research

Brian Vastag asked me to post this here as he isn’t on Science 4 ME. Hi - I'm nearing the end of week 2, visit 2 of the NIH study. Thought that I'd reiterate to the community that the study is still recruiting and still needs patients. To volunteer, contact patient coordinator Angelique Gavin...

Nobel Prize Winner Frances Arnold Retracts Paper, Here Is The Reaction By Bruce Y. Lee - Forbes (Jan 5, 2020)

https://www.nature.com/articles/d41586-019-03909-2

https://www.medscape.com/viewarticle/923234?nlid=133271_3901&src=wnl_newsalrt_191230_MSCPEDIT&uac=302719CG&impID=2228388&faf=1 and it gets even worse...

This article was originally behind a paywall. full text here: https://www.bmj.com/content/367/bmj.l7064?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage

Some of the commonly proposed explanations for the current lack of funding (of everything): Misogynism, because ME/CFS affects more women than men. Wessely and others said it's deconditioning and (basically) hypochondria and that's why people don't see a need to do biomedical research into...

I thought some folks would be interested in the work of Elizabeth Bik who is a microbiome researcher now investigating research integrity & misconduct. She has found between 4-6% of biomedical papers have image duplication. Some are honest mistakes, others are blatant image manipulation...

'Women have been woefully neglected': does medical science have a gender problem?

thanks to @Ben H eta: youtube generated transcript pt 1

Today, in ME headlines of the future: The maddening saga of how an Alzheimer’s ‘cabal’ thwarted progress toward a cure for decades Familiar themes: Almost feel like crying seeing those numbers and "woefully insufficient": I hope discussion of this makes an opening to make it known that the...

http://www.investinme.org/IIMER-PR-20191201.shtml

Interesting read. don't know if there is any way for people to show support to the creator of sci-hub? https://www.theguardian.com/science/2017/jun/27/profitable-business-scientific-publishing-bad-for-science?CMP=share_btn_tw

Trish Greenhalgh is professor of primary care health sciences at the University of Oxford. https://blogs.bmj.com/bmj/2019/11/12/trisha-greenhalgh-towards-an-institute-for-patient-led-research/ see also this thread...

The following posts have been moved or copied from this thread. With all due respect, don't you all think it's more important that orgs like MEAction be pressed on issues like taking more radical direct action (a la ACT UP) ensuring greater funding for this illness, than petition them about...

https://www.meassociation.org.uk/2019/10/mea-press-release-vital-new-research-could-lay-bare-the-cause-of-one-of-worlds-cruellest-illnesses-23-october-2019/

Come along and hear about recent research that is informing guidance for management of Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Dr Eiren Sweetman from the University of Otago will overview recent key research findings from the US, Norway, Australia, and Otago...

I thought it might be good to have a thread where members can post and discuss the 'evidence' that governments and health insurers use to promote the idea that 'work is good for health'. This thread is for discussing the evidence for the general concept, rather than evidence specifically...

From frontiers in Pediatrics https://www.frontiersin.org/articles/10.3389/fped.2019.00370/full

So the big European MS meeting just finished a couple of days ago. The scientific program book is 131 pages long for a three day meeting!! https://www.professionalabstracts.com/ectrims2019/programme-ectrims2019.pdf Why is there so much more MS research than MECFS research? Are there really...

I recently listened to this podcast episode by Malcolm Galdwell. It is about the researchers involved in the discovery of retroviruses and the paradigms they had to break through and how these scientist in the early days were thought to be crackpots. It is a story familar to any of us who follow...