Neurasthenia: Unexplained Tiredness: Exploring your mind blog: Spain based.

Horrendous site; Exploring your mind blog: Spain based.

https://exploringyourmind.com/who-we-are/

https://exploringyourmind.com/neurasthenia-unexplained-tiredness/


there is also a section on chronic fatigue syndrome:

https://exploringyourmind.com/description-and-characteristics-of-chronic-fatigue-syndrome/

 

They don't even seem to get a basic list of symptoms for CFS right. There are many red flags here. The mood changes in particular seem to be from some other disorder. I wonder if they have been treating some patients badly and so get these responses, or if they simply have not been treating CFS (and in particular ME) at all? Or do they get it from some other source that makes these mistakes? It looks like its largely psychobabble to me.

 

It would help if they could provide evidence...

...as to who it is that regards them as experts.

 

I think it's pretty clear that the 'experts' are suffering from distorted misinterpretation patterns.

 

that list of symptoms for CFS is just bizarre frankly.

 

It certainly seems to be a strange group they purport to study.

They are strongly competitive but only in activities which they did not not previously enjoy, yet they adopt a perfectionist attitude to this competition.

Why would they bother?

 

Always. Literally always. Seriously it's 100% projection.

Even the latest "mind-body program" for LC is some dude doing this because of his back pain. Just mindless self-indulgent pseudoscience.

 

Oh boy...type A again. And sprinkled with some physical symptoms for flavour. What a salad!

So these are obnoxious, dreadful people who have made themselves sick. That's convenient for research, BPS treatment, and saving governments and disability insurance payments.

 

Concerning if they are substituting the terms "ME/CFS" for "neurasthenia" in reference to the 2015 IOM ME report. It does look like that's what they've done. The IOM reputation then lends credibility to this soup/salad.

ETA: should say substituting the term "neursathenia" for "ME/CFS".

 

Indeed, what an odious lie at their convenience ! Here is what the IOM explicitly says, for exemple in the summary and then on p.222:

 

Could we start a campaign to write them polite emails about our concerns?

 

I think the IOM/NAM should be notified of this misinterpretation of its Report.

Perhaps someone in the Forum with some medical "street cred", would be better positioned to do this than me.

 

I highly doubt they'd care that a random small website misinterpreted one of their books. Even if they did, there's no way they could compel them to change it.

 

I think there is something to be said for needing to clear down or allow for clear down of inaccurate medical records.

Surely even those in the medical profession must admit that we've had years of people going to GP and being told its some sort of mood disorder as a first presumption for decades - often highly inaccurately, and probably made worse by it being on the list of 'paid if you meet the target of handing a card for IAPTs to 90% of anyone you categorise as this' incentive.

So of course most people with CFS have something like this on there - but it's a sign of the GP problem, not the patients having this. I find it a scandal that it happened to begin with, nevermind that scandal being used to justify such claims that basically create stigma - and I use that word because anything that is inaccurate is that - and further inaccurate detail being provided on a condition and probably justify funding being out of proportion to need/demand.

 

Definitely. I've been misdiagnosed with 3 mental disorders as a result of my ME. But I also have 3-4 actual mental disorders. How can anybody adequately care for my physical or mental health with such a tangled mess on my chart?

 

Yes, you're probably right.

 

After looking at a few other pages, I see that this is a spammy site. You know, the type that hosts tons of poorly written content cluttered by clickbait ads, whose focus appears to be driving traffic without regard to whether their pages are informative or even readable. The site's maintainers can be contacted, but who knows whether they care. I bet each of these pages was slapped together in 30 minutes, tops.

 

With a little more work, they may determine that it's a kind of metaphorical "flu" experienced by "yuppies."