young people

  1. Andy

    Socioemotional and behavioural difficulties in children with chronic physical conditions: analysis of the Longitudinal Study.. 2023 David-Wilathgamuwa

    Full title: Socioemotional and behavioural difficulties in children with chronic physical conditions: analysis of the Longitudinal Study of Australian Children Objectives To examine the prevalence of socioemotional and behavioural difficulties (SEBDs) in children with chronic physical...
  2. Kalliope

    Post COVID-19 condition after delta infection and omicron reinfection in children and adolescents, Ertesvåg et al, 2023

    eBioMedicine Part of THE LANCET Discovery Science Post COVID-19 condition after delta infection and omicron reinfection in children and adolescents Summary Background The burden of COVID-19 in children and adolescents has increased during the delta and omicron waves, necessitating studies of...
  3. Sly Saint

    What stops children with a chronic illness accessing health care: a mixed methods study in children with CFS/ME, 2011, Webb, Crawley et al

    Paper from 2011 Abstract Background Paediatric Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is relatively common and disabling with a mean time out of school of more than one academic year. NICE guidelines recommend referral to specialist services immediately if severely affected...
  4. Sly Saint

    Priority setting for children and young people with chronic conditions and disabilities (Australia)

    Background The aim of this project was to identify the top 10 priorities for childhood chronic conditions and disability (CCD) research from the perspectives of children and young people with lived experience, their parents and caregivers and the professionals who work with them. Methods We...
  5. Sly Saint

    Fifteen-minute consultation: Managing post-COVID-19 syndrome (long COVID) in children and young people 2023,Wacks, Gregorowski et al

    Abstract Post-COVID-19 syndrome is a new condition that can have a major impact on the physical and mental well-being of children and young people, affecting their ability to access activities including education. Paediatricians and general practitioners need to be able to assess and manage...
  6. Sly Saint

    Article: The Hidden Struggle of Being Young and Chronically Ill

    https://www.msn.com/en-us/health/wellness/the-hidden-struggle-of-being-young-and-chronically-ill/ar-AA19wwDe
  7. Dolphin

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Link to post with link to published paper ******************** Preprint: https://assets.researchsquare.com/files/rs-2021203/v1/5b03bf74-4a36-49f7-9a59-b63be81a30c2.pdf?c=1663177822 Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective...
  8. Dx Revision Watch

    WHO releases clinical case definition for post #COVID19 condition or ‘#LongCovid’ in children and adolescents

  9. Andy

    Long COVID in children and adolescents: COVID-19 follow-up results in third-level pediatric hospital 2023 del Carmen Jamaica Balderas et al

    Introduction: In children, the manifestations of coronavirus disease 2019 (COVID-19) in the acute phase are considered mild compared with those in adults; however, some children experience a severe disease that requires hospitalization. This study was designed to present the operation and...
  10. Dolphin

    A narrative inquiry into the school experiences of teenagers living with ME/CFS, 2022, Lewis (DEdPsy Thesis)

    Source: University of Bristol Date: December 6, 2022 URL: https://research-information.bris.ac.uk/en/studentTheses/a-narrative-inquiry-into-the-school-experiences-of-teenagers-livi https://research-information.bris.ac.uk/ws/portalfiles/portal/349168131/Final_Copy_2022_12_06_Lewis_M_L_DEdPsy.pdf...
  11. Andy

    Functional neurological disorder in children and young people: Incidence, clinical features, and prognosis 2023 Yong, Stone et al

    Authors include the Edinburgh Paediatric FND Study Group Abstract Aim To report incidence, demographic and clinical characteristics, and symptom outcome of functional neurological disorder (FND) in children. Method Children diagnosed with FND at a regional children's hospital were...
  12. T

    Accommodating University Students with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) (2020)

    Accommodating University Students with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) A Guide for Colleges and Universities Lily Chu i , Lynn R Fuentesii , Olena M Marshall iii , Arthur A Mirin iv i Independent Consultant, Burlingame, CA ii CEO, Transformation Teaching, LLC...
  13. Sly Saint

    Long covid outcomes at one year after mild SARS-CoV-2 infection: nationwide cohort study 2023, Mizrahi et al

    Abstract Objectives To determine the clinical sequelae of long covid for a year after infection in patients with mild disease and to evaluate its association with age, sex, SARS-CoV-2 variants, and vaccination status. Design Retrospective nationwide cohort study. Setting Electronic medical...
  14. Dolphin

    Pediatric Post-Acute Sequelae of SARS-CoV-2 infection [with ME/CFS control group], 2022, Jason

    https://www.tandfonline.com/doi/abs/10.1080/21641846.2022.2162764 Research Article Pediatric Post-Acute Sequelae of SARS-CoV-2 infection Leonard A. Jason, Madeline Johnson & Chelsea Torres Received 19 May 2022, Accepted 26 Jun 2022, Published online: 01 Jan 2023 ABSTRACT Aim Youth who have...
  15. Hutan

    Whole blood gene expression in adolescent CFS: altered B cell differentiation and survival, 2017, Nguyen et al

    https://pubmed.ncbi.nlm.nih.gov/28494812/ Whole blood gene expression in adolescent chronic fatigue syndrome: an exploratory cross-sectional study suggesting altered B cell differentiation and survival Chinh Bkrong Nguyen 1 2, Lene Alsøe 3, Jessica M Lindvall 4, Dag Sulheim 5, Even Fagermoen 6...
  16. Dolphin

    Language as a predictor of anxiety, depression, and self-efficacy scores and recovery rate in teenagers with CFS, 2022, Fennema (M.Sc. Thesis)

    Source: Utrecht University Date: October 28, 2022 URL: https://studenttheses.uu.nl/handle/20.500.12932/43311 https://studenttheses.uu.nl/bitstream/handle/20.500.12932/43311/Thesis%20Mara%20Fennema%20Final%20Version.pdf Language as a predictor of anxiety, depression, and self-efficacy scores...
  17. Sly Saint

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    Abstract Objectives Primary objective: to determine the point prevalence and incidence rate of severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in children aged 5–16 years over 13 months. Secondary objectives: to describe the demographic features, symptoms, impact on activities...
  18. Andy

    The fragile process of Homecoming - Young women in recovery from severe ME/CFS, 2022, Krabbe et al

    Purpose To explore the recovery narratives of 13 young women who had fallen ill with severe Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), during childhood and adolescence, with the focus on what they had to say about their past experiences from the perspective of...
  19. T

    Support Experiences of Children and Youth with ME/CFS and Epilepsy in New Zealand Schools: A Parental Perspective, 2022, Bierre (thesis)

    Support Experiences of Children and Youth with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Epilepsy in New Zealand Schools: A Parental Perspective A thesis presented in partial fulfilment of the requirements for the degree of Master of Science with an Endorsement in Health...
  20. MSEsperanza

    Association between school absence and physical function in paediatric [CFS/ME], 2009, Crawley & Sterne

    Crawley E, Sterne JA. Association between school absence and physical function in paediatric chronic fatigue syndrome/myalgic encephalopathy. Arch Dis Child. 2009 Oct;94(10):752-6. doi: 10.1136/adc.2008.143537. Epub 2008 Nov 11. PMID: 19001477. https://pubmed.ncbi.nlm.nih.gov/19001477/...
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