Betsy Keller in NIH Accelerating Research on ME/CFS meeting

[MeSci]

Hope this is the right place to put this, and that it's not a repeat:

Station: Cornell University

Date: April 28, 2019

WebTV:
https://neuroimmune.cornell.edu/videos/NIH_ME-CFS_April2019_BetsyKeller.mp4

Rem: NIH Accelerating Research on ME/CFS meeting

Item: Betsy Keller

(Just copying from an email)

 

[Trish]

It doesn't work for me. I get a dark screen with the little start triangle at the bottom left. Click that and nothing happens. ????

 

[Wonko]

Doesn't work in chrome for me, but does in Tor, so maybe firefox would work?

 

[Andy]

It doesn't work for me. I get a dark screen with the little start triangle at the bottom left. Click that and nothing happens. ????

I suspect you are using the Chrome browser? The other video from Cornell that I just posted doesn't work in Chrome for me for some reason, I had to swap browsers for it to play for me, and the same seems to be the case here.

 

[Alvin]

Its a direct to mp4 link, i'm surprised chrome can't handle that
But it looks like its her piece from the NIH conference so you can watch it there or if you already watched then you already seen it

Perhaps you can right click and save it to computer on chrome and watch on your computer with VLC or other software?

 

[Trish]

Thanks, you're right, I use Chrome. I'll watch it from the NIH site.

 

[Lisa108]

so maybe firefox would work?

For me, it does.

 

[ahimsa]

That was an interesting presentation. Thanks for sharing the link, @MeSci

There were a lot of good slides, too many to include here. But here's one from near the end of her talk (at about minute 25) when she says that many problems in ME patients seem to point to autonomic dysfunction.

I think the items in red are things that have been measured by her team. Other items are from other studies? Not sure.




PS. For those who were having trouble with the video -- I used Firefox on a Macbook and it worked fine.

 

[MeSci]

View attachment 7091

My BP is high, at least since 2004/5. It was normal until then (for about 10 years of ME).

 

[ahimsa]

My BP is high, at least since 2004/5. It was normal until then (for about 10 years of ME).

Does a patient have to have low resting blood pressure to have some form of autonomic dysfunction? I don't think so but I could be mistaken.

Or maybe there are different subsets of ME patients?

I'm not a doctor, have no medical background, plus I have brain fog. So that means that I can't understand all the details of her presentation! Maybe someone else will weigh in with more details.