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Michael Sharpe skewered by @JohntheJack on Twitter

Discussion in 'General ME/CFS News' started by Indigophoton, Apr 9, 2018.

  1. NelliePledge

    NelliePledge Moderator

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    BOOM
     
  2. Diluted-biscuit

    Diluted-biscuit Senior Member (Voting Rights)

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    I imagine he’s going to just ignore this one on twitter. I can’t see how he could wriggle out of it. It’s a direct contradiction to multiple things he’s been saying.
     
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  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    and also contradicts some of the things Simon Wessely tweeted
     
  4. Lucibee

    Lucibee Senior Member (Voting Rights)

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    I took that to indicate bias rather than harm per se. And one account is not enough while they're all like "didn't see it. didn't happen."
     
  5. Barry

    Barry Senior Member (Voting Rights)

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    This is pretty close to direct, and if that participant was prepared to talk to Carol Monaghan, they might (but their choice of course) be prepared to go directly on the record. But the above is a pretty close second to having that. Also interesting that the above quote includes "and that despite patients not recovering (or in some cases worsening), they would publish that the treatment was successful". That very strongly suggests that other PACE participants were also adversely affected by GET, and that the investigators obfuscated that in some way. Maybe why so much resistance to releasing all the data?

    https://hansard.parliament.uk/commo...-4566-940D-249F5026FF73/PACETrialPeopleWithME

    Edit: Just realised that is from the Feb debate, but still valid.

    Edit 2: "and that the investigators obfuscated that in some way" ... would that be of interest to @dave30th or Steven Lubet? If it could be proven?
     
    Last edited: Jun 25, 2018
  6. EzzieD

    EzzieD Senior Member (Voting Rights)

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    Oh, that's fantastic. Does CBT help pathological liars, maybe he needs a dose of his own medicine?

    He seriously underestimates the ability of pwme to do the detective work to dig up these inconvenient documented truths.
     
  7. Sbag

    Sbag Senior Member (Voting Rights)

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    "I have played a leading role in the development of cognitive behavioural treatment for the previously untreatable chronic fatigue syndrome (CFS/ME). From 2005 to 2011 I co-led the MRC national PACE trial of treatments for CFS/ME (publications 2011-15). This has shaped NICE guidance and services in the UK and internationally."
    Wasn't he refuting his involvement in the PACE papers and that he was not a centre lead?!!
     
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  8. Keela Too

    Keela Too Senior Member (Voting Rights)

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    That was SWessely this is MSharpe
     
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  9. Sbag

    Sbag Senior Member (Voting Rights)

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    I haven't read through these so not sure if they would provide anything useful

    https://www.dropbox.com/s/kbjmmuc1u...Evidence Based Guidance January 2018.pdf?dl=0
    https://emerge.org.au/wp-content/uploads/2018/02/PEM-GET-Primer-December-2017.pdf
    http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx
     
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  10. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Last edited: Jun 25, 2018
    Simone and MEMarge like this.
  11. Lucibee

    Lucibee Senior Member (Voting Rights)

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  12. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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  13. Adam pwme

    Adam pwme Senior Member (Voting Rights)

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    MEMarge, Inara and Joh like this.
  14. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Adverse events and deterioration reported by participants in the PACE trial of therapies for chronic fatigue syndrome
    Author links open overlay panelDominicDougallaAnthonyJohnsonbKimberleyGoldsmithcMichaelSharpedBrianAnguseTrudieChalderfPeterWhiteg

    https://www.sciencedirect.com/science/article/pii/S0022399914001883
     
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  15. Lucibee

    Lucibee Senior Member (Voting Rights)

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    And another - left as a comment on Keith Laws blog:

    This is concerning because the trial was well over by then - so what on earth were they doing still recruiting patients?

    [Edit: Thread moved to here]
     
    Last edited: Jun 28, 2018
  16. Diluted-biscuit

    Diluted-biscuit Senior Member (Voting Rights)

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    He doesn’t seem to understand that he can’t have both shaped NICE guidelines and not had any effect at the same time. It’s a one or the other deal.
     
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  17. Lucibee

    Lucibee Senior Member (Voting Rights)

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    My ultra-slow computer won't let me see that.
     
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  18. Adam pwme

    Adam pwme Senior Member (Voting Rights)

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    It’s a collection of 19 public statements from participants collected for the tribunal in a pdf.

    There’s too many to post unfortunately.
     
  19. wdb

    wdb Senior Member (Voting Rights)

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    Mildly encouraging, I wonder if this data sharing platform will be more independent than the Cochrane group.
     
  20. Sarah

    Sarah Senior Member (Voting Rights)

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    I've uploaded it directly.
     

    Attached Files:

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