blog

https://fiddaman.blogspot.com/2019/02/q-with-carmine-pariante.html

https://themighty.com/2017/04/chronic-fatigue-syndrome-comments-not-real/?utm_source=ChronicFatigueSyndrome_Page&utm_medium=Facebook eta: sorry only just spotted this was from April 2017:asleep:

Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much A biopsychosocial camp has contended since the 1990s that regardless of how it starts, people with ME/CFS dig themselves into a hole with their attitudes and behaviors, leading to physical deconditioning (sort of the...

Personally, I come down as a nay on the side of spoons. I can see where people might find this a useful help, but it does not help me, or I guess I don't feel it applies to me. When I wake up each day I don't have any spoons. There is no way to allot any spoons for my day, because I never have...

https://spoonseeker.com/2019/01/21/coming-down-the-line/

https://corsius.wordpress.com/2018/12/30/are-they-really-qured/

The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always interesting to look at how they present themselves. Someone sent me this old report recently, and while it's not that interesting or relevant to us, I...

You may wonder what that picture’s doing here and what that title ‘The Vale of Strange’ is about. It should all become clear as this post progresses. But I think you will agree that ‘The Vale of Strange’ sounds like a fair description of where we find ourselves when we’re trying to argue the...

https://jamisonwrites.com/2018/12/10/name-calling/

Read more, and see the comic, at https://superpooped.blogspot.com/2018/12/cause-and-effect-piece.html

Thought I'd seen this posted on a different thread but I can't find it, so creating a new thread for it. https://inclusionproject.org.uk/falling-down-the-rabbit-hole/ And a positive experience of Gabrielle Murphy

http://occupyme.net/2018/11/29/nihs-obstacle-course-to-success-for-mecfs-researchers/

" ME patient/advocate Corina Duyn reflects on the challenges of having Disability Services in Waterford accept her as having a disability. full blog here: https://meadvocatesireland.blogspot.com/2018/10/the-struggle-to-gain-adequate-care.html?m=1

https://stumblingintonormality574663971.wordpress.com/2018/11/20/the-chronic-illness-inclusion-project-and-a-focus-group-response/

https://scientistsarehumans.com/2018/11/08/kinder-peer-review/

Blog by an author, who has ME, about finally writing about ME. One of the reasons for sharing is that I really like the quote below. I have no connection to the author and only came across this when I saw Tom Kindlon had shared it on Facebook...

Blog by @Brian Hughes https://notthesciencebit.net/2018/11/03/the-triumph-of-eminence-based-medicine/

A blog about personal experience of PACE recommended 'treatments' published earlier this year. https://mookpixie-chronicills.blogspot.com/2018/03/the-pace-trial-complaint.html

ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families do. It wasn’t until my daughter fell ill at twelve years old, that everything fell apart. It would start by her sleeping for two weeks at a time. It...

https://directorsblog.nih.gov/2018/09/04/researchers-elucidate-role-of-stress-gene-in-chronic-pain/