tba

https://www.indiaabroad.com/health/mysterious-chronic-fatigue-syndrome-shuts-down-young-adults-lives/article_693fcce2-190e-11e8-a7b3-7f1e6e75dcc8.html Overall a good article that quotes many of the usual suspects: Montoya, Dimmock, Davis. Overall, the article is very California-centric, and...

Saw this on Twitter. Whilst it seems a good idea, it may strike the wrong chord with some for ME. On phone so can't cut and paste large bodies of text

http://www.bbc.com/news/uk-england-43293581 Now that we have been categorised as MUS and demonised for overusing doctors (even though many of us avoid any engagement with the health service at all), is this little "Blimey that's outrageous" story a prelude to the demonisation of all the "MUS...

Data science company IQuity has announced the launch of a new blood test called IsolateFibromyalgia, which uses RNA gene expression analysis to diagnose fibromyalgia, according to a press release. 'RNA analysis is a cutting-edge tool for doctors that has great potential in the field of medical...

The speaker for this new event in memory of Anne Örtegren at the 13th International Invest in ME Research Conference in London on 1st June 2018, is Professor Theoharis C. Theoharides, Professor of Pharmacology and Internal Medicine at the Director of Molecular Immunopharmacology and Drug...

No need to repeat that 'fatigue' can be hard to describe and even harder to demonstrate objectively. A new blog on health rising suggests that deterioration in rapid eye movements (aka saccades where both eyes move rapidly to scan or fixate on a target) may objectively demonstrate increasing...

From Stanford: Exercise elevates blood signature difference between people with, without chronic fatigue syndrome https://scopeblog.stanford.edu/2018/02/15/exercise-elevates-blood-signature-difference-between-people-with-without-chronic-fatigue-syndrome/

Is this common knowledge? Does anyone know why? Will it be back? I don't have accounts for Twitter or Facebook so I can't ask.

Invest in ME Research added an extra day to their international biomedical research events in 2018. The new event is provisionally titled 'Thinking the Future' and takes place in London on 29th May 2018 (prior to their two-day biomedical research into ME colloquium on 30th-31st May and one-day...

i am collecting a list of diseases in which it is possible for an individual to have more symptoms than most pwme. what diseases are known to be /highly/ polysymptomatic? for example, some descriptions of m.e. [iirc stanford or omf] mention 60 or so. what diseases can have that many or more...

The NIH/CDC are deciding on the “common data elements“, CDE, that must be collected in all studies they fund. And they’ve asked for patient comments on the draft proposals by 31 January. Perhaps the most important of the CDEs covers PEM, as the cardinal symptom of the illness. The PEM subgroup...

"On its official web site The Russell Group claims that its membership of research-intensive universities are world-class institutions that share certain distinguishing characteristics. These include a commitment to: “maintaining the very best research”; something which enables them to have...

REF2021 is really important to UK universities for the assessment of their research, and the allocation of future research funding. I only just saw this, and expect it may be too late for people to sort out: http://www.ref.ac.uk/about/nompan/ The last REF project seemed totally credulous in...

From Science Alert: This is what power does to your brain and body.

I don't know if this is the right forum section to post this in, but... this was brought to my attention. Has anybody heard of it? Utterly cringeworthy first sentence. Granted, it talks about 'chronic fatigue', but then goes on using the term CFS/ME... Note the underlined words and the CAPS...

Full title - Investigation of mast cell toll-like receptor 3 in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and Systemic Mastocytosis participants using the novel application of autoMACS magnetic separation and flow cytometry. https://www.ncbi.nlm.nih.gov/pubmed/29223146

What showing up looks like for someone with chronic illness - by Christina Baltais. - So what does “showing up” for someone with chronic illness actually look like? These are the ways my online ME/CFS community felt the greatest support, when asked to reflect on instances since their ME/CFS...

Abstract - https://www.spandidos-publications.com/10.3892/br.2017.1024 Full paper as a PDF download - https://www.spandidos-publications.com/br/8/1/26/download

Wonder if someone could help clarify things please. Is the CycloME Part A trial being published any time soon? Does the results from rituximab lower expectations for the results for cyclo? Also, what is the theory behind cyclo working in ME? Thanks