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Blog: M.E. myself and I Living life in the slow lane with an invisible,chronic illness

By other people’s standards my health is never Good. So it can be hard to convince them what I mean when I say things are Bad. There are no...

Thread by: Sly Saint, Sep 5, 2020, 1 replies, in forum: General ME/CFS News
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Distant healing

Blog Edzard Ernst: Prof Walach’s studies of distant healing: do they reveal the difference between a scientist and a pseudoscientist? "Amongst...

Thread by: Sly Saint, Jul 4, 2020, 5 replies, in forum: Alternative Therapies
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BBC Blog: #WildlifeFromMyWindow

My Story... Resting on the sofa, I hear a churp-churp coming from just outside the lounge window. It is a blackbird – feathers immaculate, just...

Thread by: Sly Saint, May 25, 2020, 1 replies, in forum: General ME/CFS News
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Blog: A totally useless therapy for benign and malign conditions – where is the difference? - Edzard Ernst

Can I invite you to join me in a little thought experiment? Think of a totally useless therapy. I would suggest homeopathy but there are always...

Thread by: Sly Saint, May 21, 2020, 7 replies, in forum: Health News and Research unrelated to ME/CFS
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A life Hidden : This Is Love: An Appeal to Musicians

Kara Jane is a singer with a voice that touches the heart. Its sweet, clear tone conveys both vulnerability and strength, creating a heartfelt...

Thread by: Sly Saint, May 12, 2020, 4 replies, in forum: General ME/CFS News
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Blog: Listen Up: Chronically Ill People Know What We’re Talking About When it Comes to COVID-19 Friday, March 20, 2020

Finally, there’s the long term. Many people with myalgic encephalomyelitis/chronic fatigue syndrome, for example, started with viruses such as...

Thread by: Sly Saint, Mar 21, 2020, 0 replies, in forum: Epidemics (including Covid-19)
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Blog: Disease Begins Before Diagnosis - Feb 2020

When I was 29 years old, I got so sick that I had to stop working. I had this intermittent burning pain in my legs, I woke up each morning with...

Thread by: Sly Saint, Feb 16, 2020, 0 replies, in forum: Health News and Research unrelated to ME/CFS
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Leonard Jason research finds that many young people have ME/CFS (Simon M blog)

Leonard Jason research finds that many young people have ME/CFS [ATTACH] A new study finds that 0.75%, or 1 in 130 young people, have ME.CFS....

Thread by: Simon M, Feb 4, 2020, 55 replies, in forum: BioMedical ME/CFS News
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Blog - All I Want For Christmas Is A Good Nights Sleep

It’s exactly ten years to the day since I started this blog. Oh my god, that’s a fucking long time to feel like shit every minute of every day....

Thread by: Sly Saint, Dec 26, 2019, 4 replies, in forum: Health News and Research unrelated to ME/CFS
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ME: A terrible disease (in German)

Saw this and it looks like a blog hosted on a newspaper platform. Pretty decent. Myalg. Encephalomyelitis ME is more widespread in Germany than...

Thread by: rvallee, Oct 26, 2019, 3 replies, in forum: General ME/CFS News
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Blog, the Mighty "Dear Doctor: What Not to Say to Me"

full title Dear Doctor: What Not to Say to Me and Other Fibromyalgia Patients although the author has ME/CFS Dear Doctor, I know you are...

Thread by: Sly Saint, Sep 12, 2019, 0 replies, in forum: General ME/CFS News
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The Mightly - How I’m Challenging the Feeling of Another Year Wasted With Chronic Fatigue Syndrome (2019) Jo Moss

It feels like I am being held hostage by my condition and I’m defenseless to stop these wasted years passing me by. When you’re ill, birthdays are...

Thread by: Sly Saint, May 6, 2019, 7 replies, in forum: General ME/CFS News
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Civil Service blog - Personal Disability Stories - Kays story (ME sufferer)

In January, I shared Emma’s and Therese’s stories of having an autoimmune condition. This struck a chord with many readers and generated lots of...

Thread by: Sly Saint, May 4, 2019, 2 replies, in forum: General ME/CFS News
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Living with an unsociable illness - blog April 2019

Living with an unsociable illness As I’m writing this post, I’m sat in bed, having to take time out to rest, whilst we have a family member...

Thread by: Sly Saint, Apr 20, 2019, 3 replies, in forum: General ME/CFS News
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Do you have ICC-ME and other FAQs - Jen Brea

I just wanted to respond to a few comments and questions raised in response to recent posts in this series. If you aren’t a part of the ME...

Thread by: Sly Saint, Apr 1, 2019, 1 replies, in forum: General ME/CFS News
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Royal College of Surgeons blog: Are surgeons missing the major differential diagnosis that is more common than multiple sclerosis and HIV combined?

Blog by Nina Muirhead It’s a great feeling when we meet a new outpatient that we know how to manage surgically. Unfortunately, every surgical...

Thread by: Andy, Feb 21, 2019, 22 replies, in forum: General ME/CFS News
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Facing Skepticism From Others That My Illness Isn't 'Real' - blog

Those of us with chronic illness are often forced to wage two wars at once. Not only must we cope with the immeasurable impact of our illness, but...

Thread by: Sly Saint, Feb 16, 2019, 13 replies, in forum: General ME/CFS News
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Speaking of Spoons - blog

It all started in 2003 when a woman with Lupus found a new way of explaining what her life was like to a friend. Christine Miserandino’s story of...

Thread by: Sly Saint, Feb 4, 2019, 2 replies, in forum: Lifestyle Management
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Spoonseeker: " Coming down the Line"

So, a few weeks into 2019, where do we think we are with M.E.? Are we making progress at last? Or are things very different from how they seem?...

Thread by: Andy, Jan 21, 2019, 5 replies, in forum: Advocacy Projects and Campaigns
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Blog: "Are they really QUREd?" (2018) Lou Corsius

The Qure study compares the efficacy of treatment with Doxycycline versus placebo and placebo versus Cognitive Behaviour Therapy using...

Thread by: Andy, Dec 31, 2018, 8 replies, in forum: PsychoSocial ME/CFS Research

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