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Michael Sharpe skewered by @JohntheJack on Twitter

Discussion in 'General ME/CFS News' started by Indigophoton, Apr 9, 2018.

  1. Inara

    Inara Senior Member (Voting Rights)

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    God forbid. :confused:
     
  2. Andy

    Andy Committee Member & Outreach

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    Something has gone wrong with that for some reason.

    This should work..
     

    Attached Files:

  3. Adam pwme

    Adam pwme Senior Member (Voting Rights)

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    Thanks
     
    MEMarge, Invisible Woman and Andy like this.
  4. Cheshire

    Cheshire Moderator Staff Member

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    I thought the data were no more accessible...
    @JohnTheJack will be interested in this.

    There's a time when you stop giving someone the benefit of the doubt, and start calling a liar, a liar.
     
    Last edited: Jun 25, 2018
    Invisible Woman, Jan, JaimeS and 13 others like this.
  5. JohnTheJack

    JohnTheJack Moderator Staff Member

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    That is interesting, thank you.
     
  6. Adrian

    Adrian Administrator Staff Member

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    They have promised this for a while but they want to review any work done prior to sharing data so its not valid sharing. Also we have no documented evidence that any independent ethics committee object to data sharing.
     
  7. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    I think he's saying he just did the experiment; other people decided what to do with it. Technically this is true, and it reflects badly on NICE et al that they didn't see how unreliable the trial results were.

    It also doesn't excuse Sharpe and the others from taking responsibility for correcting the record once the flaws were pointed out (although clearly he, at least, can't grasp the issues).
     
  8. large donner

    large donner Guest

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    The only thing that has reinforced the idea that CBT and GET are useful for ME is the SMC by promoting a trial that didn't stick to its protocol, recovery and improvement definitions.

    The actual data from PACE proved that if you cook the books halfway through a trial you can claim success from your preferred treatments that you have been promoting for years.

    If you can be simultaneously ill enough to enter the trial and both declared recovered at the same time the trial is bogus.

    Its not a matter of interpretation its a matter of fact.

    Thats why NICE are reviewing the evidence for GET and CBT and that's why MPs have called Sharpe out in parliament using real evidence.
     
    Last edited: Jun 25, 2018
  9. large donner

    large donner Guest

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    I think finally after all these years of not being listened to about how bad the BPS crowd is Sharpe is doing more for us than we could ever do.

    If policy makers and other docs don't wake up in abundance it will be amazing. Having said all that it still could takes years of bureaucracy and meetings to change policy.
     
    Last edited: Jun 25, 2018
  10. Nathalie Wright

    Nathalie Wright Established Member (Voting Rights)

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    The last tweet has been deleted, glad it has been saved on here!
     
  11. Esther12

    Esther12 Senior Member (Voting Rights)

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    Neither of those tweets are saved on here, they're just links, and the forum software displays the tweets linked to.
     
  12. Nathalie Wright

    Nathalie Wright Established Member (Voting Rights)

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    Oh right - we’ll they’re still showing up here but I get ‘This Tweet is unavailable’ on Twitter. Have taken screen shots.
     
  13. Nathalie Wright

    Nathalie Wright Established Member (Voting Rights)

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    Ohhh wait no I’ve just been blocked haha!
     
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  14. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Invisible Woman, alktipping and Inara like this.
  15. Adam pwme

    Adam pwme Senior Member (Voting Rights)

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    The original link was from Twitter I think. There are links to the public comments at the bottom of the document but I don't think they've been verified as trial participants.
     
  16. Lucibee

    Lucibee Senior Member (Voting Rights)

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    I've just joined the Blocked by Sharpe Club!
     
  17. large donner

    large donner Guest

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    Can I suggest you read the paper. Oh wait that doesn't work on you!! As you have studied the paper in depth you should know!
     
  18. BurnA

    BurnA Senior Member (Voting Rights)

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    It's his last resort.
    Pity, it was fun while it lasted.
     
  19. large donner

    large donner Guest

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    The mans a genius, first he let you collect a record of his inability to justify himself scientifically, THEN he blocked you.
     
  20. Joh

    Joh Senior Member (Voting Rights)

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    Me too.
     

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