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Trial By Error: CBT Model of Medically Unexplained Symptoms, Explained; CBT Trial for Q-Fever Fatigue

Discussion in 'PsychoSocial ME/CFS News' started by Andy, Jul 22, 2021.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

    Hampshire, UK
    "As I have recently written, four major clinical trials of CBT for so-called MUS have documented the opposite of what the investigators hoped to prove. In fact, the evidence from this research suggests that CBT is not an effective treatment for these conditions. That hasn’t stopped these investigators from claiming otherwise, of course. As my earlier post indicated, they have deployed a range of methodological, statistical and rhetorical strategies to obfuscate or downplay their poor results. Three of these studies were based at King’s College London, and one—the now-discredited PACE trial—at Queen Mary University of London.

    A 2007 article in the journal Clinical Psychology Review“The cognitive behavioural model of medically unexplained symptoms: A theoretical and empirical review”–sheds some light on the background and possible genesis of these various trials. (One of the co-authors of the review was a lead investigator in all four of the MUS clinical trials.) This review outlined the rationale behind the CBT treatment approach to MUS, including specifically chronic fatigue syndrome (CFS) and irritable bowel syndrome (IBS), and suggested that these conditions are essentially self-sustaining. The review also helped clarify–for me—why I get a sense of déjà vu whenever I read another article from this group of investigators. Each one basically says the same thing, except with a change in the targeted condition."

    Daisymay, Michelle, Simone and 28 others like this.
  2. Sean

    Sean Senior Member (Voting Rights)

    The empire franchise is on the march.
    Lisa108, Louie41, alktipping and 10 others like this.
  3. Barry

    Barry Senior Member (Voting Rights)

    Production line science.
    Aslaug, obeat, Louie41 and 8 others like this.
  4. Trish

    Trish Moderator Staff Member

    Production line pseudoscience.
    Aslaug, Oni, obeat and 14 others like this.
  5. rvallee

    rvallee Senior Member (Voting Rights)

    Sounds like at some point it could be useful to ask the funding institutions what they think of continuously funding research whose only purpose is to do more research, endlessly identical and providing no scientific value.

    I frankly don't think they care one bit, no one expects this junk to be of any use other than serving as justification for medical austerity and denying sick people the "right" (clearly a privilege, then) to health care, but it would be useful to have their blatantly indefensible answers on record. For later, when things get litigious and people ask why this was allowed to go on and we can say "this is why, they just didn't care".
    Daisymay, Campanula, Hutan and 8 others like this.
  6. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    I agree we definitely should bring it to their attention.

    I also agree they don't give a d***.

    I suspect they fund research so they can say they fund research and are actively contributing to....something.

    What we should do is make sure to remove any deniability they have further down the line so they can't at some future point claim not to have been made aware that at the very least the research they've funded has done no good & it may even have stifled other research as people assumed it's an area already thoroughly explored. It may also have facilitated the introduction or continuation of treatments that have actually caused harm.

    we need to break the circle of deniability where they all stand around pointing at each other and no one takes responsibility even though they are all responsible.
    Aslaug, Hutan, Louie41 and 10 others like this.
  7. TiredSam

    TiredSam Moderator Staff Member

    The thumb is in the pudding.

    They do self-correct - if the results are poor, they correct them themselves.
    rvallee, Daisymay, Missense and 11 others like this.
  8. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Is there a research project to be found here looking at how accurate different researchers are at identifying whether what they pulled out is in fact a plum, rather than something else completely different?

    [Is it also apt that the original nursery rhyme is about a property swindle in 16th-century England?]
    Michelle, Aslaug, Trish and 3 others like this.
  9. TiredSam

    TiredSam Moderator Staff Member

    Well they all say "what a good boy am I".
    Michelle, Daisymay, MEMarge and 3 others like this.
  10. dave30th

    dave30th Senior Member (Voting Rights)

    interesting, I realized as I wrote it that I had no idea where it came from or what it originally meant.
    Michelle, Trish and Peter Trewhitt like this.
  11. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    There are arguments about its origin, but one explanation is that a number of property deeds were sent up to London hidden in a pie as a bribe for the King to stop the destruction of the super wealthy Glastonbury Abbey and the seizure of all its land. This version goes that the bribe was processed by a civil servant, Thomas Horner (not Jack), who kept one of the best parcels of land for himself, before passing the rest onto the King. This parcel of land included some lead mines, with ‘plum’ being a pun on the Latin word for lead, ‘plumb’ as well as idiom for the best.

    Obviously this had no impact on the King going on to dissolve the monasteries. So let’s hope these BPS illusory plum findings have no lasting impact on the long term course of medical history.
    Michelle, Mithriel, MEMarge and 5 others like this.
  12. MEMarge

    MEMarge Senior Member (Voting Rights)

    Their illusory findings about their myth of the aetiology and pathogenesis of ME have already had disastrous consequences on lives measured by decades, not centuries.
    Michelle, Amw66 and Peter Trewhitt like this.

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