blog

Does this sound familiar??? https://blogs.plos.org/absolutely-maybe/2019/09/30/am-i-going-to-need-a-smaller-plate-in-which-i-juggle-a-new-weight-loss-trial-old-systematic-reviews/

full title Dear Doctor: What Not to Say to Me and Other Fibromyalgia Patients although the author has ME/CFS full blog here https://themighty.com/2019/09/things-doctors-say-fibromyalgia-patients/

https://www.meassociation.org.uk/2019/08/theres-no-point-in-me-having-a-netflix-subscription-or-an-audible-account-by-anna-wood-07-august-2019/

Moved from this thread Thought this was posted here already but I can't find it. www.psychologytoday.com/us/blog/the-intuitive-parent/201907/the-dark-side-social-media-activism-in-science The reference in the quote is to the Reuters article.

https://www.meassociation.org.uk/2019/05/me-awareness-the-pace-trial-how-a-debate-over-science-empowered-a-whole-community-09-may-2019/

https://themighty.com/2019/05/missing-out-life-chronic-fatigue/

https://civilservice.blog.gov.uk/2019/05/03/personal-disability-stories-10-kays-story/

http://healthinsightuk.org/2019/04/22/the-claim-that-the-cure-for-the-crippling-fatigue-of-mecfs-was-to-change-your-mind-always-seemed-bizarre-now-it-really-is-on-the-way-out/ So glad he has taken up the mantle and run with it!

Living with an unsociable illness full blog here http://notjusttired.com/2019/04/18/living-with-an-unsociable-illness/

EDIT: SUMMARY OF LATEST VERSION OF BLOG POSTED INSTEAD Moderator's note: This post and relevant replies have been copied from this point, https://www.s4me.info/threads/nih-accelerating-research-on-me-cfs-meeting-4th-and-5th-april-2019.7745/page-14#post-161538, in the Accelerating Research on...

https://blogs.plos.org/absolutely-maybe/2017/07/03/5-tips-for-understanding-data-in-meta-analyses/

Blogging on Science for ME Have you considered that you can post a blog post on S4ME? After all, a blog post is effectively just a longer forum post. The forum software offers text formatting, the ability to use images and posting on the forum provides immediate access to an audience, our...

A familiar issue.. https://blogs.plos.org/absolutely-maybe/2019/03/31/a-classic-case-of-science-he-said-she-said-how-psychologists-trying-to-prevent-ptsd-got-controversial/

"bad definitions have made this diagnosis heterogenous beyond recognition and how many doctors still diagnose people they don’t know what to do with with “chronic fatigue syndrome” by exclusion rather than after thorough investigation and the use of more accurate criteria." full blog here...

http://occupyme.net/2019/03/19/drinking-from-a-fire-hose/

https://spoonseeker.com/2019/03/08/mus-international-womens-day/

https://blogs.bmj.com/medical-ethics/2019/03/05/its-time-to-pay-attention-to-chronic-fatigue-syndrome/?utm_campaign=shareaholic&utm_medium=twitter&utm_source=socialnetwork

https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ I thought that this was of interest for showing how patients can end up pushing for a more 'positive' presentation of results if they've had a positive experience with a...

Blog by Nina Muirhead https://www.rcseng.ac.uk/news-and-events/blog/differential-diagnosis-me/