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  1. Adam pwme
    Thread

    New Video: Chronic Fatigue Syndrome is a terrible name

    [MEDIA]
    Thread by: Adam pwme, Jan 11, 2023, 14 replies, in forum: General Advocacy Discussions
  2. Hutan
    Thread

    Names for ME/CFS in languages other than English

    I've recently come across the problem of a name for ME/CFS in the Maori language seemingly being created by a translator to be the equivalent of...
    Thread by: Hutan, Jun 16, 2022, 5 replies, in forum: Diagnostic Criteria and Naming Discussions
  3. Dolphin
    Thread

    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    [MEDIA] The Why: The Historic ME/CFS Call To Arms Paperback – April 26, 2022 by Hillary J Johnson (Author) If you have acquired Myalgic...
    Thread by: Dolphin, Apr 30, 2022, 81 replies, in forum: General ME/CFS news
  4. Sly Saint
    Thread

    Separating Patients with SEID from Those with CFS in the French ME/CFS Association, with Some Thoughts on Nomenclature, 2022, Campagne et al

    Abstract In 2015, the American Institute of Medicine, now called the National Academy of Medicine, (IOM/NAM) proposed new diagnostic criteria for...
    Thread by: Sly Saint, Apr 27, 2022, 0 replies, in forum: ME/CFS research
  5. Dolphin
    Thread

    "What's in a name?", 2020, Kenward

    I don't think this has been posted before The power of power, narrated, and naming things that are so numerous we know longer see them. The...
    Thread by: Dolphin, Nov 22, 2021, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Andy
    Thread

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    Abstract There are many words for what physicians commonly refer to as Somatoform Disorder. However, none is particularly patient-centered; to...
    Thread by: Andy, Sep 19, 2021, 27 replies, in forum: Other psychosomatic news and research
  7. Sly Saint
    Thread

    2021 US ICD-10-CM change proposal: addition of code for ME/CFS

    Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic...
    Thread by: Sly Saint, Aug 24, 2021, 9 replies, in forum: Disease coding
  8. Andy
    Thread

    What is in a name? Autonomic imbalance and medically unexplained symptoms in Taiwan, 2021, Chen

    Abstract Medically unexplained symptoms (MUS) are persistent bodily symptoms without known pathology. An unofficial term has recently emerged in...
    Thread by: Andy, Mar 14, 2021, 3 replies, in forum: Other psychosomatic news and research
  9. Dx Revision Watch
    Thread

    Post Covid-19 Syndrome naming

    This post and several following have been moved from several threads. Edited to insert: This thread is monitoring the progress and outcome...
    Thread by: Dx Revision Watch, Sep 7, 2020, 100 replies, in forum: Disease coding
  10. Trish
    Thread

    Chronic Fatigue Syndrome - Summary of a Report of a Joint Committee of the Royal Colleges of Physicians, Psychiatrists and GP's, 1996, Simon Wessely

    Found by @DigitalDrifter who asked me to post it. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5401495/?page=1 Journal of the Royal College of...
    Thread by: Trish, Jul 4, 2020, 15 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Dolphin
    Thread

    Thread by Tapanui 'Flu on Twitter about Melvin Ramsay's views on the aetiology of the illness

    https://threadreaderapp.com/thread/1272740501968449536.html
    Thread by: Dolphin, Jun 16, 2020, 5 replies, in forum: Diagnostic Criteria and Naming Discussions
  12. Dolphin
    Thread

    Solving the ME/CFS criteria and name conundrum: the aftermath of IOM, 2020, Jason & Johnson

    https://www.tandfonline.com/doi/full/10.1080/21641846.2020.1757809 Journal Fatigue: Biomedicine, Health & Behavior Latest Articles Articles...
    Thread by: Dolphin, Apr 29, 2020, 46 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  13. InfiniteRubix
    Thread

    ME/SEID - a more accurate illness name than ME/CFS? (words only, nothing to do with diagnostic criteria)

    ME/SEID would be definitionally appropriate on literal terminological grounds, if associated with superior diagnostic criteria, such as the CCC or...
    Thread by: InfiniteRubix, Feb 29, 2020, 91 replies, in forum: Diagnostic Criteria and Naming Discussions
  14. Dx Revision Watch
    Thread

    IAPT requests addition of DSM-5's Somatic symptom disorder (SSD) to SNOMED CT for use in Data Set v2.0 to replace "MUS - not otherwise specified"

    This post and the following ones have been moved from this thread....
    Thread by: Dx Revision Watch, Feb 15, 2020, 66 replies, in forum: Disease coding
  15. Dx Revision Watch
    Thread

    For the ICD-10 release for 2019, the term "Benign" has been deprecated.

    The most recent release of the WHO's ICD-10 online browser is now available. For ICD-10: Version 2019, the term "Benign" has been deprecated....
    Thread by: Dx Revision Watch, Feb 8, 2020, 6 replies, in forum: Disease coding
  16. Hip
    Thread

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Moderator note: Use this thread to discuss the possibility of an ME/CFS or ME/CFS-like illness following Covid-19. Initial posts have been moved...
    Thread by: Hip, Jan 21, 2020, 5,546 replies, in forum: Long Covid news
  17. Mithriel
    Thread

    Diagnosis of ME and the use of the labels ME and CFS.

    Moderator note: This post has been copied and subsequent posts moved from this thread: Concerns about craniocervical instability surgery in...
    Thread by: Mithriel, Nov 4, 2019, 291 replies, in forum: Diagnostic Criteria and Naming Discussions
  18. Kalliope
    Thread

    The Academic Minute: Leonard Jason, Depaul University - Chronic Fatigue Syndrome

    The Academic Minute: Leonard Jason, Depaul University - Chronic Fatigue Syndrome I believe the label “chronic fatigue syndrome” has contributed...
    Thread by: Kalliope, May 14, 2019, 1 replies, in forum: General ME/CFS news
  19. ME/CFS Skeptic
    Thread

    Can we call ME/CFS a disease?

    I apologize in advance for opening the discussion about whether we can call ME/CFS a disease or not. This topic is discussed sporadically in other...
    Thread by: ME/CFS Skeptic, May 1, 2019, 38 replies, in forum: General Advocacy Discussions
  20. John Mac
    Thread

    Petition, change.org: Define "Melvin Ramsay's Myalgic Encephalomyelitis (M.E.)" as own distinct disease from CFS

    I realise this may be controversial but it goes into it quite deeply, maybe too deeply. I believe that "Melvin Ramsay's Myalgic...
    Thread by: John Mac, Apr 10, 2019, 15 replies, in forum: Petitions
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