It feels like I am being held hostage by my condition and I’m defenseless to stop these wasted years passing me by. When you’re ill, birthdays are...
In January, I shared Emma’s and Therese’s stories of having an autoimmune condition. This struck a chord with many readers and generated lots of...
Living with an unsociable illness As I’m writing this post, I’m sat in bed, having to take time out to rest, whilst we have a family member...
I just wanted to respond to a few comments and questions raised in response to recent posts in this series. If you aren’t a part of the ME...
Those of us with chronic illness are often forced to wage two wars at once. Not only must we cope with the immeasurable impact of our illness, but...
It all started in 2003 when a woman with Lupus found a new way of explaining what her life was like to a friend. Christine Miserandino’s story of...
So, a few weeks into 2019, where do we think we are with M.E.? Are we making progress at last? Or are things very different from how they seem?...
This week I had the honour of being made an honorary fellow of the Academy of Medical Sciences. A number of the press officers and scientists in...
[IMG] You may wonder what that picture’s doing here and what that title ‘The Vale of Strange’ is about. It should all become clear as this post...
A few weeks ago I was preparing for a conversation on the Armchair Expert podcast with Dax Shepard, and I found myself getting in a debate. Not...
I've been sitting on this one for a while so it's amazing that I finally get to show it to you! My piece for Cause and Effect magazine. Amnah, the...
Thought I'd seen this posted on a different thread but I can't find it, so creating a new thread for it. I fell down the rabbit hole, like Alice,...
One message dominates NIH’s talk about ME/CFS research: submit more high quality grant applications. Funding would increase if there were more...
Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...
" ME patient/advocate Corina Duyn reflects on the challenges of having Disability Services in Waterford accept her as having a disability. I...
For some months now I’ve been involved in the Chronic Illness Inclusion Project (CIIP). If you have a chronic illness, of any kind, I can’t...
This is a guest post by Dr Rebecca Kirk, Executive Editor, Nature Partner Journals Every day, thousands of scientists around the world donate...
Blog by an author, who has ME, about finally writing about ME. One of the reasons for sharing is that I really like the quote below. Kay describes...
ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families...
For most people, pain eventually fades away as an injury heals. But for others, the pain persists beyond the initial healing and becomes chronic,...
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