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blog

Page 4 of 7
  1. Andy
    Thread

    ME Association guest blog: "There’s No Point in me having a Netflix subscription or an Audible account" by Anna Wood

    Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most. It is the reason that I...
    Thread by: Andy, Aug 7, 2019, 3 replies, in forum: General ME/CFS news
  2. Andy
    Thread

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Moved from this thread Thought this was posted here already but I can't find it. So why are Dr. Sharpe and other clinical-translation...
    Thread by: Andy, Jul 23, 2019, 97 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Dr Carrot
    Thread

    Jen Brea: My ME is in remission

    This is a hard post to write because there are no words that can do this justice. I can hardly believe it myself. My ME is in remission. For the...
    Thread by: Dr Carrot, May 20, 2019, 305 replies, in forum: General ME/CFS news
  4. Andy
    Thread

    Blog: The PACE Trial: How a Debate Over Science Empowered a Whole Community [Carolyn Wilshire/ME Association]

    One group of science-minded patients – including Tom Kindlon, Robert Courtney and Alem Matthees – carefully examined the trial publications, and...
    Thread by: Andy, May 9, 2019, 36 replies, in forum: General ME/CFS news
  5. Sly Saint
    Thread

    The Mightly - How I’m Challenging the Feeling of Another Year Wasted With Chronic Fatigue Syndrome (2019) Jo Moss

    It feels like I am being held hostage by my condition and I’m defenseless to stop these wasted years passing me by. When you’re ill, birthdays are...
    Thread by: Sly Saint, May 6, 2019, 7 replies, in forum: General ME/CFS news
  6. Sly Saint
    Thread

    Civil Service blog - Personal Disability Stories - Kays story (ME sufferer)

    In January, I shared Emma’s and Therese’s stories of having an autoimmune condition. This struck a chord with many readers and generated lots of...
    Thread by: Sly Saint, May 4, 2019, 2 replies, in forum: General ME/CFS news
  7. Suffolkres
    Thread

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    http://healthinsightuk.org/2019/04/22/the-claim-that-the-cure-for-the-crippling-fatigue-of-mecfs-was-to-change-your-mind-always-seemed-bizarre-now-...
    Thread by: Suffolkres, Apr 22, 2019, 47 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  8. Sly Saint
    Thread

    Living with an unsociable illness - blog April 2019

    Living with an unsociable illness As I’m writing this post, I’m sat in bed, having to take time out to rest, whilst we have a family member...
    Thread by: Sly Saint, Apr 20, 2019, 3 replies, in forum: General ME/CFS news
  9. Simon M
    Thread

    Blog: 'Summary so far of "Something in the blood"' by Simon McGrath

    EDIT: SUMMARY OF LATEST VERSION OF BLOG POSTED INSTEAD Moderator's note: This post and relevant replies have been copied from this point,...
    Thread by: Simon M, Apr 19, 2019, 64 replies, in forum: General ME/CFS news
  10. Andy
    Thread

    Blog: Hilda Bastian, "5 Tips for Understanding Data in Meta-Analyses", 2017

    There’s a deluge of scientific studies of all sorts – thousands every day. There’s often a few studies looking for answers on the same topic, but...
    Thread by: Andy, Apr 15, 2019, 4 replies, in forum: Research methodology news and research
  11. Andy
    Thread

    Using the forum as a blog

    Blogging on Science for ME Have you considered that you can post a blog post on S4ME? After all, a blog post is effectively just a longer forum...
    Thread by: Andy, Apr 8, 2019, 3 replies, in forum: General Advocacy Discussions
  12. Andy
    Thread

    Blog: Hilda Bastian, "A Classic Case of Science “He Said”, “She Said”: How Psychologists Trying to Prevent PTSD Got Controversial"

    A familiar issue.. While several factors play a role in different review conclusions, the conclusion about harm in the first Cochrane review...
    Thread by: Andy, Apr 7, 2019, 2 replies, in forum: Research methodology news and research
  13. Sly Saint
    Thread

    Do you have ICC-ME and other FAQs - Jen Brea

    I just wanted to respond to a few comments and questions raised in response to recent posts in this series. If you aren’t a part of the ME...
    Thread by: Sly Saint, Apr 1, 2019, 1 replies, in forum: General ME/CFS news
  14. Andy
    Thread

    Blog: Occupy ME, "Drinking From A Fire Hose"

    News is coming at the ME community at a crazy pace right now. Each time I go online, there is another controversial article that requires a...
    Thread by: Andy, Mar 19, 2019, 0 replies, in forum: General ME/CFS news
  15. Andy
    Thread

    Blog: Spoonseeker, "MUS – International Women’s Day"

    A friend has asked me to post this and I thoroughly agree that this is an important issue affecting women in particular. People with M.E. may...
    Thread by: Andy, Mar 9, 2019, 1 replies, in forum: General ME/CFS news
  16. Cheshire
    Thread

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Professional and public debate about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has reached a new pitch. A London Times article...
    Thread by: Cheshire, Mar 5, 2019, 194 replies, in forum: General ME/CFS news
  17. Esther12
    Thread

    2019 blog: Co-producing a systematic review with patients [Patient wanted more positive emphasis on psychosocial management for post cancer fatigue]

    https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ At least I wanted the...
    Thread by: Esther12, Feb 26, 2019, 2 replies, in forum: Other health news and research
  18. Andy
    Thread

    Royal College of Surgeons blog: Are surgeons missing the major differential diagnosis that is more common than multiple sclerosis and HIV combined?

    Blog by Nina Muirhead It’s a great feeling when we meet a new outpatient that we know how to manage surgically. Unfortunately, every surgical...
    Thread by: Andy, Feb 21, 2019, 22 replies, in forum: General ME/CFS news
  19. Andy
    Thread

    Blog: Q&A with Carmine Pariante [about anti-depressants and harms]

    Carmine Pariante FRCPsych is a professor of biological psychiatry at the Institute of Psychiatry at King's College, London, and consultant...
    Thread by: Andy, Feb 20, 2019, 3 replies, in forum: Other health news and research
  20. Sly Saint
    Thread

    Facing Skepticism From Others That My Illness Isn't 'Real' - blog

    Those of us with chronic illness are often forced to wage two wars at once. Not only must we cope with the immeasurable impact of our illness, but...
    Thread by: Sly Saint, Feb 16, 2019, 13 replies, in forum: General ME/CFS news
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