1. Guest, the 'News in Brief' for the week beginning 23rd November 2020 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice
  3. Guest, NICE have published their draft guideline for ME/CFS, click here to read about it.
    Dismiss Notice

The Triumph of Eminence-Based Medicine - Brian Hughes

Discussion in 'PsychoSocial ME/CFS News' started by Cheshire, Nov 3, 2018.

  1. Cheshire

    Cheshire Moderator Staff Member

    Messages:
    4,046
    Likes Received:
    21,969
    Blog by @Brian Hughes

    https://notthesciencebit.net/2018/11/03/the-triumph-of-eminence-based-medicine/
     
    Annamaria, WillowJ, Woolie and 46 others like this.
  2. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    3,581
    Likes Received:
    36,330
    Location:
    Norway
    Looks great and am looking forward to read it. Is this from today? (Can't find a date..)
     
    ladycatlover, Simone, MEMarge and 5 others like this.
  3. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

    Messages:
    3,322
    Likes Received:
    18,163
    Location:
    UK
    Looking at the web address which includes "2018/11/03" I'd say, yes this is new. :)
     
    Woolie, alktipping, Dolphin and 10 others like this.
  4. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

    Messages:
    664
    Likes Received:
    6,003
    Location:
    Toronto
    Truth pushes back.

    A great sound byte: eminence-based medicine

    So with NICE / PACE we see not evidence-based decision-making, but decision-based eminence-making.
     
    Annamaria, WillowJ, Woolie and 16 others like this.
  5. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

    Messages:
    3,322
    Likes Received:
    18,163
    Location:
    UK
    I really enjoyed reading that and I thought it was excellent. :thumbup: I hope it gets linked to by people on Twitter and Facebook.
     
  6. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    1,358
    Likes Received:
    10,023
    He discusses the Guardian podcast. It’s bang up to date.
     
    janice, WillowJ, Woolie and 16 others like this.
  7. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    3,581
    Likes Received:
    36,330
    Location:
    Norway
    Thank you. Have also read it by now and as it includes a recap of the Guardian podcast I realised it was brand new.

    This was a great blog post. I can't tell how uplifting it is to see non patients following the ME debate and being able to see through the establishment and in to what's actually going on.
     
    janice, Annamaria, WillowJ and 23 others like this.
  8. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    6,272
    Likes Received:
    41,459
    Brilliant @Brian Hughes. So good to have your much-needed support.

    I've posted it on FB. I often don't, because I think Joe Average would get lost in details, but you seem to hit the spot.
     
    Last edited: Nov 3, 2018
    janice, Annamaria, WillowJ and 18 others like this.
  9. Andy

    Andy Committee Member & Outreach

    Messages:
    11,270
    Likes Received:
    81,272
    Location:
    Hampshire, UK
    Great article Brian. If you see this "In the blurb, the perpetuated the (inaccurate) Reuters reporting line," should be "In the blurb, they perpetuated the (inaccurate) Reuters reporting line,"
     
    janice, WillowJ, Dolphin and 8 others like this.
  10. BruceInOz

    BruceInOz Senior Member (Voting Rights)

    Messages:
    392
    Likes Received:
    2,669
    Location:
    Tasmania
    Brilliant. Thank you @Brian Hughes for a concise and insightful summary of the way things are.
     
  11. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    6,272
    Likes Received:
    41,459
    Although there are obviously issues with NICE, not sure it is right to lump it into the same basket as PACE.
     
    Dolphin and andypants like this.
  12. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    6,598
    Likes Received:
    40,374
    Location:
    UK West Midlands
    Fabulous I particularly liked ‘grand sanctimonious delusion’. Made me smile thank you @Brian Hughes
     
    janice, Annamaria, WillowJ and 16 others like this.
  13. Trish

    Trish Moderator Staff Member

    Messages:
    27,647
    Likes Received:
    135,236
    Location:
    UK
    That was my favourite bit too, @BruceInOz.

    So much so I'm copying it here again. I'd like it framed and presented as a bad science award to all the BPS crowd!

     
    janice, Annamaria, Woolie and 30 others like this.
  14. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    6,598
    Likes Received:
    40,374
    Location:
    UK West Midlands
    That the current guidelines aren’t fit for purpose was caused by the original grand sanctimonious delusion. That NICE eventually accepted they aren’t fit for purpose is indicative that they have probably moved away from that delusion but the evidence that NICE aren’t still in the same basket as PACE will be shown by what is included/excluded from the new guidelines
     
    Annamaria, Woolie, alktipping and 9 others like this.
  15. inox

    inox Senior Member (Voting Rights)

    Messages:
    506
    Likes Received:
    4,520
    Location:
    Norway
  16. inox

    inox Senior Member (Voting Rights)

    Messages:
    506
    Likes Received:
    4,520
    Location:
    Norway
    David Marks have made a similar point - I love how these psycologist/psychiatrics (?) can, and do, say things no patients advocate could allow themselfs :thumbup:



    https://davidfmarks.com/2018/09/22/psychology-science-or-delusion/
     
    Woolie, alktipping, Dolphin and 17 others like this.
  17. Brian Hughes

    Brian Hughes Senior Member (Voting Rights)

    Messages:
    175
    Likes Received:
    1,725
    Many thanks @Arnie Pye, and thanks to everyone for sharing the piece widely. :thumbsup:
     
    Annamaria, WillowJ, Woolie and 31 others like this.
  18. Brian Hughes

    Brian Hughes Senior Member (Voting Rights)

    Messages:
    175
    Likes Received:
    1,725
    I'm glad you think so. I certainly want it to be readable to everyone. Thank you for posting it. You absolutely have my support :emoji_thumbsup:
     
    Annamaria, WillowJ, Woolie and 28 others like this.
  19. Brian Hughes

    Brian Hughes Senior Member (Voting Rights)

    Messages:
    175
    Likes Received:
    1,725
    Many thanks @Kalliope , I really find that very humbling :sun:
     
    Annamaria, WillowJ, Woolie and 25 others like this.
  20. Brian Hughes

    Brian Hughes Senior Member (Voting Rights)

    Messages:
    175
    Likes Received:
    1,725
    The main thing here is that each word in that phrase is correct. Glad it makes people smile as well :innocent:
     
    janice, WillowJ, Woolie and 31 others like this.

Share This Page