It’s been almost a year since the CDC removed its recommendations for GET and CBT as treatments for ME/CFS (or CFS, or ME, or CFS/ME, or even SEID...
Sorry I’ve not been blogging recently. I put the blog to one side to concentrate on another project but I didn’t realise how long it would take....
In 1985 I was taken seriously and severely ill, and that is how I learned about ME. It was sudden; the virus that invaded my body, also robbed me...
I don’t expect it is possible to adequately describe the experience of ME to someone who hasn’t experienced chronic illness disability. I do...
Disabled activist, Stella Young recently wrote: ‘The social model tells us that we are far more disabled by inaccessible environments and hostile...
I’m exactly the same as anyone else who’s gathered up a lifetime of training and experience. I have a lot of skills. People come to me for advice....
hi all, new blog post on the kafka pandemic. it is related to my 2016 open letter to francis collins....
Hi Peter! Thanks for meeting with me and answering some questions. So, you’re an MD, but you’re currently doing research. Can you tell me a little...
On February 20th, Carol Monaghan, a member of Parliament from the Scottish National Party, led an extraordinary debate in the House of Commons...
We are excited to present Dr. Lucinda (Cindy) Bateman as part of our “People in ME/CFS Research” spotlight series. Cindy is the Founder and...
As part of our “People in ME/CFS Research” spotlight series, I talked with Dr. Julia Oh, who is an Assistant Professor in Microbiology at The...
We are excited to start a new educational series on explaining our approaches in biomedical research, which we hope will be useful to the ME/CFS...
Not directly about ME but perhaps of interest, considering the subject matter. With the publication of his exhaustingly researched and skillfully...
Unrest, Jen Brea’s documentary about ME, will be shown on PBS stations around the United States on Monday night – January 8th. The film is already...
My head would lift a bit, I could get part of a shoulder up, but even when I groaned with effort, my spine didn’t budge. My muscles weren’t...
There’s a very interesting discussion about wearable heart rate monitors on Science for ME. I’m not going to reproduce those discussions here but...
A first glance at the results of the “severely ill big data study” that was launched two years ago and that have been presented during the...
For such a high ranking Russell Group Institution, Bristol University seems to be getting its facts alarmingly confused. In response to Freedom of...
Reflecting, in part, on the impact of the news of the Rituximab null result. "I caught a glimpse of Hope standing naked. I was alarmed by the...
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