A few weeks ago I was preparing for a conversation on the Armchair Expert podcast with Dax Shepard, and I found myself getting in a debate. Not...
I've been sitting on this one for a while so it's amazing that I finally get to show it to you! My piece for Cause and Effect magazine. Amnah, the...
Thought I'd seen this posted on a different thread but I can't find it, so creating a new thread for it. I fell down the rabbit hole, like Alice,...
One message dominates NIH’s talk about ME/CFS research: submit more high quality grant applications. Funding would increase if there were more...
Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...
" ME patient/advocate Corina Duyn reflects on the challenges of having Disability Services in Waterford accept her as having a disability. I...
For some months now I’ve been involved in the Chronic Illness Inclusion Project (CIIP). If you have a chronic illness, of any kind, I can’t...
This is a guest post by Dr Rebecca Kirk, Executive Editor, Nature Partner Journals Every day, thousands of scientists around the world donate...
Blog by an author, who has ME, about finally writing about ME. One of the reasons for sharing is that I really like the quote below. Kay describes...
ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families...
For most people, pain eventually fades away as an injury heals. But for others, the pain persists beyond the initial healing and becomes chronic,...
Today, we need to revisit and reconcile NIH’s funding numbers for FY 2017. NIH is reporting that it spent $15 million dollars on ME/CFS research...
In a Westminster Hall debate on ME treatment and research on 21 June 2018, Sir Henry Bellingham, MP for North West Norfolk, called for government...
Psychology, Neuroscience: Lacking in Individuality? In research on people, scientists are typically interested in the group data – the mean,...
NIH recently announced that it is forming a new Working Group on ME/CFS. The announcement is very low on specifics, but this Working Group has the...
I delivered these comments via telephone today at the CFS Advisory Committee meeting: My name is Jennifer Spotila. I will soon begin my 25th year...
As you are probably aware, here in the UK, NICE are currently engaged in the lengthy process of revising their guidelines for ME/CFS. The current...
Let’s take a quiz. I have a letter that was sent on behalf of Dr. Francis Collins, Director of NIH, to a person with ME, and I want you to guess...
It’s been almost a year since the CDC removed its recommendations for GET and CBT as treatments for ME/CFS (or CFS, or ME, or CFS/ME, or even SEID...
Sorry I’ve not been blogging recently. I put the blog to one side to concentrate on another project but I didn’t realise how long it would take....
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