blog

https://the-slow-lane.com/2021/04/11/happy-with-my-lot/ "I seem to baffle some people, because I’m upbeat despite my situation; a situation that they deem to be the absolute pits. Some don’t know what to do with me because of my attitude. I don’t fit with their preconceived idea that people...

https://www.ajourneythroughthefog.co.uk/2021/04/how-the-world-more-accessible-covid-19-pandemic/ "Over the past year through the lockdowns and many restrictions, while healthy non-disabled people have often felt isolated, lonely and frustrated, many of us who are disabled and chronically ill...

Last week, an old story was recounted to a new audience. During the March 30, 2021 NIH telebriefing with the ME/CFS community, Dr. Vicky Whittemore said that there had been death threats against grant reviewers in the past, and that this was one reason why NIH is now withholding the names of...

"Science is a profession where critique is integral to the work itself. So you might think we’d all have both criticizing, and handling being on the receiving end of it, down to a fine art. But you’d be wrong – as a rather spectacular recent blowout of norms by a prominent scientist reminded us...

Quote: "Catherine Hale spoke at It’s Our Community, a conference on social care reform. Catherine explained the high prevalence of energy limiting conditions and the psychological impact of not being believed. I was a social care user back in the 1990s. I’ve had my chronic illness for over...

https://davidfmarks.com/2021/03/08/me-cfs-as-a-breakdown-in-homeostasis/ Here I present a new theory of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a disabling and complex illness affecting tens of millions of people worldwide. The Centers for Disease Control and Prevention...

An active blog focused on claims relating to CBT and IAPT, by Dr Mike Scott. http://www.cbtwatch.com It describes itself as 'An Independent Mental Health Watchdog and Discussion Forum' It's not anti-CBT, but is anti-IAPT. There's a lot of well referenced material there that is likely to be...

https://www.nice.org.uk/news/blog/how-nice-is-improving-patient-safety

Copied and discussion moved from this thread: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 The Science Bit by Brian Hughes - No More Mr NICE Guy... NICE’s verdict on psychosocial treatments for ME amounts to nothing less than an utter repudiation. That it...

Copy and paste link https://medium.com/beingwell/placebos-can-fool-your-mind-but-not-your-body-75c8a66790f7

Good intentions regularly lead to terrible outcomes. While researchers’ hearts may be pure, that fact alone does not guarantee that their works will be blessed. In psychology, we sometimes talk about the “just-world fallacy”, the belief that in the end our collective actions will average out...

https://the-slow-lane.com/

http://anilvanderzee.com/your-silence-is-killing-m-e/

Blog Edzard Ernst: Prof Walach’s studies of distant healing: do they reveal the difference between a scientist and a pseudoscientist? "Amongst all the many bizarre treatments so-called alternative medicine (SCAM) has to offer, distant healing is probably one of the least plausible. Essentially...

https://chronicallycaroline.com/2020/06/29/energy-systems-and-pacing-in-me-cfs/

https://absolutelymaybe.plos.org/2020/06/30/science-heroes-and-disillusion/

full blog here https://www.bbc.co.uk/blogs/natureuk/entries/ac4a09d4-1337-4fd2-b75e-2731e36a8a22

full blog here https://edzardernst.com/2020/05/a-totally-useless-therapy-for-benign-and-malign-conditions-where-is-the-difference/ (LP amongst others springs to mind)

http://anilvanderzee.com/the-fear-in-my-doctors-eyes/

A life Hidden : This Is Love: An Appeal to Musicians full blog here https://alifehidden.com/2020/05/12/this-is-love/