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Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study): 2021 Stephenson and Crawley

Discussion in 'Epidemics (including Covid-19)' started by Sly Saint, Feb 8, 2021.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  2. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    Poor children and young people
     
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  3. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Stevenson Terence PI. Crawley Esther Co-A. Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study). £1.35 million
     
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  4. cassava7

    cassava7 Senior Member (Voting Rights)

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  5. MEMarge

    MEMarge Senior Member (Voting Rights)

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    September 2019
    National Institute for Health Research (NIHR) Research for Patient Benefit (RfPB) Programme: £149,000. Measuring Health in Children with CFS/ME: Refinement, application and evaluation of new PROM (PEACH) in routine practice. Esther Crawley and Roxanne Parslow. February 2020-2022

    Has anyone heard of this? I vaguely remember that they were doing a study to look at a better fatigue questionnaire than Chalder's.
     
  6. NelliePledge

    NelliePledge Moderator Staff Member

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    What a surprise

    :banghead::banghead::banghead::banghead::banghead:
     
  7. MEMarge

    MEMarge Senior Member (Voting Rights)

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  8. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Another grant, how does she get all this £ ?
    Esther Crawley: Sanofi: Exploring the prevalence of Pompe’s disease in patients diagnosed with CFS/ME: £550,000

    "What is Pompe disease?
    Pompe disease is a genetic disorder in which complex sugar called glycogen builds up in the body’s cells. The disease results from the deficiency of an enzyme called acid alfa glucosidase (GAA), which breaks downs complex sugars in the body. This buildup occurs in organs and tissues, especially in muscles, causing them to break down.

    Mutations in the GAA gene, which helps break down glycogen, cause this disorder."

    from: https://my.clevelandclinic.org/health/diseases/15808-pompe-disease

    Thread on this study here:
    https://www.s4me.info/threads/explo...nts-diagnosed-with-cfs-me-2021-crawley.19060/
     
    Last edited by a moderator: Feb 9, 2021
  9. Shinygleamy

    Shinygleamy Senior Member (Voting Rights)

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    Another stupid title 'Clock' Would be such an easy way to screen out the guff. 1.35 million for that woman is an insult to all that is honourable. I'm seeing the results now: children have long covid because they're traumatised and not going to school.
     
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  10. Shinygleamy

    Shinygleamy Senior Member (Voting Rights)

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    Mmm I'm guessing the ck stands for covid kids what about the clo?
     
  11. Blueskytoo

    Blueskytoo Senior Member (Voting Rights)

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    “clowns”?
     
  12. Trish

    Trish Moderator Staff Member

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    It's explained in the title, apart from the k:
    Children & young people (CYP) with Long Covid (The CLoCk Study)

    All very childish.
     
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  13. chrisb

    chrisb Senior Member (Voting Rights)

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    Presumably it's a mnemonic to remind the children to look at the clock to ensure they go to bed at the right time.
     
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  14. Shinygleamy

    Shinygleamy Senior Member (Voting Rights)

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    It's so banal I wonder why they bothered
     
  15. Esther12

    Esther12 Senior Member (Voting Rights)

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    eidt: I didn't notice that the name was spelt differently, but it still looks like Terence Stevenson could be the new chair of the HRA?

    https://en.wikipedia.org/wiki/Terence_Stephenson

    edit 2: Later confirmed that it is the same guy.
     
    Last edited: Feb 19, 2021
  16. Shinygleamy

    Shinygleamy Senior Member (Voting Rights)

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    Stephenson was most notable for guiding the RCPCH in agreeing 10 published national standards, Facing the Future: Standards for Paediatric Services. This was the first time the College committed publicly to a defined set of standards for all children receiving inpatient care or assessment across the UK.[2][3]

    Interesting as Crawley has had complaints about her treatment of child patients. Stevenson worked at ormond street hospital, which I have previously heard treated m.e. children terribly; no idea what his history with M.E. kids is. But let's hope he's of a differant caliber to his compatriot.
     
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  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Last edited: Feb 20, 2021
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  18. Esther12

    Esther12 Senior Member (Voting Rights)

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    Thanks. It looks like I've made a mistake, but then I cannot find a Stevenson with a 'v', and this one was a paediatric doctor, and one of his top co-authors on researchgate is Rona Moss-Morris: https://www.researchgate.net/profile/Terence_Stephenson

    Maybe Bristol spelt his name wrong? I'll edit my earlier post.
     
  19. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    to clock someone in colloquial english can either be to spot/see someone or to hit them......not sure whether either is appropriate here.:blackeye:
     
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  20. Simbindi

    Simbindi Senior Member (Voting Rights)

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