research

  1. John Mac

    Article: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Human Herpesviruses Are Back! 2021, Ariza

    https://www.mdpi.com/2218-273X/11/2/185
  2. Sly Saint

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    I haven't searched for more info on this yet. https://www.bristol.ac.uk/academic-child-health/grants/
  3. rvallee

    Measurement Schmeasurement: Questionable Measurement Practices and How to Avoid Them

    In this article, we define questionable measurement practices (QMPs) as decisions researchers make that raise doubts about the validity of the measures, and ultimately the validity of study conclusions. Doubts arise for a host of reasons, including a lack of transparency, ignorance, negligence...
  4. M

    Studies and data on Post-exertional malaise (PEM)

    PEM has become a mandatory symptom in many CFS guidelines, so I would expect that there is plenty of data of monitored patients during the malaise/fatigue interval because this is when the disease's mechanism of action is amplified and certain biomarkers should stick out and be clearer. Maybe...
  5. ahimsa

    Solve ME/CFS: $547,000 Awarded from Defense Department for ME/CFS Research

    Solve ME/CFS tweeted this today:https://twitter.com/PlzSolveCFS/status/1319407326621827078 I wanted a bit more info so I searched their website and found this (scroll down past the invisible disabilities week info)...
  6. Andy

    COVID-19 Patient Experience Survey #2

    https://patientresearchcovid19.com/survey2/
  7. ME/CFS Skeptic

    Biomedical research findings in ME/CFS that were replicated by multiple groups - discussion thread

    I'm hoping to get an overview of biomedical abnormalities found in ME/CFS that were replicated by multiple groups. I realize that, due to the paucity of research, most of the findings are unimportant and non-specific with some inconsistencies in the findings but I still think it would be useful...
  8. rvallee

    Research underway related to Long Covid

    https://clinicaltrials.ucsf.edu/trial/NCT04362150
  9. Andy

    Research update: The relation between ME/CFS disease burden and research funding in the USA, 2020, Mirin et al

    Paywall, https://content.iospress.com/articles/work/wor203173 Sci hub, https://sci-hub.tw/10.3233/WOR-203173
  10. Hoopoe

    Members of the European Parliament call for more funds for research into ME/CFS

    Link to the article https://www.europarl.europa.eu/news/en/press-room/20200615IPR81245/me-cfs-meps-call-for-more-funds-for-research-into-complex-illness
  11. Sly Saint

    US: Sen. Cramer, Bipartisan Group of Colleagues Call for ME/CFS Medical Research Funding in Any COVID-19 Relief Package 28 May 2020

    "Senator Kevin Cramer joined a bipartisan letter led by Senator Ed Markey (D-MA) today calling on Senate Leadership to prioritize medical research funding for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in any upcoming coronavirus relief package. Click here for the text of the...
  12. ahimsa

    Heart Rate Thresholds to Limit Activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (Pacing) - 2020 - van Campen, Rowe, Visser

    Heart Rate Thresholds to Limit Activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (Pacing): Comparison of Heart Rate Formulae and Measurements of the Heart Rate at the Lactic Acidosis Threshold during Cardiopulmonary Exercise Testing C. (Linda) M. C. van Campen, Peter C...
  13. Sly Saint

    Article by Prof Warren Tate (NZ): Research unveiling the ‘invisible illness’ May 2020

    short article; rest here http://www.thestar.co.nz/features/research-unveiling-the-invisible-illness/
  14. obeat

    Covid-19 - Psychological research and treatment

    It would be great if this crisis killed off behavioural sciences. Asking people to change behaviour doesn't work. Wessely and Gerada media appearances have been flipant. __________________ This post was copied from this thread and some responses moved: Trial By Error: What Now?
  15. Andy

    UK: Workshop: "What big research questions do people with M.E., their carers and clinicians want answered?", 10th March 2020

    https://www.eventbee.com/v/free-research-workshop/event?eid=119084524
  16. InfiniteRubix

    Closed New undergraduate research on the sociology of ME

    Hi all, Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son : Hello! I am a fourth-year student at the University of Aberdeen studying a joint honours degree in International Relations-Sociology. I am currently doing my Bachelor's...
  17. Sly Saint

    UK - £58.7 million funding boost for research to protect the health of the nation Jan 2020

    https://www.nihr.ac.uk/news/new-587-million-funding-boost-for-research-to-protect-the-health-of-the-nation/23835
  18. Sly Saint

    Australia - New Opportunities: Heart Foundation Partnership Engagement Grants round one 2020 now open

    https://research.flinders.edu.au/rp/Blog/14483-A/new-opportunities-heart-foundation-partnership-engagement-grants-round-one-2020-now-open
  19. Sly Saint

    The ME Association Weekly ME/CFS Research Round-up - 2020

    https://www.meassociation.org.uk/2020/01/the-me-association-weekly-me-cfs-research-round-up-17-january-2020/
  20. Simon M

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Brian Vastag asked me to post this here as he isn’t on Science 4 ME. Hi - I'm nearing the end of week 2, visit 2 of the NIH study. Thought that I'd reiterate to the community that the study is still recruiting and still needs patients. To volunteer, contact patient coordinator Angelique Gavin...
Back
Top Bottom