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Page 5 of 7
  1. Three Chord Monty
    Thread

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much A biopsychosocial camp has contended since the 1990s that regardless...
    Thread by: Three Chord Monty, Feb 9, 2019, 161 replies, in forum: General ME/CFS news
  2. Sue Klaus
    Thread

    Spoon theory

    Personally, I come down as a nay on the side of spoons. I can see where people might find this a useful help, but it does not help me, or I guess...
    Thread by: Sue Klaus, Dec 11, 2017, 36 replies, in forum: Monitoring and pacing
  3. Andy
    Thread

    Spoonseeker: " Coming down the Line"

    So, a few weeks into 2019, where do we think we are with M.E.? Are we making progress at last? Or are things very different from how they seem?...
    Thread by: Andy, Jan 21, 2019, 5 replies, in forum: Advocacy Projects and Campaigns
  4. Andy
    Thread

    Blog: "Are they really QUREd?" (2018) Lou Corsius

    The Qure study compares the efficacy of treatment with Doxycycline versus placebo and placebo versus Cognitive Behaviour Therapy using...
    Thread by: Andy, Dec 31, 2018, 8 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Esther12
    Thread

    United Kingdom: Science Media Centre (including Fiona Fox)

    The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always...
    Thread by: Esther12, Dec 10, 2017, 683 replies, in forum: News from organisations
  6. Andy
    Thread

    Blog: Spoonseeker: "The Vale of Strange"

    [IMG] You may wonder what that picture’s doing here and what that title ‘The Vale of Strange’ is about. It should all become clear as this post...
    Thread by: Andy, Dec 11, 2018, 1 replies, in forum: Advocacy Projects and Campaigns
  7. Andy
    Thread

    Blog: Jamison Writes: "How to Properly Name a Disease"

    A few weeks ago I was preparing for a conversation on the Armchair Expert podcast with Dax Shepard, and I found myself getting in a debate. Not...
    Thread by: Andy, Dec 10, 2018, 6 replies, in forum: Advocacy Projects and Campaigns
  8. Andy
    Thread

    Blog: Super Pooped: "Cause and Effect piece" [comic illustrating life with ME/CFS]

    I've been sitting on this one for a while so it's amazing that I finally get to show it to you! My piece for Cause and Effect magazine. Amnah, the...
    Thread by: Andy, Dec 8, 2018, 8 replies, in forum: General Advocacy Discussions
  9. Andy
    Thread

    Blog: "Falling Down The Rabbit Hole"

    Thought I'd seen this posted on a different thread but I can't find it, so creating a new thread for it. I fell down the rabbit hole, like Alice,...
    Thread by: Andy, Dec 4, 2018, 0 replies, in forum: General ME/CFS news
  10. Andy
    Thread

    Blog: Occupy ME: "NIH’s Obstacle Course to Success for ME/CFS Researchers"

    One message dominates NIH’s talk about ME/CFS research: submit more high quality grant applications. Funding would increase if there were more...
    Thread by: Andy, Dec 3, 2018, 0 replies, in forum: Advocacy Projects and Campaigns
  11. Sly Saint
    Thread

    The struggle to gain adequate care while living with Myalgic Encephalomyelitis (ME) - ME Advocates Ireland

    " ME patient/advocate Corina Duyn reflects on the challenges of having Disability Services in Waterford accept her as having a disability. I...
    Thread by: Sly Saint, Nov 25, 2018, 2 replies, in forum: General ME/CFS news
  12. Andy
    Thread

    Blog: Stumbling Into Normality: "The Chronic Illness Inclusion Project and a Focus Group Response"

    For some months now I’ve been involved in the Chronic Illness Inclusion Project (CIIP). If you have a chronic illness, of any kind, I can’t...
    Thread by: Andy, Nov 22, 2018, 1 replies, in forum: General ME/CFS news
  13. Andy
    Thread

    Blog: Scientists are Humans: "Kinder Peer Review"

    This is a guest post by Dr Rebecca Kirk, Executive Editor, Nature Partner Journals Every day, thousands of scientists around the world donate...
    Thread by: Andy, Nov 12, 2018, 4 replies, in forum: Research methodology news and research
  14. Andy
    Thread

    Blog: The Whole Damn Chronic Situation: "FINALLY WRITING ABOUT M.E. - NEW BOOK."

    Blog by an author, who has ME, about finally writing about ME. One of the reasons for sharing is that I really like the quote below. Kay describes...
    Thread by: Andy, Nov 3, 2018, 5 replies, in forum: General ME/CFS news
  15. Cheshire
    Thread

    The Triumph of Eminence-Based Medicine - Brian Hughes

    Blog by @Brian Hughes A quarter of a million Britons have been diagnosed with myalgic encephalomyelitis (ME), the condition also known as...
    Thread by: Cheshire, Nov 3, 2018, 78 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Andy
    Thread

    Blog: The PACE trial - a complaint.

    A blog about personal experience of PACE recommended 'treatments' published earlier this year. The PACE trial - a complaint. This is a tough...
    Thread by: Andy, Oct 14, 2018, 9 replies, in forum: Psychosomatic theories and treatments discussions
  17. Sly Saint
    Thread

    ME/CFS Awareness - Arias journal

    ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families...
    Thread by: Sly Saint, Sep 9, 2018, 0 replies, in forum: General ME/CFS news
  18. Andy
    Thread

    NIH Directors Blog: Researchers Elucidate Role of Stress Gene in Chronic Pain

    For most people, pain eventually fades away as an injury heals. But for others, the pain persists beyond the initial healing and becomes chronic,...
    Thread by: Andy, Sep 4, 2018, 0 replies, in forum: Other health news and research
  19. Kalliope
    Thread

    Blog Africa Clockwise: M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness

    Africa Clockwise: M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness [MEDIA]
    Thread by: Kalliope, Aug 7, 2018, 21 replies, in forum: General ME/CFS news
  20. Andy
    Thread

    Blog: Spoonseeker: Probing the Holes in MUS

    This is the second in a new series of posts about medically unexplained symptoms (MUS). The first of these, A Morass of MUS, appeared last time....
    Thread by: Andy, Jul 29, 2018, 23 replies, in forum: General ME/CFS news
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