research

Here's a weird one: A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up. https://www.frontiersin.org/articles/10.3389/fpsyt.2018.00720/abstract These people seem to be implying that four days of CBT will fix your "CFS/ME"...

Don't know who this flyer is being given/sent to: http://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/PCFS005_PCFSME_Research_Flyer.pdf

Forum member @JaimeS and her assistant Julia has written an extensive news roundup for September and October. It contains among other news from research, conferences and talks, medical news, science advocacy news, books & media and even Science4ME's 1. anniversary. Well done! #MEAction: Sept...

https://www.nature.com/articles/d41586-018-07118-1

https://www.sciencemag.org/careers/2016/03/how-seriously-read-scientific-paper

Shame about the title. "The association and the Geisel School of Medicine at Dartmouth are hosting a screening and panel discussion of Unrest at Dartmouth-Hitchcock Medical Center on Tuesday." "At least two Upper Valley clinicians seeking to improve the medical community’s understanding of...

We're having a meeting next week with a Senior Policy Advisor from Health Canada. She already had a meeting with a ME patient a week or so ago, and it was via that patient that Millions Missing Canada is getting this meeting. Part of our messaging is to frame ME research as an opportunity for...

A brightening future: the state of ME/CFS research - ME/CFS Research Review Although there are no treatments for ME/CFS on the horizon, things are looking up thanks to recent findings and a substantial increase in the amount of high-quality research. The field still needs much more...

I'm trying to get an answer to the following two questions on the BPS treatment trial evidence base and wonder if anyone knows off the top of their head. I'm just looking for a very rough estimate and am not asking for anyone to do any research AHRQ did its evidence review based on studies in...

Epigram: Senior Bristol researcher resigns after admitting to research misconduct A researcher at the University of Bristol’s school of molecular and cellular medicine resigned this summer after investigations were started into allegations of ‘fabricating data’ and bullying in the lab.

The ME Association has been working for some time with Dr Karl Morten and the research team at Oxford who have recently been honing their approach to the study of metabolomics in ME/CFS. Before embarking on a new study utilising samples from the ME/CFS Biobank for the ME Association, they have...

Article on a proposed way to change how funding is allocated. https://www.nature.com/articles/d41586-018-05887-3

https://www.meaction.net/2018/08/08/july-2018-scientific-studies/

Thought this was interesting http://www.sciencemag.org/news/2016/02/why-do-our-cells-power-plants-have-their-own-dna

http://occupyme.net/2018/07/23/nih-2017-funding-fact-check/

The European ME Alliance has been a member organisation of the European Federation of Neurological Associations since 2015 (https://www.efna.net/emea/) This survey by EFNA includes M.E. https://www.surveymonkey.com/r/EFNA-YS It's open until 21st May and findings will be published on World...

Editorial: UK life science research: time to burst the biomedical bubble The precariousness of life science research in the UK can also be traced back to a lacklustre approach to research integrity. Research misconduct, questionable research practices, and a reliance on publication numbers as a...

https://www.nihr.ac.uk/blogs/why-study-registration-is-important-for-the-future-of-research/8828

This may be done elsewhere on the site, but I thought it would be interesting to see what research patients would like to see. Perhaps if there is enough then we could do some sort of briefing paper with ideas for Chris Ponting.

https://www.ucsf.edu/news/2018/07/411031/crispr-toolkit-unlocks-new-ways-fight-disease