with ME/CFS. But do they provide any source that CBT/GET are effective at desenstizing anything? The treatment, I'm sure is less greed, but more absence of knowing what else to do.

Anyway, as a side top on the Mayo Clinic - they provide google with the sidebar info on diseases (at least, where I'm from). Whenever anybody googles "chronic fatigue syndrome" they see this picture . Which is an absurd first-impression image of what CFS is - a sleepy person at a party?

q5typq7z5f111.jpg

edit: Having trouble posting the picture (get an error message that it's too many characters).
Click to expand...
Mayo is one of the sources that Google uses for the information, but it would be Google that provides the image.
 
I like Joseph Stashko's posts - what a laugh! And he's so right: That picture is hilarious! I always laugh when I see that guy with the burger.

But in earnest, that's the problem! Although, I'm honest, that's what I look like often when I'm outside of the house. My head feels so heavy and it is like it's too exhausting to hold it, so I support it with my hands. Also I feel tired and exhausted (even if that is not the worst symptom) and I doze in public.

Still, that the CFS picture provokes laughing as a first reaction says it all. (To be fair, the fibro picture doesn't look so much better, although I confess I didn't laugh.)
 
Sean said:
I like the way your mind works. :D
Click to expand...
I assume they have a procedure in place already which they are quite attached to. It would be interesting to get a copy of it
A better procedure would be what tests should be run to rule out other diseases and best practices currently in ME/CFS treatment. This would ensure profit to them and get better treatment for patients.
On a tangent I wonder if this already exists and we could improve it if necessary and disseminate it for use by doctors or for patients to bring to their doctors?
If it doesn't exist we could collectively create it.
 
Here’s how Mayo’s website explains the mechanism of graded exercise: “Gradually increasing the intensity of your exercise over time may help reduce your hypersensitivity to exercise, just like allergy shots gradually reduce a person’s hypersensitivity to a particular allergen.” The hypothesis that patients are experiencing a form of hypersensitivity to exercise akin to an allergy is just that—a hypothesis. It is unclear why Mayo appears to be presenting it here as fact.
Click to expand...

I tried allergy shots for 2 years and they did nothing for me. At no time did anyone suggest that it was because I wasn't trying hard enough or doing it properly. I was also not threatened with financial penalties or being locked up. It just didn't work, but nobody appeared to take it as a personal affront or start calling me names.

dreampop said:
edit: Having trouble posting the picture (get an error message that it's too many characters).
Click to expand...
It's got one character too many:

upload_2018-8-7_18-35-30.png

That guy in the middle. Not only is he mocking the two women for only having a salad, but he's pinched their dressing and is eating it as a starter just to taunt them. The woman on his left isn't exhausted, she's just bored shitless with his puerile antics.
 
Dave's virology blog said:
Beyond that, the selection of studies overall in this packet is seriously problematic. The biggest surprise is the presence of the Lightning Process study, which flagrantly violated ethical and methodological principles. I didn’t realize that Mayo would view a woo-woo combination of neuro-linguistic programming and life-coaching to be a valid treatment approach.
Click to expand...

Esther12 said:
Very odd that they're citing the SMILE trial. It would be good to find out why6 they think that supports their approach to CFS.
Click to expand...

I expect it's because it shows that you can throw just about any treatment at people with ME/CFS that encourages them to get over themselves - and they get better. Therefore, ME/CFS is just about dysfunctional beliefs and behaviours. Therefore it can be fixed with CBT and GET. So, yes, the Lightning Process treatment is laughable but the conclusion its apparent success leads people to is far from it.

@dave30th, did you see the thread about a recent study that reviewed all pre-2016 papers on school functioning (mainly school attendance) in children with ME/CFS? The study slammed all of these past studies as unreliable.

Tollitt et al said:
The accuracy and reliability of the information collected in the included studies should be viewed with caution, given the high reliance on retrospective informant estimates and lack of verified self-report data with official data or with schools. It is important to be mindful that the accuracy and validity of self-reported school constructs have come under scrutiny. It is recommended that researchers implement methods for verifying the accuracy of self-report data when collecting school functioning data of this nature in the future.
Click to expand...

Crawley's SMILE trial of course had the same problems.
 
Last edited:
TiredSam said:
That guy in the middle. Not only is he mocking the two women for only having a salad, but he's pinched their dressing and is eating it as a starter just to taunt them. The woman on his left isn't exhausted, she's just bored shitless with his puerile antics.
Click to expand...

upload_2018-8-7_18-35-30-png.3853


He's actually enjoying Mayo. The woman on his left is tired of his enjoying Mayo and associated bullshit. The woman on his right is pretending to enjoy being the token minority that is only there so that the diversity box can be ticked. She knows her appearing is also bullshit by the fact that the man in actually looking at her, yet whoever composed the picture cares so little about her that they have sliced a quarter of her face off. We can tell that she is not deemed as worthy as all the others as the picture could easily have been cropped giving her a whole face and not having so much background on the right edge.
 
I think the smile is put on ...if you look at the guys eyes he looks sad....possibly wants to scream out ...”someone laugh to my great joke about dressings...I’m really a great guy”

personally I think he has a few issues ..not least being his obsession with trying to colour coordinate his t-shirts with restaurant wall paper

Unfortunately both ladies know the joke already since they have heard it so many times ...it’s a habit... like him always ordering the same burger with extra tomato so he can make the joke each time.

Why did the tomato turn red? Yeah yeah it’s old now. Zzzzz
 
Well lets all go to Dr Bing then, 'cos he's got it sussed! "The diagnosis involves several tests to identify the underlying cause". And all this time the rest of the world has still been trying to find the answers.

Edit: In case anyone thinks I've completely lost it ... I do know what Bing is ... really :).
 
You must log in or register to reply here.
Back
Top Bottom