Michael Sharpe skewered by @JohntheJack on Twitter

[large donner]

Me too.

Wow if hes blocking everyone that just leaves him Wessely to talk to, except Wessely has thrown him under the bus cos, "not me guv, I didn't do nuffin, I didn't see nuffin, I weren't there guv".

 

[Adrian]

Ohhh wait no I’ve just been blocked haha!

If someone blocks you then if you log out of twitter you can see their tweets or use incognito mode in the browser.

 

[Lucibee]

If someone blocks you then if you log out of twitter you can see their tweets or use incognito mode in the browser.

Shhhhhh!

 

[Adrian]

Ah - I've seen that before. No. 17 (Lois Addy) is the same person who posted the blog I mentioned (http://copingbadly.blogspot.com/2018/03/reanalysis-of-pace-data.html).

Is this available publicly somewhere, and have the comments been verified as coming from trial participants?

They were collected from various social media sources so there is no way to verify them. I suspect the original purpose was to counter claims from QMUL that if a patient was identified they would be attacked and killed by a mob of angry patients. Since no one we attacked on social media

 

[JohnTheJack]

Yeah, member of the blocked by Michael team. Seems his Twitter charm offensive may be over. Details viewable in another browser or in stealth mode, of course.

 

[Indigophoton]

He's taken his bat and ball home...

 

[Cheshire]

Ohhh wait no I’ve just been blocked haha!

 

[large donner]

michael sharpe@profmsharpe
Sorry. I am going to block you as we are going round circles. Kind regards

No we are just asking clear questions, you are feeling dizzy after 10 years of spin and finally major players have woken up to you, maybe you should spin round the other way so you don't fall over.

 

[Sarah]

Ah - I've seen that before. No. 17 (Lois Addy) is the same person who posted the blog I mentioned (http://copingbadly.blogspot.com/2018/03/reanalysis-of-pace-data.html).

Is this available publicly somewhere, and have the comments been verified as coming from trial participants?

A cursory Googling only turns up Alem's main response and this blog post by Clark Ellis which links the Google page @Adam pwme posted:

https://autodidactauthor.wordpress.com/2016/08/29/pace-and-the-interests-of-trial-participants/

"One document submitted by Alem Matthees as part of the evidence to the tribunal was a document collating the publicly available comments from PACE trial participants who had voluntarily come forward to express their views in public. A copy can be found here. It was submitted to dispute the claims of QMUL that patient participants were in danger of being harassed, and shows that in all cases where patient participants have come forward they have not been harassed, but rather have been praised, thanked and supported. This is no surprise, as we are all patients and we all just want to get better."

 

[Nathalie Wright]

‘Kind regards’ ey. The pretence of respect, dressings of politeness - how insidious.

 

[Liv aka Mrs Sowester]

So sad, you'll never again get to sit at his feet and hear his great words of wisdom @Lucibee @JohnTheJack and @Joh

 

[Nathalie Wright]

Playing games??? Erm no these are our lives; the lives of millions round the world. Wow.

 

[Lucibee]

So sad, you'll never again get to sit at his feet and hear his great words of wisdom @Lucibee @JohnTheJack and @Joh

Ah - That means he can see this forum. *waves to Prof Sharpe*

 

[Tom Kindlon]

I just got blocked even though it's weeks since I replied to him.

 

[Hoopoe]

So sad, you'll never again get to sit at his feet and hear his great words of wisdom

Have you read the paper?

 

[Tom Kindlon]

 

[Diluted-biscuit]

Life is too short to try and explain the way out of all his contradictions. It would take him years at this point.

 

[TiredSam]

To CFS and ME patients and activists.

I am not a patient. You can call me a patient when it's safe for me to go near a doctor and tell them I've got ME, and they know what to do about it or at least manage to do no harm. I am not an activist, I have never been less active. "Activist" is just a label you made up. You are addressing nobody (and you know it because you've blocked all those you are purportedly addressing), just talking to yourself and posturing to your mates and a rapidly diminishing audience of others, as usual.

 

[JohnTheJack]

So sad, you'll never again get to sit at his feet and hear his great words of wisdom @Lucibee @JohnTheJack and @Joh

Hehe. Yeah, I'm distraught.

 

[Barry]

Ah - That means he can see this forum. *waves to Prof Sharpe*

I think your gotcha maybe got to Prof. Michael Sharpe. I dearly wish doing right by PwME would also get to him, as he still could do if he really cared. We are not playing games, far from it, but MS's tweets show his own form of game playing, and how to not take seriously the lives of so many sick people.