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Betsy Keller in NIH Accelerating Research on ME/CFS meeting

Discussion in 'General ME/CFS news' started by MeSci, Apr 29, 2019.

  1. MeSci

    MeSci Senior Member (Voting Rights)

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    ahimsa, Wonko, Trish and 2 others like this.
  2. Trish

    Trish Moderator Staff Member

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    It doesn't work for me. I get a dark screen with the little start triangle at the bottom left. Click that and nothing happens. ????
     
    Wonko and Andy like this.
  3. Wonko

    Wonko Senior Member (Voting Rights)

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    Doesn't work in chrome for me, but does in Tor, so maybe firefox would work?
     
    MeSci and Andy like this.
  4. Andy

    Andy Committee Member

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    I suspect you are using the Chrome browser? The other video from Cornell that I just posted doesn't work in Chrome for me for some reason, I had to swap browsers for it to play for me, and the same seems to be the case here.
     
    Trish likes this.
  5. Alvin

    Alvin Senior Member (Voting Rights)

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    Its a direct to mp4 link, i'm surprised chrome can't handle that
    But it looks like its her piece from the NIH conference so you can watch it there or if you already watched then you already seen it

    Perhaps you can right click and save it to computer on chrome and watch on your computer with VLC or other software?
     
    Wonko, Andy and Trish like this.
  6. Trish

    Trish Moderator Staff Member

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    Thanks, you're right, I use Chrome. I'll watch it from the NIH site.
     
    Wonko and Andy like this.
  7. Lisa108

    Lisa108 Senior Member (Voting Rights)

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    For me, it does.
     
    Trish, MeSci, Ebb Tide and 2 others like this.
  8. ahimsa

    ahimsa Senior Member (Voting Rights)

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    That was an interesting presentation. Thanks for sharing the link, @MeSci :)

    There were a lot of good slides, too many to include here. But here's one from near the end of her talk (at about minute 25) when she says that many problems in ME patients seem to point to autonomic dysfunction.

    I think the items in red are things that have been measured by her team. Other items are from other studies? Not sure.

    Betsy Keller slide - Autonomic Dysfunction.png


    PS. For those who were having trouble with the video -- I used Firefox on a Macbook and it worked fine.
     
    mango and rvallee like this.
  9. MeSci

    MeSci Senior Member (Voting Rights)

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    My BP is high, at least since 2004/5. It was normal until then (for about 10 years of ME).
     
    Trish and ahimsa like this.
  10. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Does a patient have to have low resting blood pressure to have some form of autonomic dysfunction? I don't think so but I could be mistaken.

    Or maybe there are different subsets of ME patients?

    I'm not a doctor, have no medical background, plus I have brain fog. So that means that I can't understand all the details of her presentation! Maybe someone else will weigh in with more details.
     
    Mij likes this.

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