1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Michael Sharpe skewered by @JohntheJack on Twitter

Discussion in 'General ME/CFS news' started by Indigophoton, Apr 9, 2018.

Tags:
Page 96 of 114
  1. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,734
    God forbid. :confused:
     
    Inara, Jun 25, 2018
    #1901
    MEMarge, Invisible Woman, JaimeS and 6 others like this.
  2. Andy

    Andy Committee Member

    Messages:
    21,963
    Location:
    Hampshire, UK
    Something has gone wrong with that for some reason.

    This should work..
     

    Attached Files:

    Andy, Jun 25, 2018
    #1902
    Simone, MEMarge, Invisible Woman and 7 others like this.
  3. Adam pwme

    Adam pwme Senior Member (Voting Rights)

    Messages:
    626
    Thanks
     
    Adam pwme, Jun 25, 2018
    #1903
    MEMarge, Invisible Woman and Andy like this.
  4. Cheshire

    Cheshire Moderator Staff Member

    Messages:
    4,675
    I thought the data were no more accessible...
    @JohnTheJack will be interested in this.

    There's a time when you stop giving someone the benefit of the doubt, and start calling a liar, a liar.
     
    Last edited: Jun 25, 2018
    Cheshire, Jun 25, 2018
    #1904
    Invisible Woman, Jan, JaimeS and 13 others like this.
  5. JohnTheJack

    JohnTheJack Moderator Staff Member

    Messages:
    4,381
    That is interesting, thank you.
     
    JohnTheJack, Jun 25, 2018
    #1905
    Invisible Woman, alktipping, Chezboo and 8 others like this.
  6. Adrian

    Adrian Administrator Staff Member

    Messages:
    6,486
    Location:
    UK
    They have promised this for a while but they want to review any work done prior to sharing data so its not valid sharing. Also we have no documented evidence that any independent ethics committee object to data sharing.
     
    Adrian, Jun 25, 2018
    #1906
    MEMarge, Invisible Woman, alktipping and 5 others like this.
  7. Indigophoton

    Indigophoton Senior Member (Voting Rights)

    Messages:
    849
    Location:
    UK
    I think he's saying he just did the experiment; other people decided what to do with it. Technically this is true, and it reflects badly on NICE et al that they didn't see how unreliable the trial results were.

    It also doesn't excuse Sharpe and the others from taking responsibility for correcting the record once the flaws were pointed out (although clearly he, at least, can't grasp the issues).
     
    Indigophoton, Jun 25, 2018
    #1907
    Invisible Woman, Woolie, alktipping and 2 others like this.
  8. large donner

    large donner Guest

    Messages:
    1,214
    The only thing that has reinforced the idea that CBT and GET are useful for ME is the SMC by promoting a trial that didn't stick to its protocol, recovery and improvement definitions.

    The actual data from PACE proved that if you cook the books halfway through a trial you can claim success from your preferred treatments that you have been promoting for years.

    If you can be simultaneously ill enough to enter the trial and both declared recovered at the same time the trial is bogus.

    Its not a matter of interpretation its a matter of fact.

    Thats why NICE are reviewing the evidence for GET and CBT and that's why MPs have called Sharpe out in parliament using real evidence.
     
    Last edited: Jun 25, 2018
    large donner, Jun 25, 2018
    #1908
    Invisible Woman, Jan, alktipping and 10 others like this.
  9. large donner

    large donner Guest

    Messages:
    1,214
    I think finally after all these years of not being listened to about how bad the BPS crowd is Sharpe is doing more for us than we could ever do.

    If policy makers and other docs don't wake up in abundance it will be amazing. Having said all that it still could takes years of bureaucracy and meetings to change policy.
     
    Last edited: Jun 25, 2018
    large donner, Jun 25, 2018
    #1909
    MEMarge, Invisible Woman, JaimeS and 4 others like this.
  10. Nathalie Wright

    Nathalie Wright Established Member (Voting Rights)

    Messages:
    76
    Nathalie Wright, Jun 25, 2018
    #1910
    Invisible Woman, alktipping, Chezboo and 5 others like this.
  11. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Neither of those tweets are saved on here, they're just links, and the forum software displays the tweets linked to.
     
    Esther12, Jun 25, 2018
    #1911
    MEMarge, Invisible Woman, JaimeS and 1 other person like this.
  12. Nathalie Wright

    Nathalie Wright Established Member (Voting Rights)

    Messages:
    76
    Oh right - we’ll they’re still showing up here but I get ‘This Tweet is unavailable’ on Twitter. Have taken screen shots.
     
    Nathalie Wright, Jun 25, 2018
    #1912
    MEMarge, Invisible Woman, JaimeS and 5 others like this.
  13. Nathalie Wright

    Nathalie Wright Established Member (Voting Rights)

    Messages:
    76
    Ohhh wait no I’ve just been blocked haha!
     
    Nathalie Wright, Jun 25, 2018
    #1913
    Invisible Woman, Jan, JaimeS and 21 others like this.
  14. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    1,484
    Location:
    Mid-Wales
    Lucibee, Jun 25, 2018
    #1914
    Invisible Woman, alktipping and Inara like this.
  15. Adam pwme

    Adam pwme Senior Member (Voting Rights)

    Messages:
    626
    The original link was from Twitter I think. There are links to the public comments at the bottom of the document but I don't think they've been verified as trial participants.
     
    Adam pwme, Jun 25, 2018
    #1915
    Invisible Woman, alktipping, Sarah and 1 other person like this.
  16. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    1,484
    Location:
    Mid-Wales
    I've just joined the Blocked by Sharpe Club!
     
    Lucibee, Jun 25, 2018
    #1916
    Simone, MEMarge, Invisible Woman and 28 others like this.
  17. large donner

    large donner Guest

    Messages:
    1,214
    Can I suggest you read the paper. Oh wait that doesn't work on you!! As you have studied the paper in depth you should know!
     
    large donner, Jun 25, 2018
    #1917
    Invisible Woman, Woolie, JaimeS and 6 others like this.
  18. BurnA

    BurnA Senior Member (Voting Rights)

    Messages:
    410
    It's his last resort.
    Pity, it was fun while it lasted.
     
    BurnA, Jun 25, 2018
    #1918
    MEMarge, Invisible Woman, Jan and 10 others like this.
  19. large donner

    large donner Guest

    Messages:
    1,214
    The mans a genius, first he let you collect a record of his inability to justify himself scientifically, THEN he blocked you.
     
    large donner, Jun 25, 2018
    #1919
    MEMarge, Invisible Woman, Jan and 14 others like this.
  20. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
    Me too.
     
    Joh, Jun 25, 2018
    #1920
    MEMarge, Invisible Woman, Woolie and 13 others like this.
Page 96 of 114

Share This Page