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Editorial: UK life science research: time to burst the biomedical bubble The precariousness of life science research in the UK can also be traced back to a lacklustre approach to research integrity. Research misconduct, questionable research practices, and a reliance on publication numbers as a...

Article from 2017 but very interesting. " Much more than a movement disorder PD is now recognized to affect just about every system in the body, causing dermatologic, urologic, musculoskeletal, gastrointestinal and psychiatric symptoms. Early signs and symptoms of PD — including hyposmia...

"Much of the social and medical sciences depend on randomised control trials. But while this may be considered the foundational experimental method, a certain degree of bias inevitably arises in any trial; whether this is sample bias, selection bias, or measurement bias. This is important as the...

This article has just been posted to the ABC (Australia) website, ahead of a story on the current affairs show, 7.30, on the same network tonight. Based on the article, we are on tenter hooks about the story tonight...

Just came across this worrying article by Simon Wessely where he uses his familiar rhetorical style to minimise issues surrounding the UK government's rather wide powers to intervene in the lives of those considered to have diminished responsibility (which includes PwMEs under some...

Interesting article on iNews website. Looks like he tried a variety of things so I'm not sure any one thing can be given credit, he may have just improved over time anyway. https://inews.co.uk/news/health/marathon-runner-quit-work-me-cfs-diet-change/

This was apparently in the @Action for M.E. journal earlier this year. https://www.metrust.org.uk/2018/07/06/article-by-dr-paul-worthley-in-interaction-magazine/ I don't know anything about Worthley or the ME Trust, though I see Countess of Mar is a Patron. It reads to me as very similar to...

via http://www.theargus.co.uk/enewspapers/

Superb article for psychologists originally published in the June 2018 edition of the Journal of the New Zealand College of Clinical Psychologists (NZCCP). In the course of her research, the author spoke to @Carolyn Wilshire.

Miriam E. Tucker: CFS takes down doctors, too Registration is required to access the article. Tells story of Gary Solomon, Mark Vink and anonymous Dr. X and Dr. Y - all MDs who developed ME. Asked what he would like other physicians to know about ME/CFS, Vink responded "...that this is a...

http://www.heraldscotland.com/news/16288892.After_25_years_battling_illness__actor_prepares_to_showcase_new_film/ There have been days when Kirsty Strain’s ME symptoms were so bad, she has been unable to get out of bed. But she is making up for those lost days now. Over the coming weeks, the...

https://edition.cnn.com/2018/06/26/health/pots-tori-nick-foles-dysautonomia/index.html

"Funding is harder to find in general, and the current approach favors low-risk research and proposals by older scientists...." https://mobile.nytimes.com/2018/06/18/upshot/why-the-medical-research-grant-system-could-be-costing-us-great-ideas.html

Mirror: Tory minister demands comedian Ricky Gervais apologises for branding ME sufferers 'lazy' in offensive joke https://www.mirror.co.uk/news/politics/tory-minister-demands-comedian-ricky-12767943 A Government minister has demanded Ricky Gervais publicly apologise for a joke branding ME...

For years dismissed as 'laziness', but now cruel disease is finally getting attention it deserves Rochdale News: "Now a three-hour Westminster Hall debate on Thursday afternoon (21 June, 1.30 to 4.30 pm), supported by the ME Association and other charities, will discuss treatments and research...

https://patientworthy.com/2018/06/04/state-chronic-fatigue-syndrome-research-2018/ Comments are allowed. Perhaps people could thank the author and add to the information in the article.

" QOF Fiasco 2: ’Immoral’ refusal to learn from mistakes By Jerome Burne Last week I wrote about the great QOF (Quality and Outcomes Framework) fiasco – the 30-billion-pound public health experiment involving the whole UK population without any kind of testing or pilot programs and without...

Origins of an Epidemic: Purdue Pharma Knew Its Opioids Were Widely Abused My cousin's wife, who beat alcoholism and drug addiction, was put on OxyContin for her chronic back pain. She explained to them her history and they said she would not become addicted to it as it was formulated...

Wow... "After dating Shannon for several months, I needed to say something to her, but I couldn’t. It’s not that I was nervous or unsure of the phrasing. It’s that I couldn’t speak. My lungs and larynx couldn’t create the air pressure and vibrations needed to say the words floating around my...