tba

From: "What Works Now?: Evidence Informed Policy and Practice" I can't see the whole chapter but it looks like there might be something there of interest to some people trying to challenge some supposedly "evidenced-based" claims...

There's on in Norway in March and the IiME one. Is that it? The CMRC are skipping a year, IIRC.

Not that his answer is that bad but that test he references is from Columbia's paper of last year, so not replicated or even available to the general public. https://www.staradvertiser.com/2019/02/13/features/is-chronic-fatigue-syndrome-real/

Source: The Free Press Date: February 12, 2019 Author: Arron Evans URL: https://www.denbighshirefreepress.co.uk/news/17426299.julia-flaherty-40-is-up-for-the-princes-trust-mentor-of-the-year-prize/ Ref: https://www.itv.com/goodmorningbritain/news/the-princes-trust-mentor-of-the-year-award...

https://allieseverywhere.org/2019/01/30/cfs-and-feeling-like-a-failure/

http://www.disabledpolice.info/life-in-the-slow-lane/ Also hosted here, http://www.policesupers.com/2019/02/04/life-in-the-slow-lane/ (same blog, just different website). ETA: Additional host.

Not about ME at all but some of the issues discussed could be interesting since IL-6 pops up in some ME studies. Looks at effects of exercise (eek!) and of an IL-6 receptor blocking drug (with and without exercise) and how IL-6 signalling influences various metabolic and other processes like...

Is Ubiome introducing a new biomarker or diagnostic for ME? "The patented technology involves diagnosing an endocrine system condition such as chronic fatigue syndrome, Graves’ disease, Hashimoto’s thyroiditis, metabolic disease, obesity, and Type I and II diabetes, and generating a therapy...

Ooops. That conference was Feb 2018. I'm losing it. Sorry Here is the link I had in the original post. https://www.umdf.org/symposium/pacific/ I have gone to many different UMDF regional conferences. I'm sorry I missed this one. In January, I'll be writing 2018 on my checks for the first...

There seems to be interest in this idea from another thread: Discuss! :)

Some news from the recently formed ME/CFS Discovery Research Network (MDRN), a group of Australian researchers collaborating on ME/CFS, about their upcoming research workshop. This group includes members of Melbourne Bioanalytics: Chris Armstrong, Neil McGregor and Don Lewis. I’ll post an update...

1CellBio and the Open Medicine Institute Join Forces to Demonstrate Power of Single-Cell RNA Sequencing in Precision Medicine Applications https://www.businesswire.com/news/home/20181113005156/en/1CellBio-Open-Medicine-Institute-Join-Forces-Demonstrate Exerpt

I'm involved in various awareness-raising initiatives aimed at both the general public and health/medical professionals so thought there might be something of interest in this. Unfortunately, I found very little of interest and I imagine most people could find better things to spend their time...

This thread has been split from the Stanford Community Symposium 2018 thread. (Copied post) I'm enjoying it. I'm not sure I'll remember much of it, but I like that I'm seeing that there's real progress towards understanding at least some of what it going on. One interesting point from Maureen...

This thread has been split from the Stanford Community Symposium 2018 thread. It covers the presentation by Wenzhong Xiao and comments related to OMF studies (e.g. Severely Ill Patient Study) by Ron Davis. Did I hear Xiao say BDNF being different was a new finding?? There have been others from...

Does anyone on the forum have any of the MPs listed in the link below as their MP please? https://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-committee/membership/ As well as belonging to a FB ME group within my County, I am also a member of a...

Bruce Levin on "How Not to Conduct a Randomized Clinical Trial" last week Professor Levin took his criticism a step further with a public talk about PACE at Columbia. The talk was called, appropriately enough, “How Not to Conduct a Randomized Clinical Trial.” For the last couple of years, I...

Necessary8 on PR had an intriguing hypothesis which developed over the course of the past year. Some was beyond me, but i i found it insightful and vety interesting. It made me want to find out more. He has a newer hypothesis ( which I will leave til tomorrow as my coffee quota is up today) ...

Informative article with interview with IC professor Betsy Keller. Lovely to hear from one of the research centres that recently received allocations from NIH. Tireless work on Chronic Fatigue Syndrome Now she is among the leaders of a new ME/CFS collaborative research center based at Cornell...

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