In this article, we define questionable measurement practices (QMPs) as decisions researchers make that raise doubts about the validity of the measures, and ultimately the validity of study conclusions. Doubts arise for a host of reasons, including a lack of transparency, ignorance, negligence...
PEM has become a mandatory symptom in many CFS guidelines, so I would expect that there is plenty of data of monitored patients during the malaise/fatigue interval because this is when the disease's mechanism of action is amplified and certain biomarkers should stick out and be clearer. Maybe...
Solve ME/CFS tweeted this today:https://twitter.com/PlzSolveCFS/status/1319407326621827078
I wanted a bit more info so I searched their website and found this (scroll down past the invisible disabilities week info)...
I'm hoping to get an overview of biomedical abnormalities found in ME/CFS that were replicated by multiple groups. I realize that, due to the paucity of research, most of the findings are unimportant and non-specific with some inconsistencies in the findings but I still think it would be useful...
Link to the article https://www.europarl.europa.eu/news/en/press-room/20200615IPR81245/me-cfs-meps-call-for-more-funds-for-research-into-complex-illness
"Senator Kevin Cramer joined a bipartisan letter led by Senator Ed Markey (D-MA) today calling on Senate Leadership to prioritize medical research funding for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in any upcoming coronavirus relief package.
Click here for the text of the...
Heart Rate Thresholds to Limit Activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (Pacing): Comparison of Heart Rate Formulae and Measurements of the Heart Rate at the Lactic Acidosis Threshold during Cardiopulmonary Exercise Testing
C. (Linda) M. C. van Campen, Peter C...
It would be great if this crisis killed off behavioural sciences. Asking people to change behaviour doesn't work. Wessely and Gerada media appearances have been flipant.
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This post was copied from this thread and some responses moved: Trial By Error: What Now?
Hi all,
Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son :
Hello! I am a fourth-year student at the University of Aberdeen studying a joint honours degree in International Relations-Sociology. I am currently doing my Bachelor's...
Brian Vastag asked me to post this here as he isn’t on Science 4 ME.
Hi - I'm nearing the end of week 2, visit 2 of the NIH study. Thought that I'd reiterate to the community that the study is still recruiting and still needs patients. To volunteer, contact patient coordinator Angelique Gavin...
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