Pretty good article from Vice about the reality of social services in the UK threatening sanctions against the parents of children with ME....
Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say...
Introduction Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling, chronic disease characterized by the body's inability to...
I thought I would also post this here. A freelance journalist contacted my mum, Clare Norton, about her experiences with the NHS and How they...
Abstract BACKGROUND:: What adolescents think about symptoms and what they do in response could contribute to fatigue maintenance. We compared the...
Abstract PURPOSE: There is no known biological marker or physical assessment to diagnose chronic fatigue syndrome (CFS), leaving physicians to...
I just came across this this morning and it fills me with what I can only describe as the collywobbles. Firstly how many children with severe ME...
Aim: To determine the reported duration of illness, the functional and educational long-term outcomes, predictive factors for recovery and seek...
MYRIAD is a research project. We are interested in how schools promote young people’s wellbeing and resilience (the ability to adapt in the face...
Abstract Hypermobile Ehlers‐Danlos syndrome (hEDS) is a hereditary disorder of connective tissue, often presenting with complex symptoms can...
An alarming-sounding study ("Fearful beliefs about activity could be targeted using cognitive-behavioural interventions.")! Source: Journal of...
In brief Cai Onraet's onset of ME was sudden when his legs went beneath him He suffered fatigue, headaches, muscle pain, and flu-like symptoms...
The U.S. National Academy of Medicine (NAM) is holding a contest for young people (ages 5 to 26) to submit art, music, writing, videos, dance,...
New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition....
Highlights • 29 deregulated immune gene sets were identified to distinguish patients and controls; as well as delineate patients into two...
Abstract Objectives Previous studies have found that parents of children with chronic fatigue syndrome (CFS) are more fatigued, and mothers are...
Does this count as "good" psychosocial research, as in, in terms of where to put it on the forum? Abstract Myalgic encephalomyelitis/chronic...
I've put this in Research Unrelated to ME/CFS for the time being as the authors seem to do lot of flip-flopping between Chronic Fatigue and...
http://voicesfromtheshadowsfilm.co.uk/paediatric-mecfs/ Two videos, 12 and 14 minutes. The link also lists other resources for Pediatric ME/CFS....
Free full text: https://bmjpaedsopen.bmj.com/content/2/1/e000299 Original article Using the internet to cope with chronic fatigue...
Separate names with a comma.
