Article by Prof Warren Tate (NZ): Research unveiling the ‘invisible illness’ May 2020

Sly Saint · May 9, 2020

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in New Zealand affects about 0.4% of the population.

There will be up to 100 affected among our university student population.

It is not surprising then when I mention our ME/CFS research in a lecture, those affected make contact.

When they talk to me they initially seem healthy, bright and interactive (invisible illness

But having been part of an ME/CFS family now for 30 years, I understand they have rested and prepared for the visit, and after relatively short conversation fatigue often sets in.

This phenomenon explains why health practitioners and social agencies without a good knowledge of the illness are perplexed; indeed there are examples of Work and Income-required designated doctor consultations of seven minutes resulting in pronouncement that the ME/CFS patient can work full-time, despite being housebound long-term by the ravages of their “invisible” illness.

For this reason my research group’s focus has been to lift the “veil of invisibility” and find biological explanations for the illness.
Click to expand...

short article; rest here
http://www.thestar.co.nz/features/research-unveiling-the-invisible-illness/

DokaGirl · May 9, 2020

Yes, bed rest for 3 days before Dr.appt. 5 minute appt. Maybe did OK in that short appt. Dr. didn't believe I'm house, and often bed bound. Have to repeat this protocol, therefore continues to risk disbelief. Cannot go to Dr. if feel extra ill.

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Article by Prof Warren Tate (NZ): Research unveiling the ‘invisible illness’ May 2020

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Article by Prof Warren Tate (NZ): Research unveiling the ‘invisible illness’ May 2020

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