ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families...
For most people, pain eventually fades away as an injury heals. But for others, the pain persists beyond the initial healing and becomes chronic,...
Today, we need to revisit and reconcile NIH’s funding numbers for FY 2017. NIH is reporting that it spent $15 million dollars on ME/CFS research...
In a Westminster Hall debate on ME treatment and research on 21 June 2018, Sir Henry Bellingham, MP for North West Norfolk, called for government...
Psychology, Neuroscience: Lacking in Individuality? In research on people, scientists are typically interested in the group data – the mean,...
NIH recently announced that it is forming a new Working Group on ME/CFS. The announcement is very low on specifics, but this Working Group has the...
I delivered these comments via telephone today at the CFS Advisory Committee meeting: My name is Jennifer Spotila. I will soon begin my 25th year...
As you are probably aware, here in the UK, NICE are currently engaged in the lengthy process of revising their guidelines for ME/CFS. The current...
Let’s take a quiz. I have a letter that was sent on behalf of Dr. Francis Collins, Director of NIH, to a person with ME, and I want you to guess...
It’s been almost a year since the CDC removed its recommendations for GET and CBT as treatments for ME/CFS (or CFS, or ME, or CFS/ME, or even SEID...
Sorry I’ve not been blogging recently. I put the blog to one side to concentrate on another project but I didn’t realise how long it would take....
In 1985 I was taken seriously and severely ill, and that is how I learned about ME. It was sudden; the virus that invaded my body, also robbed me...
I don’t expect it is possible to adequately describe the experience of ME to someone who hasn’t experienced chronic illness disability. I do...
Disabled activist, Stella Young recently wrote: ‘The social model tells us that we are far more disabled by inaccessible environments and hostile...
I’m exactly the same as anyone else who’s gathered up a lifetime of training and experience. I have a lot of skills. People come to me for advice....
hi all, new blog post on the kafka pandemic. it is related to my 2016 open letter to francis collins....
Hi Peter! Thanks for meeting with me and answering some questions. So, you’re an MD, but you’re currently doing research. Can you tell me a little...
On February 20th, Carol Monaghan, a member of Parliament from the Scottish National Party, led an extraordinary debate in the House of Commons...
We are excited to present Dr. Lucinda (Cindy) Bateman as part of our “People in ME/CFS Research” spotlight series. Cindy is the Founder and...
As part of our “People in ME/CFS Research” spotlight series, I talked with Dr. Julia Oh, who is an Assistant Professor in Microbiology at The...
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