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young people

Page 8 of 9
  1. Trish
    Thread

    RCPCH conference 2019 abstract: Prognosis for childhood CFS is excellent, Robertson et al

    Prognosis for childhood CFS is excellent Abstract Aims Services for childhood Chronic Fatigue Syndrome (CFS) are variable across the UK. We...
    Thread by: Trish, May 18, 2019, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  2. MyalgicE
    Thread

    Australian teenager tells story of threats and mistreatment

    A young woman with very severe ME contacted me to help tell her story. Over the past couple of months she’s told her harrowing story of...
    Thread by: MyalgicE, May 10, 2019, 30 replies, in forum: General ME/CFS news
  3. rvallee
    Thread

    Social Services Can Threaten Families of Children with Chronic Fatigue

    Pretty good article from Vice about the reality of social services in the UK threatening sanctions against the parents of children with ME....
    Thread by: rvallee, May 2, 2019, 10 replies, in forum: General ME/CFS news
  4. Esther12
    Thread

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say...
    Thread by: Esther12, Apr 18, 2019, 85 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Andy
    Thread

    Meeting the Educational Needs of Young, ME/CFS Patients: Role of the Treating Physician, 2019, (Faith) Newton

    Introduction Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling, chronic disease characterized by the body's inability to...
    Thread by: Andy, Apr 3, 2019, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Amy101
    Thread

    Clare Norton article about how doctors dismissed her as neurotic

    I thought I would also post this here. A freelance journalist contacted my mum, Clare Norton, about her experiences with the NHS and How they...
    Thread by: Amy101, Mar 30, 2019, 11 replies, in forum: Caregiver support
  7. Andy
    Thread

    Cognitive and behavioural responses to symptoms in adolescents with CFS: A case-control study nested within a cohort, 2019, Loades et al

    Abstract BACKGROUND:: What adolescents think about symptoms and what they do in response could contribute to fatigue maintenance. We compared the...
    Thread by: Andy, Mar 23, 2019, 61 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Andy
    Thread

    Associations Between Autonomic and Orthostatic Self-report and Physician Ratings of Orthostatic Intolerance in Youth, 2019, Jason et al

    Abstract PURPOSE: There is no known biological marker or physical assessment to diagnose chronic fatigue syndrome (CFS), leaving physicians to...
    Thread by: Andy, Mar 17, 2019, 0 replies, in forum: ME/CFS research
  9. Tilly
    Thread

    Professor Crawley BPSU study - Chronic fatigue syndrome (CFS) Severe children Feb 2019 - 2020

    I just came across this this morning and it fills me with what I can only describe as the collywobbles. Firstly how many children with severe ME...
    Thread by: Tilly, Mar 1, 2019, 57 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Andy
    Thread

    Long Term Follow up of Young People With Chronic Fatigue Syndrome Attending a Pediatric Outpatient Service, 2019, Rowe

    Aim: To determine the reported duration of illness, the functional and educational long-term outcomes, predictive factors for recovery and seek...
    Thread by: Andy, Feb 21, 2019, 48 replies, in forum: ME/CFS research
  11. Sly Saint
    Thread

    MYRIAD - My Resilience in Adolescence project UK

    MYRIAD is a research project. We are interested in how schools promote young people’s wellbeing and resilience (the ability to adapt in the face...
    Thread by: Sly Saint, Feb 19, 2019, 8 replies, in forum: Other psychosomatic news and research
  12. Andy
    Thread

    Factors affecting quality of life in children and adolescents with hypermobile Ehlers-Danlos syndrome/hypermobility spectrum disorders,2019,Mu et al

    Abstract Hypermobile Ehlers‐Danlos syndrome (hEDS) is a hereditary disorder of connective tissue, often presenting with complex symptoms can...
    Thread by: Andy, Feb 2, 2019, 6 replies, in forum: 'Conditions related to ME/CFS' news and research
  13. MeSci
    Thread

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    An alarming-sounding study ("Fearful beliefs about activity could be targeted using cognitive-behavioural interventions.")! Source: Journal of...
    Thread by: MeSci, Jan 28, 2019, 66 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Sly Saint
    Thread

    Schoolboy, 14, struck down by ME during a football match – yet doctors dismissed his symptoms as him being a ‘lazy teenager’

    In brief Cai Onraet's onset of ME was sudden when his legs went beneath him He suffered fatigue, headaches, muscle pain, and flu-like symptoms...
    Thread by: Sly Saint, Jan 24, 2019, 5 replies, in forum: General ME/CFS news
  15. Andy
    Thread

    Are You a Young Person Affected by ME? How do you Visualize Health Equity? Join a National Contest

    The U.S. National Academy of Medicine (NAM) is holding a contest for young people (ages 5 to 26) to submit art, music, writing, videos, dance,...
    Thread by: Andy, Jan 12, 2019, 0 replies, in forum: Advocacy Projects and Campaigns
  16. Amw66
    Thread

    Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME: interviews with adolescents and parents, 2018, Crawley et al

    New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition....
    Thread by: Amw66, Dec 5, 2018, 26 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Andy
    Thread

    Associations between clinical symptoms, plasma norepinephrine & deregulated immune gene networks in subgroups of adolescent w/CFS, 2018, Nguyen et al

    Highlights • 29 deregulated immune gene sets were identified to distinguish patients and controls; as well as delineate patients into two...
    Thread by: Andy, Nov 17, 2018, 3 replies, in forum: ME/CFS research
  18. Andy
    Thread

    Does fatigue and distress in a clinical cohort of adolescents with CFS correlate with fatigue and distress in their parents?, 2018, Loades et al

    Abstract Objectives Previous studies have found that parents of children with chronic fatigue syndrome (CFS) are more fatigued, and mothers are...
    Thread by: Andy, Nov 10, 2018, 13 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Andy
    Thread

    School Nurses Can Improve the Lives of Students With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2018, Friedman et al

    Does this count as "good" psychosocial research, as in, in terms of where to put it on the forum? Abstract Myalgic encephalomyelitis/chronic...
    Thread by: Andy, Sep 29, 2018, 11 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Andy
    Thread

    Predictors of chronic fatigue in adolescents six months after acute Epstein-Barr virus infection: a prospective cohort study,2018,Pedersen et al

    I've put this in Research Unrelated to ME/CFS for the time being as the authors seem to do lot of flip-flopping between Chronic Fatigue and...
    Thread by: Andy, Sep 29, 2018, 19 replies, in forum: 'Conditions related to ME/CFS' news and research
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