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young people

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  1. Denise
    Thread

    "My experience of chronic fatigue syndrome" anonymous 16 year old

    A young person who thinks there are effective treatments for cfs. https://bmjpaedsopen.bmj.com/content/5/1/e001165
    Thread by: Denise, Jul 13, 2021, 21 replies, in forum: PsychoSocial ME/CFS News
  2. Andy
    Thread

    Self-help interventions for young people with persistent physical symptoms: A systematic review, 2021, Holsting et al

    Highlights • Self-help treatments for young people with persistent physical symptoms are needed. • The evidence on their effect on symptom burden...
    Thread by: Andy, Jul 10, 2021, 9 replies, in forum: Health News and Research unrelated to ME/CFS
  3. Andy
    Thread

    The kids are not alright: A preliminary report of Post-COVID syndrome in university students, 2021, Walsh-Messinger et al

    Abstract Objective To investigate the prevalence and features of protracted COVID-19 symptoms in non-hospitalized university students who...
    Thread by: Andy, Jul 10, 2021, 1 replies, in forum: Epidemics (including Covid-19)
  4. Andy
    Thread

    Risk factors for long covid in previously hospitalised children using the ISARIC follow-up protocol: A prospective cohort study, 2021, Osmanov et al

    Abstract Background The long-term sequelae of coronavirus disease 2019 (Covid-19) in children remain poorly characterised. This study aimed to...
    Thread by: Andy, Jul 3, 2021, 2 replies, in forum: Epidemics (including Covid-19)
  5. Hutan
    Thread

    Needs and Experiences of Children and Adolescents with Pediatric Multiple Sclerosis and Their Caregivers: A Systematic Review, 2021, Ghai et al

    Abstract In the present study we conduct a systematic review to evaluate the needs and experience of people with pediatric multiple sclerosis (MS)...
    Thread by: Hutan, Jun 23, 2021, 3 replies, in forum: Neurological diseases
  6. Andy
    Thread

    In progress: Measuring Health in Children with CFS/ME: Refinement, application and evaluation of new PROM (PEACH) in routine practice, Crawley et al

    Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and...
    Thread by: Andy, Jun 10, 2021, 12 replies, in forum: PsychoSocial ME/CFS Research
  7. Andy
    Thread

    The Impact of Severe ME/CFS on Student Learning and K–12 Educational Limitations, 2021, Newton

    Faith Newton Abstract Children with ME/CFS who are severely ill are bedbound and homebound, and oftentimes also wheelchair-dependent. Very...
    Thread by: Andy, Jun 1, 2021, 0 replies, in forum: PsychoSocial ME/CFS Research
  8. Dolphin
    Thread

    Chronic pain syndromes in childhood, 2021, Schechter (Oxford Textbook of Pediatric Pain)

    Chronic pain syndromes in childhood, 2021, Schechter (Oxford Textbook of Pediatric Pain) Written from a biopsychosocial perspective and looks...
    Thread by: Dolphin, May 31, 2021, 4 replies, in forum: PsychoSocial ME/CFS News
  9. Sly Saint
    Thread

    Associations between social adversity and young children’s hair cortisol: A systematic review 2021 Bryce et al

    Abstract Psychosocial and socioeconomic adversity in early childhood (termed ‘social adversity’) can have lifelong detrimental effects on health...
    Thread by: Sly Saint, May 3, 2021, 5 replies, in forum: Health News and Research unrelated to ME/CFS
  10. Sly Saint
    Thread

    Podcast: Finding My People - Online Communities with Jenny McGibbon and Stefanie Grant

    Having a chronic illness as a young adult can be isolating. Healthy peers don’t understand and the medical world feels designed for older people....
    Thread by: Sly Saint, May 1, 2021, 0 replies, in forum: General disability topics and advocacy
  11. Andy
    Thread

    Anticipation of and response to exercise in adolescents with CFS: An experimental study, 2021, Loades, Chalder et al

    "Highlights • Adolescents with CFS, asthma and healthy controls undertook an exercise task. • Those with CFS took longer to complete a...
    Thread by: Andy, Apr 20, 2021, 34 replies, in forum: PsychoSocial ME/CFS Research
  12. Sly Saint
    Thread

    University of Bath Psychology dept: Fatigue in Neuromuscular Conditions, 2021, current PhD research project

    [MEDIA] Fatigue in Neuromuscular Conditions Parent Information Sheet Your child is being invited to take part in a research study. Before...
    Thread by: Sly Saint, Apr 18, 2021, 6 replies, in forum: Health News and Research unrelated to ME/CFS
  13. Andy
    Thread

    Exploring anhedonia in adolescents with Chronic Fatigue Syndrome (CFS): A mixed-methods study, 2021, Smith, Crawley, Loades et al

    Abstract Background: Chronic Fatigue Syndrome (CFS/ME) may get in the way of enjoying activities. A substantial minority of adolescents with...
    Thread by: Andy, Apr 18, 2021, 15 replies, in forum: PsychoSocial ME/CFS Research
  14. Sly Saint
    Thread

    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of...
    Thread by: Sly Saint, Apr 14, 2021, 23 replies, in forum: PsychoSocial ME/CFS Research
  15. Three Chord Monty
    Thread

    Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison, 2021, Moore et al (Esther Crawley)

    Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison Yasmin Moore Teona Serafimova...
    Thread by: Three Chord Monty, Apr 13, 2021, 9 replies, in forum: PsychoSocial ME/CFS Research
  16. rvallee
    Thread

    Clinical Characteristics, Activity Levels and Mental Health Problems in Children with Long COVID: A Survey of 510 Children, 2021, Buonsenso et al

    Background The World Health Organization has recently recognized Long COVID, calling the international medical community to strengthen research...
    Thread by: rvallee, Mar 9, 2021, 11 replies, in forum: Epidemics (including Covid-19)
  17. Sly Saint
    Thread

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study): 2021 Stephenson and Crawley

    I haven't searched for more info on this yet. Stevenson Terence PI. Crawley Esther Co-A. Non-hospitalised Children & young people (CYP) with Long...
    Thread by: Sly Saint, Feb 8, 2021, 34 replies, in forum: Epidemics (including Covid-19)
  18. John Mac
    Thread

    Risks for Developing ME/CFS in College Students Following Infectious Mononucleosis: A Prospective Cohort Study, 2020, Jason et al

    Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) involves severe fatigue, unrefreshing sleep, and cognitive...
    Thread by: John Mac, Dec 26, 2020, 51 replies, in forum: BioMedical ME/CFS Research
  19. Andy
    Thread

    Understanding and Managing Adolescents with Conversion and Functional Disorders, 2020, Sunde et al

    A functional disorder is a constellation of bothersome physical symptoms that compromise regular function but for which there is no identifiable...
    Thread by: Andy, Dec 3, 2020, 4 replies, in forum: Health News and Research unrelated to ME/CFS
  20. Andy
    Thread

    Medically unexplained symptoms in children: an experimental investigation of the impact of internet searching on parental responses, 2020, Hughes

    Background: Medically unexplained symptoms (MUS) are symptoms for which no medical cause can be identified. For children and adolescents, symptoms...
    Thread by: Andy, Nov 1, 2020, 13 replies, in forum: Health News and Research unrelated to ME/CFS
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