young people

http://voicesfromtheshadowsfilm.co.uk/paediatric-mecfs/ Two videos, 12 and 14 minutes. The link also lists other resources for Pediatric ME/CFS. ME/CFS in children and young people Part 1 - diagnosis, symptoms and controversies Part 2 - management. Thanks to @Tom Kindlon for flagging this up...

Free full text: https://bmjpaedsopen.bmj.com/content/2/1/e000299 http://dx.doi.org/10.1136/bmjpo-2018-000299

" Lizzie is one of a group of 16-25 year olds recruited from across the country to advise HLF on how to involve more young people in heritage. They’ve even helped allocate £10million of National Lottery funding to projects designed to do just this. Lizzie is passionate about natural heritage...

" A charity has been forced to cut its services for hundreds of young people - many of whom are housebound. ME North East says it has been unable to find the cash it needs and is desperately seeking new funding so it can continue to offer support to help youngsters stay in education, fight...

https://bmjopen.bmj.com/content/6/7/e011255 " Study design This study started in September 2015 and recruitment is expected to finish in August 2016. This is a feasibility RCT with integrated qualitative methods." " Ethical considerations GET, CBT and activity management are recommended as...

Paywalled at https://link.springer.com/article/10.1007%2Fs12529-018-9732-1

Government Inquiry into support for children and young people with special educational needs and disabilities (SEND) | 23 May 2018 http://www.meassociation.org.uk/2018/05/government-inquiry-send-23-may-2018/ The Education Committee at the House of Commons is holding an inquiry into the...

The Young ME/CFS Australians 18-40 group are a group which get together online for regular video chats. They invited David Tuller to join them for a Q&A whilst he is in Australia. This is a recording of that chat. It lasts for approximately 1hr 15mins. Thanks to Carla for organising the Q&A...

This thread has been split in order to create an In Memory thread for Merryn. To leave tributes to Merryn please go to: https://www.s4me.info/threads/in-memory-of-merryn-croft.3302/ This thread remains here to discuss media coverage :cry: Bed-bound and in unimaginable pain, watching my...

I didn't know where to put this, but thought it of interest. From a Bristol Uni magazine in 2013 an article by Esther Crawley. http://www.bristol.ac.uk/media-library/sites/university/migrated/documents/nonesuch6.pdf (pages 15/16 on pdf, 29/30 in mag) Her mission: "‘The aim of my fellowship is...

http://www.sleep-journal.com/article/S1389-9457(18)30017-0/fulltext?cc=y= Simon M. Collin, Tom Norris, Paul Gringras, Peter S. Blair, Kate Tilling, Esther Crawley Abstract Objective /Background: Sleep abnormalities are characteristic of chronic fatigue syndrome (CFS, also known as ‘ME’), but...

Chronic fatigue syndrome in Chinese middle-school students Abstract (my bolding): The objective of the present study was to determine the prevalence of chronic fatigue syndrome (CFS) and its associated factors in middle-school students in Suzhou, China. From September 2010 to January 2011...

Paywalled at http://onlinelibrary.wiley.com/doi/10.1111/josh.12580/abstract;jsessionid=1F1ED7F272617B400941D7A86325CC5A.f02t04

Split from here. Health Psychol Behav Med. 2014 Jan 1;2(1):41-51. Predictors of Post-Infectious Chronic Fatigue Syndrome in Adolescents. Jason LA1, Katz BZ2, Shiraishi Y3, Mears CJ4, Im Y5, Taylor R6. Author information Abstract This study focused on identifying risk factors for adolescent...

https://www.ncbi.nlm.nih.gov/pubmed/29202780 https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-017-1350-1

Elisha K. Josev; Melinda L. Jackson, Bei Bei, John Trinder, Adrienne Harvey, Cathriona Clarke, Kelli Snodgrass, MD Adam Scheinberg, MMed (Clin Epi) Sarah J. Knight, PhD Journal of Clinical Sleep Medicine http://jcsm.aasm.org/ViewAbstract.aspx?pid=31079 (Not available yet on Scihub) Article...