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  1. Andy
    Thread

    Blog: A Journey Through The Fog: "How the World Became More Accessible During the Covid-19 Pandemic"

    https://www.ajourneythroughthefog.co.uk/2021/04/how-the-world-more-accessible-covid-19-pandemic/ "Over the past year through the lockdowns and...
    Thread by: Andy, Apr 11, 2021 at 8:52 AM, 0 replies, in forum: General disability topics and advocacy
  2. Andy
    Thread

    Blog: "The Death Threat Myth Exposed", Jennie Spotila

    Last week, an old story was recounted to a new audience. During the March 30, 2021 NIH telebriefing with the ME/CFS community, Dr. Vicky...
    Thread by: Andy, Apr 6, 2021, 41 replies, in forum: General ME/CFS News
  3. Andy
    Thread

    Blog - Hypothesis: ME/CFS as a Breakdown in Homeostasis, 2021, Marks

    https://davidfmarks.com/2021/03/08/me-cfs-as-a-breakdown-in-homeostasis/ Here I present a new theory of myalgic encephalomyelitis/chronic fatigue...
    Thread by: Andy, Mar 8, 2021, 11 replies, in forum: BioMedical ME/CFS Research
  4. Hutan
    Thread

    CBT Watch - blog

    An active blog focused on claims relating to CBT and IAPT, by Dr Mike Scott. http://www.cbtwatch.com It describes itself as 'An Independent...
    Thread by: Hutan, Mar 4, 2021, 3 replies, in forum: PsychoSocial ME/CFS News
  5. Andy
    Thread

    UK: NICE Blog: How NICE is improving patient safety, Nov 2020

    The role of the senior responsible officer for patient safety was established to bring together strands of patient safety across NICE, providing a...
    Thread by: Andy, Dec 30, 2020, 2 replies, in forum: General disability topics and advocacy
  6. Kalliope
    Thread

    "No More Mr NICE Guy…" by Prof. Brian Hughes

    Copied and discussion moved from this thread: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 The Science Bit by...
    Thread by: Kalliope, Nov 21, 2020, 55 replies, in forum: General ME/CFS News
  7. Andy
    Thread

    Blog: Placebos Can Fool Your Mind, but Not Your Body by James Coyne

    It is not meant to be a story about people with asthma, but about all of us — how we are susceptible to certain kinds of illusions when we use our...
    Thread by: Andy, Nov 2, 2020, 19 replies, in forum: Health News and Research unrelated to ME/CFS
  8. Kalliope
    Thread

    The Science Bit by Brian Hughes

    Good intentions regularly lead to terrible outcomes. While researchers’ hearts may be pure, that fact alone does not guarantee that their works...
    Thread by: Kalliope, Oct 14, 2020, 29 replies, in forum: General ME/CFS News
  9. Sly Saint
    Thread

    Blog: M.E. myself and I Living life in the slow lane with an invisible,chronic illness

    By other people’s standards my health is never Good. So it can be hard to convince them what I mean when I say things are Bad. There are no...
    Thread by: Sly Saint, Sep 5, 2020, 1 replies, in forum: General ME/CFS News
  10. Sly Saint
    Thread

    Distant healing

    Blog Edzard Ernst: Prof Walach’s studies of distant healing: do they reveal the difference between a scientist and a pseudoscientist? "Amongst...
    Thread by: Sly Saint, Jul 4, 2020, 5 replies, in forum: Alternative Therapies
  11. Andy
    Thread

    Blog: Frozen in Amber, "Energy systems and pacing in ME/CFS"

    Summary The aerobic energy system is “broken” in ME/CFS and cannot be fixed with exercise (i.e., graded exercise therapy, also known as GET). The...
    Thread by: Andy, Jul 2, 2020, 12 replies, in forum: General ME/CFS News
  12. Sly Saint
    Thread

    BBC Blog: #WildlifeFromMyWindow

    My Story... Resting on the sofa, I hear a churp-churp coming from just outside the lounge window. It is a blackbird – feathers immaculate, just...
    Thread by: Sly Saint, May 25, 2020, 1 replies, in forum: General ME/CFS News
  13. Sly Saint
    Thread

    Blog: A totally useless therapy for benign and malign conditions – where is the difference? - Edzard Ernst

    Can I invite you to join me in a little thought experiment? Think of a totally useless therapy. I would suggest homeopathy but there are always...
    Thread by: Sly Saint, May 21, 2020, 7 replies, in forum: Health News and Research unrelated to ME/CFS
  14. Sly Saint
    Thread

    A life Hidden : This Is Love: An Appeal to Musicians

    Kara Jane is a singer with a voice that touches the heart. Its sweet, clear tone conveys both vulnerability and strength, creating a heartfelt...
    Thread by: Sly Saint, May 12, 2020, 4 replies, in forum: General ME/CFS News
  15. lycaena
    Thread

    Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?

    This post and some of the following posts have been moved from this thread: NICE delay publication till 9 dec 2020. Draft guideline consultation...
    Thread by: lycaena, May 5, 2020, 19 replies, in forum: Advocacy Projects and Campaigns
  16. Hip
    Thread

    Possibility of ME or PVFS after COVID-19, Long Covid

    Moderator note: Use this thread to discuss the possibility of an ME/CFS or ME/CFS-like illness following Covid-19. Initial posts have been moved...
    Thread by: Hip, Jan 21, 2020, 4,097 replies, in forum: Epidemics (including Covid-19)
  17. Andy
    Thread

    Cochrane blog series: “Oh, really?” 12 things to help you question health advice

    This January, we’re launching a new special series of blogs on Evidently Cochrane: “Oh, really?” 12 things to help you question health advice....
    Thread by: Andy, Mar 17, 2020, 8 replies, in forum: Health News and Research unrelated to ME/CFS
  18. Andy
    Thread

    Blog: Hilda Bastian: The High Risk Methods of a New Systematic Review of HPV Vaccines

    Back in 2018, the authors of a then-unpublished systematic review fired a spin- and error-laced salvo at the Cochrane review of the HPV vaccines....
    Thread by: Andy, Feb 29, 2020, 2 replies, in forum: Health News and Research unrelated to ME/CFS
  19. Sly Saint
    Thread

    Blog: Disease Begins Before Diagnosis - Feb 2020

    When I was 29 years old, I got so sick that I had to stop working. I had this intermittent burning pain in my legs, I woke up each morning with...
    Thread by: Sly Saint, Feb 16, 2020, 0 replies, in forum: Health News and Research unrelated to ME/CFS
  20. Sly Saint
    Thread

    Blog: What have tea and cake got to do with M.E? by Anna Redshaw Feb 2020

    In my experience it can be difficult to get non-sufferers to properly engage with M.E. advocacy efforts. There can be many reasons for this....
    Thread by: Sly Saint, Feb 14, 2020, 0 replies, in forum: General ME/CFS News
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