research

A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the impact of ME on 2 million people in the EU and the lack of EU funding for ME Research. I'd be grateful if you would consider supporting it (and ask...

I think Science For ME should submit a response. Patients with ME and various other illnesses have been abandoned and a good way to change this is to invest in research to identify biomarkers and the underlying disease process...

My aim with this is to draw together brief details of all the ME/CFS (and all other variants on that name) research funded by a public, private or charity UK source that is currently ongoing today. I’m relying on information that has been made publicly available, so there is a good chance I...

Full article = https://www.meaction.net/2019/06/12/meaction-releases-an-updated-me-research-summary/ Direction link to PDF file = http://www.meaction.net/wp-content/uploads/2019/06/19_MEA_Revised_2019_Research_Summary_190610.pdf Many thanks to @JaimeS and the whole ME Action team!

Moderator note: This post has been copied, and posts discussing it moved from this thread: Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK The MRC do not work like the American NIH. The NIH earmark a certain amount of money for each category of "illness"...

please can people comment on the reasons why if they wish I’m trying to see what the views are and why on this matter Basically the MRC are in talks with the CMRC over a funding proposal for extending the uk biobank and doing genetics research (this is taking a long time ) and have an...

The Norwegian ME Association donated on May 12th funds for two research projects. One of the research projects is by Fluge, Mella and their team. They want to try and find more objective ways to measure changes in patients enrolled in clinical trials by continuous measurement of physical...

Hope this is the right place to put this, and that it's not a repeat: Station: Cornell University Date: April 28, 2019 WebTV: https://neuroimmune.cornell.edu/videos/NIH_ME-CFS_April2019_BetsyKeller.mp4 Rem: NIH Accelerating Research on ME/CFS meeting Item: Betsy Keller (Just copying from...

Has anyone done a breakdown of funding between the two camps? Ideally I'd like something for UK, and global: BPS research $ per year, biomedical $ per year. Clearly there would be some room for argument - for example a biomarker paper that mentions CBT as useful. I feel a useful argument to...

Received this email from OMF

This is an opportunity for members of the public to attend a free workshop: 'The workshop will give you an introduction to research and the tools and skills needed to find research evidence relating to health and assess its reliability.'...

With that title I thought it was going to be some kind of mega, meta-post by @dave30th on all BPS studies but apparently not.. ;) And thanks Dave for the links to the forum again. &

Title pretty much says it all, or perhaps another way of asking the question is "What would be the ideal way that researchers could accommodate pwME in their research (in an advisory role or otherwise)"? Thread is partly inspired by this tweet ETA: Ironically, Joan is asking for suggestions...

Researching ME/CFS has been hard, in part, because there isn't always "obvious" areas to look and the symptoms are often global. I'm proposing an area of research that might be of interest is non-allergic rhinitis. I have this in chronic, un-remitting form not caused by allergies, and which...

I had not heard of this 'charity' before. https://acmedsci.ac.uk/ Unfortunately Simon Wessely is also connected and frequently takes part in their events. But, just maybe there are people who might be able to give a really 'independent' objective review of PACE and related issues? eg...

https://www.vox.com/future-perfect/2019/1/18/18183939/science-funding-grant-lotteries-research Excerpt: Our current grant review process doesn’t select the best proposals, by a long shot. One study found very little correlation between how a grant was scored and whether the research it produced...

Just the image Considered putting this in the thread that is talking about research duplication/self-plagiarism but thought it was worth it's own thread.

An article from 2015 but might be of interest. https://theconversation.com/goodbye-p-value-is-it-time-to-let-go-of-one-of-sciences-most-fundamental-measures-38057

https://thepsychologist.bps.org.uk/volume-31/october-2018/does-psychology-face-exaggeration-crisis Seems to me that many of the things he talks about aren't exclusive to the psychology world.