1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 18th March 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Michael Sharpe skewered by @JohntheJack on Twitter

Discussion in 'General ME/CFS news' started by Indigophoton, Apr 9, 2018.

  1. Snowdrop

    Snowdrop Senior Member (Voting Rights)

    Messages:
    2,134
    Location:
    Canada
    A student of his (from MIT), Danny Hollis, is on twitter.
     
  2. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,522
    Thank you so m uch for raising my pet issue which I discussed with NICE this week- They denied any reference to this in recent NICE Surveillance work- I know otherwise!
     
    Barry, Woolie, Sly Saint and 6 others like this.
  3. Graham

    Graham Senior Member (Voting Rights)

    Messages:
    3,324
    I've just read through all of this again, but can't find a comment on Twitter by Michael Sharpe along the lines of the PACE trial "just being a trial". Am I imagining it?
     
    MEMarge and Invisible Woman like this.
  4. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
  5. Graham

    Graham Senior Member (Voting Rights)

    Messages:
    3,324
    That's the one! Thanks. How do you manage to find things like that?
     
  6. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,617
    Location:
    Oregon, USA
    I don't know how @Esther12 found it but here's the advanced search link that I often use when I want to find something on twitter:

    https://twitter.com/search-advanced?lang=en
     
    Annamaria, MEMarge, Joh and 7 others like this.
  7. Graham

    Graham Senior Member (Voting Rights)

    Messages:
    3,324
    Thanks @ahimsa , but the truth is that I've known @Esther12 for a long time now and can confidently report it is simply the result of a colossal brain, unbelievable organizational skills, and a susceptibility to flattery. (Only two of those are true)
     
    Annamaria, MEMarge, Joh and 7 others like this.
  8. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Nah, it was just 'advanced search'. That's all it has ever been...
     
    Annamaria, Joh, Indigophoton and 6 others like this.
  9. Andy

    Andy Committee Member

    Messages:
    21,810
    Location:
    Hampshire, UK
    Can only assume that Sharpe is being unintentionally (and doubly) ironic here.

    First he posts this
    Screen Shot 2019-04-23 at 08.48.41.png
    which can be read here for anybody interested, https://jamanetwork.com/journals/jama/fullarticle/2731897

    and then posts this
    Screen Shot 2019-04-23 at 08.48.19.png

    or maybe he's trying to be useful, he posts a link to something that could have helped stop his medical misinformation, and then he finds another example of misinformation and shares it as an example? (No, I don't believe any of that either.)
     
  10. Woolie

    Woolie Senior Member

    Messages:
    2,918
    Oh god, its so transparent! Sharpe trying to imply that any scepticism directed at his research is due to "misinformation".

    I think its rather obvious he has no real understanding of the material in this paper, probably hasn't even read it. He just retweets things based on the sound of them alone, whether they enhance his twitter "image".

    Who's game to ask if he's read the paper?
     
  11. Hoopoe

    Hoopoe Senior Member (Voting Rights)

    Messages:
    5,234
    Sharpe should continue tweeting about the lightning process. :D

    It makes him look like a raving quack. I think it also reveals how he really sees CFS: as choice and all in the mind.
     
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    The article he tweeted is by a girl in England who 'recovered' after 3 years using 'graded activity' which, from her description, sounds a lot like pacing having been off school for a year and a half (post glandular fever).

    https://twitter.com/user/status/1120610605994430464


    maybe someone could ask him what happened to the
    PACE 10 year follow-up: feasibility study
    https://www.hra.nhs.uk/planning-and...ies/pace-10-year-follow-up-feasibility-study/

    eta: also,there is no point getting the data if you won't share it!
     
    Last edited: Apr 23, 2019
    Annamaria, Lidia, Woolie and 11 others like this.
  13. TiredSam

    TiredSam Committee Member

    Messages:
    10,482
    Location:
    Germany
    Oh good, MS is back on twitter. Only a matter of time before he shoots himself in the foot again.
     
    Annamaria, Woolie, Barry and 12 others like this.
  14. Sean

    Sean Moderator Staff Member

    Messages:
    7,044
    Location:
    Australia
    No point in getting the data because they stuffed up the randomisation. Any further outcomes data would be meaningless.
     
    Annamaria, Woolie, MEMarge and 4 others like this.
  15. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    but it's not just a trial.............it's an MS trial (queue music)
     
    Missense, Arnie Pye, chrisb and 7 others like this.
  16. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,145
    Location:
    UK West Midlands
    :rofl:
     
    JemPD, MEMarge, Barry and 1 other person like this.
  17. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,385
    This is what the PACE GET participant's manual says:
    upload_2021-8-24_12-42-0.png

    Although the PACE papers primarily refer to CFS, if the authors had really thought that their treatments should be confined to CFS, and not to ME, then why have they never, ever, spoken out about the existing 2007 NICE guideline which says:
    upload_2021-8-24_12-50-2.png

    If they really believed what MS is always banging on about, then they should have spoken out about how the guideline did not fit with their research. And that GET and CBT should not be being recommended for ME, only CFS, as MS is saying they perceived things. But they did not speak out ... why not I wonder :rolleyes:.
     
  18. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,522
    NHS PLUS... the testing ground for NICE and PACE.... my very favourite publication!!!!! STILL trying to GET..this publication and report withdrawn..
     
  19. chrisb

    chrisb Senior Member (Voting Rights)

    Messages:
    4,602
    Does anyone know what Chris Clark's employment was before, and after, being CEO of AfME? The eassily available info specifies that he was CEO until 2006, but doesn't say when he started, or how.
     
    Invisible Woman and Simbindi like this.
  20. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,522

Share This Page