young people

Faith Newton Abstract Children with ME/CFS who are severely ill are bedbound and homebound, and oftentimes also wheelchair-dependent. Very seriously affected children are often too sick for doctor’s office visits, let alone school attendance. The most recent data estimate that 2–5% of children...

Chronic pain syndromes in childhood, 2021, Schechter (Oxford Textbook of Pediatric Pain) Written from a biopsychosocial perspective and looks annoying. I seem to be able to see all or nearly all of it here...

Abstract Psychosocial and socioeconomic adversity in early childhood (termed ‘social adversity’) can have lifelong detrimental effects on health and development. Physiological stress is one proposed mechanism by which social adversity ‘gets under the skin’. There is substantial research...

(I haven't listened to it so cannot comment on content)

"Highlights • Adolescents with CFS, asthma and healthy controls undertook an exercise task. • Those with CFS took longer to complete a laboratory-based exercise task than controls. • They (and their parents) expected to perform worse. • They were more anxious pre-task and rated their performance...

https://bathpsychology.eu.qualtrics.com/jfe/form/SV_e3Q1UfPb2trpOol

Abstract Background: Chronic Fatigue Syndrome (CFS/ME) may get in the way of enjoying activities. A substantial minority of adolescents with CFS/ME are depressed. Anhedonia is a core symptom of depression. Anhedonia in adolescents with CFS/ME has not been previously investigated. Method: One...

P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of recovery and future treatment needs Philippa Clery, MBBS BSc, Jennifer Starbuck, BSc DClinPsy, Amanda Laffan, BSc DClinPsy, Esther Crawley, MBBCh PhD...

Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison Yasmin Moore Teona Serafimova Nina Anderson Hayley King Alison Richards Amberly Brigden Parisa Sinai Julian Higgins Caitlin Ascough Philippa Clery Esther M Crawley Open access...

Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience or are interested in disability activism and disability politics? If you answered yes to these questions then please consider taking part in this...

Background The World Health Organization has recently recognized Long COVID, calling the international medical community to strengthen research and comprehensive care of patients with this condition. However, if Long COVID pertains to children as well is not yet clear. Methods An anonymous...

I haven't searched for more info on this yet. https://www.bristol.ac.uk/academic-child-health/grants/

Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) involves severe fatigue, unrefreshing sleep, and cognitive impairment, leading to functional difficulties; prior studies have not evaluated risk factors with behavioral and immune data collected prior to developing...

Paywall, https://pedsinreview.aappublications.org/content/41/12/630 Sci hub, no access.

Paywall, https://www.cambridge.org/core/journals/behavioural-and-cognitive-psychotherapy/article/medically-unexplained-symptoms-in-children-an-experimental-investigation-of-the-impact-of-internet-searching-on-parental-responses/68F0CD5ACD321F1794551D15B16604CE Sci hub...

https://adc.bmj.com/content/105/Suppl_1/A188.1 PDF

https://adc.bmj.com/content/105/Suppl_1/A56.1

https://adc.bmj.com/content/105/Suppl_1/A189.2

Open access, https://journals.sagepub.com/doi/10.1177/1359104520964528

Free full text: http://www.jnnn.pl/index.php/neurological-and-neurosurgical/article/view/261/269 The Journal of Neurological and Neurosurgical Nursing Pielęgniarstwo Neurologiczne i Neurochirurgiczne THE JOURNAL OF NEUROLOGICAL AND NEUROSURGICAL NURSING eISSN 2299-0321 ISSN 2084-8021...