Abstract Background Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is common (prevalence 1%–2%). Two-thirds of children...
Abstract Purpose The primary aim was to measure health related quality of life (HRQoL) in a Norwegian cohort of adolescents with Chronic Fatigue...
Leonard Jason research finds that many young people have ME/CFS [ATTACH] A new study finds that 0.75%, or 1 in 130 young people, have ME.CFS....
According to the last census, there are 166,000 young carers in England, but recent research suggests that the actual figure may be as many as...
Posted by Dr. Marc-Alexander Fluks to various fora. Can't find it online, only similar ones including 'thousands' instead of 'hundreds' of...
The team of Leonard Jason have performed a prevalence study in Chicago on children and adolescents with ME/CFS. Because this was a...
Eligibility Children may be assessed through our Early Help team, Social Care teams and/or the Children with Disabilities Team. In order for a...
Abstract Context Behavioural interventions are used to prevent, manage and treat a wide variety of conditions including obesity, diabetes, chronic...
https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf [ATTACH]
Aim The aim of this study was to document qualitative questionnaire feedback regarding management from a cohort observational study of young...
Abstract Comorbid depression is common in adolescents with chronic illness. We aimed to design and test a linguistic coding scheme for identifying...
Abstract Objective In a paediatric chronic pain population, to determine whether higher body mass was associated with poorer functioning, mood or...
Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME):...
A GUIDE to assessing and managing patients under the age of 18 who are referred to secondary care This Guide is endorsed by the Royal College of...
Hello, Dr Elisha Josev is clinician-researcher at the Murdoch Children’s Research Institute, Royal Children’s Hospital, studying investigating...
Has anyone done /reviewed the online program from the Northeastern University School of Nursing? Wondering if we can recommend it (in NZ). (and...
A young woman with ME has started UK Parliamentary petition seeking training in relation to ME for teachers: Staff training and mandatory support...
Tea and cake: an opportunity for young people and their parents/guardians to eat cake and share ideas Abstract Background The Treatment and...
Prognosis for childhood CFS is excellent Abstract Aims Services for childhood Chronic Fatigue Syndrome (CFS) are variable across the UK. We...
A young woman with very severe ME contacted me to help tell her story. Over the past couple of months she’s told her harrowing story of...
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