Discussion in 'General ME/CFS News' started by Indigophoton, Apr 9, 2018.
Something has gone wrong with that for some reason.
This should work..
I thought the data were no more accessible...
@JohnTheJack will be interested in this.
There's a time when you stop giving someone the benefit of the doubt, and start calling a liar, a liar.
That is interesting, thank you.
They have promised this for a while but they want to review any work done prior to sharing data so its not valid sharing. Also we have no documented evidence that any independent ethics committee object to data sharing.
I think he's saying he just did the experiment; other people decided what to do with it. Technically this is true, and it reflects badly on NICE et al that they didn't see how unreliable the trial results were.
It also doesn't excuse Sharpe and the others from taking responsibility for correcting the record once the flaws were pointed out (although clearly he, at least, can't grasp the issues).
The only thing that has reinforced the idea that CBT and GET are useful for ME is the SMC by promoting a trial that didn't stick to its protocol, recovery and improvement definitions.
The actual data from PACE proved that if you cook the books halfway through a trial you can claim success from your preferred treatments that you have been promoting for years.
If you can be simultaneously ill enough to enter the trial and both declared recovered at the same time the trial is bogus.
Its not a matter of interpretation its a matter of fact.
Thats why NICE are reviewing the evidence for GET and CBT and that's why MPs have called Sharpe out in parliament using real evidence.
I think finally after all these years of not being listened to about how bad the BPS crowd is Sharpe is doing more for us than we could ever do.
If policy makers and other docs don't wake up in abundance it will be amazing. Having said all that it still could takes years of bureaucracy and meetings to change policy.
The last tweet has been deleted, glad it has been saved on here!
Neither of those tweets are saved on here, they're just links, and the forum software displays the tweets linked to.
Oh right - we’ll they’re still showing up here but I get ‘This Tweet is unavailable’ on Twitter. Have taken screen shots.
Ohhh wait no I’ve just been blocked haha!
Ah - I've seen that before. No. 17 (Lois Addy) is the same person who posted the blog I mentioned (http://copingbadly.blogspot.com/2018/03/reanalysis-of-pace-data.html).
Is this available publicly somewhere, and have the comments been verified as coming from trial participants?
The original link was from Twitter I think. There are links to the public comments at the bottom of the document but I don't think they've been verified as trial participants.
I've just joined the Blocked by Sharpe Club!
Can I suggest you read the paper. Oh wait that doesn't work on you!! As you have studied the paper in depth you should know!
It's his last resort.
Pity, it was fun while it lasted.
The mans a genius, first he let you collect a record of his inability to justify himself scientifically, THEN he blocked you.
Separate names with a comma.