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Just found this by chance: https://www.bbc.co.uk/bbcthree/article/682d905a-0aad-412a-b4be-7088c2e3405b “It feels like all my nerve endings are on fire” Georgina Harvey, 28, from Berkshire has fibromyalgia: a long-term condition that causes chronic pain all over the body. One morning in July...

https://www.theguardian.com/science/blog/2018/sep/03/scientists-must-keep-fighting-fake-news-not-retreat-to-their-ivory-towers

This starts with some Action for ME video that I've seen before. Then it goes on to discuss the young woman's case, and progression to full-time work!!! There is also a link to the NHS page which still recommends CBT and GET... Station: TeessideLive / AfME Date: September 2, 2018 WebTV...

This is the kind of article I hate. Trying to be sympathetic but perpetuating the psychological myth. https://www.thetimes.co.uk/article/kirsty-young-must-go-softer-on-herself-during-break-from-desert-island-discs-2pkjdbfbn Includes: I worry, though, that Young’s affliction is a form of...

https://www.thetimes.co.uk/edition/news/pick-up-thy-bed-and-work-out-gps-give-rest-cure-its-marching-orders-792w52z38 Under the NHS-wide Moving Medicine project, due to begin on September 10, GPs, nurses and other health professional will be given scripts to help them persuade patients to...

Speech she gave on May 12, 2018, at the Washington, DC Millions Missing Rally, with a few details added. ".......Prior to my ME diagnosis, I worked in healthcare for a decade as a healthcare social worker. I was a hospital trauma social worker, a case manager at a clinic for people with...

Third Force News: If the government won’t take ME seriously who will? http://thirdforcenews.org.uk/blogs/if-the-government-wont-take-me-seriously-who-will Lesley Scott argues ME can't be fixed through psychological interventions and the authorities need to take a different tact 29 August...

Sally DohertySaturday 25 Aug 2018 2:06 pm " I wake late, drag myself out from under my duvet and stumble to the kitchen. It would be a relief to have breakfast in bed but my husband works full time. He’s left me a bowl and a spoon on the side, and a sandwich awaits me in the fridge for lunch...

Short article in online version of The Times today reporting on the letter to the Lancet. Written by Tom Whipple- that the Lancet declined to comment.

Mirror: I can barely walk and I'm bed-bound 23 hours a day - M.E. nearly killed me Jessica Taylor Beramn, 28, had such severe from to the disease, she's been ill for 13 years, two of this in a comatose state.

Really interesting piece from Science magazine. Very much worth your time to read. Basically, a researcher made up whole trials, his co-authors put their names on his papers without checking anything, peer review failed to spot numerous problems with the studies, journals failed to react to...

" A charity has been forced to cut its services for hundreds of young people - many of whom are housebound. ME North East says it has been unable to find the cash it needs and is desperately seeking new funding so it can continue to offer support to help youngsters stay in education, fight...

19-year-old claims the bug was in tap water which ended up on her contact lens and could now kill her Skye Wheeler endures unrelenting exhaustion and excruciating pain She claims a parasite burrowed into her cornea and ate away her eye at just 14 The microorganism is 'sleeping' in her eye and...

" Atlanta (CNN)Every morning, I shave, brush my teeth, and swallow a dozen pills. I look in the mirror and thank God I can even walk out the door. Since 2007, I've lived with an incurable disease known as chronic fatigue syndrome. Internationally, doctors call it myalgic encephalomyelitis, or...

" Myalgic Encephalomyelitis, chronic fatigue syndrome, CFS/ME. These are just a few terms to describe one of the most destructive illnesses known to man. Manifesting as unrelenting fatigue and profound pain, ME/CFS is destroying the lives of 250,000 people in the UK. One in four are so...

" I’m not proud of cursing out a former GP. On top of that, I think she may have been even shorter than me, a very petite and soft-spoken woman. I had been going to her for over a year, and I was back for a routine follow-up. I was feeling especially exhausted that day. I must have looked it...

Huffington Post: Having ME Is Like Being Permanently Encased In A Suit Of Armour https://m.huffingtonpost.co.uk/amp/entry/myalgic-encephalomyelitis-how-it-feels_uk_5b61badbe4b0fd5c73d524cc/ I have, for a long time, struggled to fully get across the impact this illness has on my life...

BBC: 'Vindication' for woman who wanted ME on death certificate https://www.bbc.co.uk/news/health-44969741 The family of only the second person in the UK to have ME recorded on their death certificate say they feel "vindicated" by the ruling. Merryn Crofts from Rochdale died in May last year...

Saw this shared by the ME Association on Facebook... https://www.mirror.co.uk/news/real-life-stories/sufferer-spent-seven-years-bed-12952123

https://www.bbc.co.uk/news/business-44851363 After reading that "chronic illness" had contributed to the couple's financial predicament, I was curious to know what chronic illness. Silly of me really; I should have just thought of the most impoverishing chronic illness out there.