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Do you have ICC-ME and other FAQs - Jen Brea

I just wanted to respond to a few comments and questions raised in response to recent posts in this series. If you aren’t a part of the ME...

Thread by: Sly Saint, Apr 1, 2019, 1 replies, in forum: General ME/CFS News
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Facing Skepticism From Others That My Illness Isn't 'Real' - blog

Those of us with chronic illness are often forced to wage two wars at once. Not only must we cope with the immeasurable impact of our illness, but...

Thread by: Sly Saint, Feb 16, 2019, 13 replies, in forum: General ME/CFS News
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Speaking of Spoons - blog

It all started in 2003 when a woman with Lupus found a new way of explaining what her life was like to a friend. Christine Miserandino’s story of...

Thread by: Sly Saint, Feb 4, 2019, 2 replies, in forum: Lifestyle Management
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Spoonseeker: " Coming down the Line"

So, a few weeks into 2019, where do we think we are with M.E.? Are we making progress at last? Or are things very different from how they seem?...

Thread by: Andy, Jan 21, 2019, 5 replies, in forum: Advocacy Projects and Campaigns
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Fiona Fox (SMC) blog: "don’t be complacent about the gains we have made"

This week I had the honour of being made an honorary fellow of the Academy of Medical Sciences. A number of the press officers and scientists in...

Thread by: Andy, Dec 19, 2018, 27 replies, in forum: Health News and Research unrelated to ME/CFS
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Blog: Spoonseeker: "The Vale of Strange"

[IMG] You may wonder what that picture’s doing here and what that title ‘The Vale of Strange’ is about. It should all become clear as this post...

Thread by: Andy, Dec 11, 2018, 1 replies, in forum: Advocacy Projects and Campaigns
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Blog: Jamison Writes: "How to Properly Name a Disease"

A few weeks ago I was preparing for a conversation on the Armchair Expert podcast with Dax Shepard, and I found myself getting in a debate. Not...

Thread by: Andy, Dec 10, 2018, 6 replies, in forum: Advocacy Projects and Campaigns
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Blog: Super Pooped: "Cause and Effect piece" [comic illustrating life with ME/CFS]

I've been sitting on this one for a while so it's amazing that I finally get to show it to you! My piece for Cause and Effect magazine. Amnah, the...

Thread by: Andy, Dec 8, 2018, 8 replies, in forum: General Advocacy Discussions
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Blog: "Falling Down The Rabbit Hole"

Thought I'd seen this posted on a different thread but I can't find it, so creating a new thread for it. I fell down the rabbit hole, like Alice,...

Thread by: Andy, Dec 4, 2018, 0 replies, in forum: General ME/CFS News
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Blog: Occupy ME: "NIH’s Obstacle Course to Success for ME/CFS Researchers"

One message dominates NIH’s talk about ME/CFS research: submit more high quality grant applications. Funding would increase if there were more...

Thread by: Andy, Dec 3, 2018, 0 replies, in forum: Advocacy Projects and Campaigns
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Patient experiences of Dr Gabrielle Murphy

Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...

Thread by: Sly Saint, Dec 1, 2018, 22 replies, in forum: General ME/CFS News
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The struggle to gain adequate care while living with Myalgic Encephalomyelitis (ME) - ME Advocates Ireland

" ME patient/advocate Corina Duyn reflects on the challenges of having Disability Services in Waterford accept her as having a disability. I...

Thread by: Sly Saint, Nov 25, 2018, 2 replies, in forum: General ME/CFS News
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Blog: Stumbling Into Normality: "The Chronic Illness Inclusion Project and a Focus Group Response"

For some months now I’ve been involved in the Chronic Illness Inclusion Project (CIIP). If you have a chronic illness, of any kind, I can’t...

Thread by: Andy, Nov 22, 2018, 1 replies, in forum: General ME/CFS News
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Blog: Scientists are Humans: "Kinder Peer Review"

This is a guest post by Dr Rebecca Kirk, Executive Editor, Nature Partner Journals Every day, thousands of scientists around the world donate...

Thread by: Andy, Nov 12, 2018, 4 replies, in forum: Health News and Research unrelated to ME/CFS
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Blog: The Whole Damn Chronic Situation: "FINALLY WRITING ABOUT M.E. - NEW BOOK."

Blog by an author, who has ME, about finally writing about ME. One of the reasons for sharing is that I really like the quote below. Kay describes...

Thread by: Andy, Nov 3, 2018, 5 replies, in forum: General ME/CFS News
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ME/CFS Awareness - Arias journal

ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families...

Thread by: Sly Saint, Sep 9, 2018, 0 replies, in forum: General ME/CFS News
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NIH Directors Blog: Researchers Elucidate Role of Stress Gene in Chronic Pain

For most people, pain eventually fades away as an injury heals. But for others, the pain persists beyond the initial healing and becomes chronic,...

Thread by: Andy, Sep 4, 2018, 0 replies, in forum: Health News and Research unrelated to ME/CFS
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Blog: Occupy ME: NIH 2017 Funding Fact-Check

Today, we need to revisit and reconcile NIH’s funding numbers for FY 2017. NIH is reporting that it spent $15 million dollars on ME/CFS research...

Thread by: Andy, Jul 23, 2018, 1 replies, in forum: General ME/CFS News
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Blog: Let's Do It for Myalgic Encephalomyelitis: Dear MP...

In a Westminster Hall debate on ME treatment and research on 21 June 2018, Sir Henry Bellingham, MP for North West Norfolk, called for government...

Thread by: Andy, Jun 28, 2018, 0 replies, in forum: Advocacy Action Alerts
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Blog: Neuroskeptic: Psychology, Neuroscience: Lacking in Individuality?

Psychology, Neuroscience: Lacking in Individuality? In research on people, scientists are typically interested in the group data – the mean,...

Thread by: Andy, Jun 23, 2018, 6 replies, in forum: Health News and Research unrelated to ME/CFS

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