tba

[Please repost in full - thanks!] The full NAME-US.org website is now archived here: https://web.archive.org/web/20180712184807/http://www.name-us.org/ Research articles, most Definitions, and many other article links should all be intact; I originally converted most of those to on-site PDFs...

I wasn't sure where to put this as it was in a Psychology magazine but it looked more scientific than that. Source: Frontiers in Psychology Preprint Date: July 26, 2018 URL: https://www.frontiersin.org/articles/10.3389/fpsyg.2018.01468/abstract Visual aspects of reading performance in...

ME Association: Dr Shepherd provides an update on antibiotic use in M.E. and highlights concerns about quinolones and fluroquinolones...

Just when I thought the narrative about ME and ME patients had turned a corner, along comes this "canard". Yikes, it's bad! https://www.forbes.com/sites/julianvigo/2018/06/27/resistance-to-science-and-technology/#2fd6be142bd4 "Science has been up for debate regarding many illnesses and issues...

If there is to be a full parliamentary debate in the House of Commons in the autumn I believe we need to be in a position of not just discussing what has gone wrong for ME sufferers but also what we want to begin to put it right. Could a possible question and suggestion for the Health and...

http://www.meassociation.org.uk/2018/06/the-2018-invest-in-me-research-conference-report-dr-charles-shepherd-14-june-2018/ The 2018 Invest in ME Research Conference Report – Dr Charles Shepherd | 14 June 2018 Dr Charles Shepherd provides a summary report of the 13th Invest in ME Research...

As an aside, Komaroff is an editor for UpToDate's CFS content, which still promotes CBT/GET. The content screenshotted below was "last updated: Apr 10, 2018." https://www.uptodate.com/contents/treatment-of-chronic-fatigue-syndrome-systemic-exertion-intolerance-disease

Ken Friedman sent me this and asked me to highlight it --- A Narrative Synthesis for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome The conceptualization of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (from here on referred to as ME/CFS) has classically been...

An article by Cort about the ME/CFS conference in Canada https://www.healthrising.org/blog/2018/05/16/montreal-me-cfs-i-metabolism-the-main-matter-more-exercise-issues-plus-bad-brain-motor/

At the link you can get the time for your timezone. https://register.gotowebinar.com/register/4424604504971632643

News article about HHV-6 research, with a reference made to Chronic Fatigue Syndrome. https://www.eurekalert.org/pub_releases/2018-04/hzm--hrg042718.php

While "Googling", the following commentary showed up as a press release ( NewsReleaseWire.com ) and is timely, leading up to awareness day next month: https://www.expertclick.com/NewsRelease/Mercy-for-Millions-Myalgic-EncephalomyelitisChronic-Fatigue,2018156745.aspx A few excerpts: "If you've...

Very interesting thing on Health Rising: According to Cort, 'A top Harvard neurologist has suggested that the ME/CFS community look into participating in one of most ambitious medical projects ever attempted. If you live in the United States and are over 18, you are invited.' Looks like a big...

Hey folks, I'm trying to find the quote or link to the apology (maybe a year ago) by a Scandinavian (I think) Prime or Health Minister to ME patients. Any one have that info? Thanks much, Scott

"PHILADELPHIA, Nov. 15, 2017 (GLOBE NEWSWIRE) -- Hemispherx Biopharma (NYSE American:HEB) announced today its financial results for the third quarter ended September 30, 2017." "We have secured our first country approval for Ampligen® in ME/CFS and we expect several more in the coming years."...

I've not been able to get the full text for this, but thought that it might be of interest to people: https://www.magonlinelibrary.com/doi/abs/10.12968/bjhc.2018.24.3.112 It looks likely that it is sympathetic. The author previously wrote this...

http://www.meresearch.org.uk/our-studies/rituximab-biomarker-study-update/ "Last year, we reported on a newly funded study aimed at developing a biomarker to help predict patients who will respond to treatment with rituximab. Unfortunately, this study will not now be going ahead." "Although...

Quick question, when is the Cyclophosphamide paper due? It was my understanding it was due early 2018... Thank you. Looking forward to the paper.

Anyone interested in applying? DEPARTMENT OF HEALTH AND HUMAN SERVICES Solicitation for Applications from Individuals Interested in Being Appointed to the Chronic Fatigue Syndrome Advisory Committee https://s3.amazonaws.com/public-inspection.federalregister.gov/2018-05833.pdf