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ME: A terrible disease (in German)

Saw this and it looks like a blog hosted on a newspaper platform. Pretty decent. Myalg. Encephalomyelitis ME is more widespread in Germany than...

Thread by: rvallee, Oct 26, 2019, 1 replies, in forum: General ME/CFS News
Thread
The Mightly - How I’m Challenging the Feeling of Another Year Wasted With Chronic Fatigue Syndrome (2019) Jo Moss

It feels like I am being held hostage by my condition and I’m defenseless to stop these wasted years passing me by. When you’re ill, birthdays are...

Thread by: Sly Saint, May 6, 2019, 7 replies, in forum: General ME/CFS News
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Civil Service blog - Personal Disability Stories - Kays story (ME sufferer)

In January, I shared Emma’s and Therese’s stories of having an autoimmune condition. This struck a chord with many readers and generated lots of...

Thread by: Sly Saint, May 4, 2019, 2 replies, in forum: General ME/CFS News
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Living with an unsociable illness - blog April 2019

Living with an unsociable illness As I’m writing this post, I’m sat in bed, having to take time out to rest, whilst we have a family member...

Thread by: Sly Saint, Apr 20, 2019, 3 replies, in forum: General ME/CFS News
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Do you have ICC-ME and other FAQs - Jen Brea

I just wanted to respond to a few comments and questions raised in response to recent posts in this series. If you aren’t a part of the ME...

Thread by: Sly Saint, Apr 1, 2019, 1 replies, in forum: General ME/CFS News
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Facing Skepticism From Others That My Illness Isn't 'Real' - blog

Those of us with chronic illness are often forced to wage two wars at once. Not only must we cope with the immeasurable impact of our illness, but...

Thread by: Sly Saint, Feb 16, 2019, 13 replies, in forum: General ME/CFS News
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Speaking of Spoons - blog

It all started in 2003 when a woman with Lupus found a new way of explaining what her life was like to a friend. Christine Miserandino’s story of...

Thread by: Sly Saint, Feb 4, 2019, 2 replies, in forum: Lifestyle Management
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Spoonseeker: " Coming down the Line"

So, a few weeks into 2019, where do we think we are with M.E.? Are we making progress at last? Or are things very different from how they seem?...

Thread by: Andy, Jan 21, 2019, 5 replies, in forum: Advocacy Projects and Campaigns
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Fiona Fox (SMC) blog: "don’t be complacent about the gains we have made"

This week I had the honour of being made an honorary fellow of the Academy of Medical Sciences. A number of the press officers and scientists in...

Thread by: Andy, Dec 19, 2018, 27 replies, in forum: Health News and Research unrelated to ME/CFS
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Blog: Spoonseeker: "The Vale of Strange"

[IMG] You may wonder what that picture’s doing here and what that title ‘The Vale of Strange’ is about. It should all become clear as this post...

Thread by: Andy, Dec 11, 2018, 1 replies, in forum: Advocacy Projects and Campaigns
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Blog: Jamison Writes: "How to Properly Name a Disease"

A few weeks ago I was preparing for a conversation on the Armchair Expert podcast with Dax Shepard, and I found myself getting in a debate. Not...

Thread by: Andy, Dec 10, 2018, 6 replies, in forum: Advocacy Projects and Campaigns
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Blog: Super Pooped: "Cause and Effect piece" [comic illustrating life with ME/CFS]

I've been sitting on this one for a while so it's amazing that I finally get to show it to you! My piece for Cause and Effect magazine. Amnah, the...

Thread by: Andy, Dec 8, 2018, 8 replies, in forum: General Advocacy Discussions
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Blog: "Falling Down The Rabbit Hole"

Thought I'd seen this posted on a different thread but I can't find it, so creating a new thread for it. I fell down the rabbit hole, like Alice,...

Thread by: Andy, Dec 4, 2018, 0 replies, in forum: General ME/CFS News
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Blog: Occupy ME: "NIH’s Obstacle Course to Success for ME/CFS Researchers"

One message dominates NIH’s talk about ME/CFS research: submit more high quality grant applications. Funding would increase if there were more...

Thread by: Andy, Dec 3, 2018, 0 replies, in forum: Advocacy Projects and Campaigns
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Patient experiences of Dr Gabrielle Murphy

Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...

Thread by: Sly Saint, Dec 1, 2018, 22 replies, in forum: General ME/CFS News
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The struggle to gain adequate care while living with Myalgic Encephalomyelitis (ME) - ME Advocates Ireland

" ME patient/advocate Corina Duyn reflects on the challenges of having Disability Services in Waterford accept her as having a disability. I...

Thread by: Sly Saint, Nov 25, 2018, 2 replies, in forum: General ME/CFS News
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Blog: Stumbling Into Normality: "The Chronic Illness Inclusion Project and a Focus Group Response"

For some months now I’ve been involved in the Chronic Illness Inclusion Project (CIIP). If you have a chronic illness, of any kind, I can’t...

Thread by: Andy, Nov 22, 2018, 1 replies, in forum: General ME/CFS News
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Blog: Scientists are Humans: "Kinder Peer Review"

This is a guest post by Dr Rebecca Kirk, Executive Editor, Nature Partner Journals Every day, thousands of scientists around the world donate...

Thread by: Andy, Nov 12, 2018, 4 replies, in forum: Health News and Research unrelated to ME/CFS
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Blog: The Whole Damn Chronic Situation: "FINALLY WRITING ABOUT M.E. - NEW BOOK."

Blog by an author, who has ME, about finally writing about ME. One of the reasons for sharing is that I really like the quote below. Kay describes...

Thread by: Andy, Nov 3, 2018, 5 replies, in forum: General ME/CFS News
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ME/CFS Awareness - Arias journal

ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families...

Thread by: Sly Saint, Sep 9, 2018, 0 replies, in forum: General ME/CFS News

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