young people

Tarjei Tørre Asprusten will be defending his thesis "Diagnosis of Chronic Fatigue Syndrome in Adolescents" for the degree of PhD 7th March 2022. Principal supervisor is prof. Wyller. Summary Diagnostic labels as Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME) and Systemic...

https://www.actionforme.org.uk/research-and-campaigns/our-research-work/research-you-can-get-involved-with/ Dr Charlotte Davies webinar on her research on youtube The retrospective experiences of young adults who had Chronic Fatigue Syndrome (takes a few minutes to get going) (she says at...

Full title: Acute and persistent symptoms in children with PCR-confirmed SARS-CoV-2 infection compared to test-negative children in England: active, prospective, national surveillance Abstract Background Most children recover quickly after COVID-19, but some may have on-going symptoms...

Summary: Young people with ME symptoms suffer from extreme fatigue. Many can’t participate in normal social life or go to school. This leads to isolation, discrimination and stigma of being lazy. Via our tool Illornotill.org they find out whether they might have ME/CFS to get help from their...

Abstract Objectives To explore factors perceived as positive or negative among young people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in relation to school and everyday life. Design A qualitative study with semistructured individual interviews performed at the local...

Introduction: Chronic fatigue syndrome (CFS/ME) is a disabling disease severely impacting school attendance, education, and social life in young students. Uncertainties surrounding CFS/ME etiology may impact the interpretation of CFS/ME in schools. Thus, school personnel need information from...

https://www.haaretz.com/israel-news/the-new-frontier-israeli-hopsitals-contend-with-long-covid-in-children-1.10280661 Has anything similar been reported in ME/CFS?

Do adolescents with chronic fatigue syndrome (CFS/ME) and co-morbid anxiety and/or depressive symptoms think differently to those who do not have co-morbid psychopathology? 2020 Loades, Crawley et al Abstract Background Co-morbid anxiety and/or depression is common in adolescents with Chronic...

Abstract The treatment of functional neurological disorder (FND), previously referred to as conversion disorder, can be challenging. Despite these challenges and with increased understanding of this condition, new treatment options are emerging. One such treatment is hypnosis, which has a long...

2 of their interviewees have/had CFS...

Recurrent abdominal pain (RAP) is a common medically unexplained symptom among children worldwide. However, the biological mechanisms behind the development of functional and behavioral symptoms and changes in blood markers have not been well explored. This study aimed to assess changes in the...

Not sure which forum to post this to but it looks interesting. https://www.hindawi.com/journals/prm/2021/6627864/ Research Article | Open Access Volume 2021 |Article ID 6627864 | https://doi.org/10.1155/2021/6627864 Impaired Mitochondrial Bioenergetics Function in Pediatric Chronic...

Health, Wellbeing, and Prognosis of Australian Adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Case-Controlled Follow-Up Study Abstract Background: The purpose of this study was to follow-up an Australian cohort of adolescents newly-diagnosed with ME/CFS at a...

Does the Lightning Process Training Programme Reduce Chronic Fatigue in Adolescent and Young Adult Cancer Survivors? A Mixed-Methods Pilot Study Abstract Background: We report on a pilot intervention study exploring the efficacy of the Lightning Process® training programme for reducing chronic...

A young person who thinks there are effective treatments for cfs. https://bmjpaedsopen.bmj.com/content/5/1/e001165

Highlights • Self-help treatments for young people with persistent physical symptoms are needed. • The evidence on their effect on symptom burden is still scarce. • Psychosocial outcomes are only included in few existing studies. • Hypnotherapy as self-help format shows potential. • Future...

Abstract Objective To investigate the prevalence and features of protracted COVID-19 symptoms in non-hospitalized university students who experienced mild-to-moderate acute illness. Participants COVID-19 positive participants with symptoms ≥ 28 days (N = 22), herein referred to as post-COVID...

Abstract Background The long-term sequelae of coronavirus disease 2019 (Covid-19) in children remain poorly characterised. This study aimed to assess long-term outcomes in children previously hospitalised with Covid-19 and associated risk factors. Methods This is a prospective cohort study of...

Abstract In the present study we conduct a systematic review to evaluate the needs and experience of people with pediatric multiple sclerosis (MS) and their caregivers. The literature search was conducted across 10 academic databases, adhering to PRISMA-P guidelines. Quality appraisal was...

Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and relatively common (1-2% of teenagers). We need to improve treatment but need a well developed Patient Reported Outcome Measure (PROM) to do this. Clinical...